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UPDATE on Dino

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Well, we made our first trip out to Iowa last week to see Dr. P and

his staff. It was very exciting to meet him. It was kind of cute,

he was late to our appt because he had been so busy in the morning

that he had to take a nap after his lunch, so we waited until he

woke up and then he saw us.

Unfortunately, he said that Dino will have to have a few extra casts

to correct his feet because of the tendon lengthening surgery that

our Dr. in Akron did in June. But that it is fixable. He thinks

about 6-8 casts total. Our first appt was last Monday and DIno did

great. He fussed while they put the casts on but other than that he

did great and slept well, etc. Friday we went back and had the

casts changed and it didn't go so well. Although I did see some

results from just one set of casts, they were pretty aggressive

putting the second set of casts on and it was hard to watch my Dino

be in so much discomfort/pain. I even tried giving him some Tylenol

before we went, but maybe I gave it to him to soon.

WE are headed back out this Sunday, driving this time (9.5 hours)

and I'll be staying for 3 weeks. Hopefully we will get all of the

casts done in that time. That allows for 4-5 more casts....I'm

staying positive. WIll anyone else be at the RMH? I called there

tonight and am planning on staying there again.

I do have a question about the brace. I believe that Dr. P said

that we would go in to the brace after casting. Is there a

website that I can go to see what this brace looks like and also,

what should I know about it?

I willtry to post some pics of our visit.

Thanks again for everyone's support/feedback.

Also, since I have found this site, I am so motivated to try and get

the word out to others about the Ponseti method for treating

clubfeet. I even emailed Dateline. I know that some folks at the

RMH have also tried sending them emails to try and get them to do a

story on clubfeet/treatment, but with no luck. I thought maybe if

we could get a bunch of people here to send them an email,

requesting that they do a story on Clubfeet/Dr. Ponseti/Ponseti

method that maybe they would consider it? If anyone would be

interested, please respond and I'll get you the email address.

Thanks again!

Dionisio (Dino) 11/12/05 BCF

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