help please

September 21, 2002

Dear Judi,

When my kids were on i.v. rosephen for a month years ago, the doctor kept

them on oral antibiotics for six weeks afterwards. I think they were on

amoxicillin. He said that would cement it in. I thought this was a good

idea. Make sure your son is taking acidophilus along with the antibiotics

throughout his treatment. This will replace the good bacteria in his colin

that the antibiotics kill off. When my kids were in the hospital, the

nurses just gave them yogurt with their food every day because of it's active

culture. It was a nice try, but the yogurt had sugar in it so it would wipe

out any good effect it might have had on them, since sugar lowers the immune

system.

I hope your son does well.

Sue Rauch

September 21, 2002

Roe <<<<<<<<<<, and in my opinion it is

just a temporary fix at my stage of the game.>>>>>>>>>

Why do you think this??????

I was almost ready to dig into my almost empty pockets and send you the

$1000 you will need to get the PICC line put in....... But if you believe

it is only a temporary fix...........why do you want IV? It must happen in

your mind before it happens in your life ! If you feel IV isn't the right

meds for you, you need to find what WILL work for you I know its hit or

miss...........but you have to fight!!

Conniek nwnj

Leave no stone unturned!

September 21, 2002

Connie how long have you been on and off IV? haven't you done this before?

if I remember correctly, and I don't remember anything, so correct me

please, I thought you where much better.

but, here is the thing. I have been on IV three separate times since 1999.

it is not a cure. I don't believe its a cure and I think they should be

looking for a cure. What the IV does for me is allow my neurological

symptoms to lesson. I clears my head so that my seizures calm down so the

jumping at night stops so the pain in every joint stops, so I can walk and

drive and go out. so I can think. I have terrible brain fog. and IV is the

only thing that works. maybe I will be able to go near my stove without

getting burned. or vacuum my rug all at once instead of one part today and

one part next week. and this is one small room. Connie I have burns all

over my arms, from misjudging the oven while using it. my hands are burned

because I have had seizures from the heat of the oven. I live alone so I

eat lean quisine dinners every day. I have IBS aggravated of course by the

lyme, so I can only eat certain ones. it goes on and on. so and it will

clear it up but it is not a cure and it will not last forever. about 6-8

months after the therapy things will start to decline.

Granted some of my symptoms have cleared up during the first 8 week IV

therapy I had, the terrible Fibro pain cleared up. I still have pains but

nothing as bad as that. and the terrible headaches cleared up when I

started seizure treatment. but the other neuro symptoms still remain and I

see a neurologist every month. and a urologist, and the llmd, but all of my

symptoms stem from the brain and have gotten worse over the past year. one

three month shot of rocephen as far as I know is not a cure. but hey you

never know? miracles happen. this could be my time. right? I have

changed my eating habits and stuff so who knows. and please don't be angry,

I am allowed an opinion on a disease that no one really has an answer for.

I didn't come for money Connie , it was a really nice gesture thank you, but

I could never take it anyway. I just wanted advice. please. and I really

want to know what you think honestly without anger about what I just wrote.

thanks roe

October 7, 2002

Roe,

Yes a pic line would probably be easiest, however not the only way to go. I

had IV for 3 months and the way we did it was to put in a pediatric needle

attached to a small amount of tubing to attache another line to the 250 cc

bag of saline that the doc had mixed the rocephin into ahead of time. She

would give me 5 bags at a time to take home so I could do my own and we

changed the site on my arm about once a week alternating arms each time. I

hope this helps you out some. Good Luck.

Jeri in IN USA We can do it together!

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

October 7, 2002

hi

i would strongly suggest that people on this list who need medical

gateway authorization

and who want to take personal resonsibility for their treatment learn to

how to submit key documents with data that triggers release of money for

treatment.

if, all you need is " a piece of paper " , consider the ways that a

" correct " paper can be generated.

i am not advocating this of course; in fact -reading back over my

syntax- makes me have

to issue the disclaimer in this sentence.

in fact i want to be clear that i am happy no one on this list is

scanning a test document

and than altering it in something like photoshop and than submitting

it to insurance companies, etc..

in fact, most of us i assume would agree, it would be better not to

be treated than

to do something illegal. the hmo's are on our side and the doc's they

use are well versed in

lyme and of course want to do the best thing for you.

i am glad i got this off my chest.

>

>it. all they wanted was blood work, and the blood work was CDC negative,

>although, bands 41kd were still there and 4 bands on the igg that were lyme

>specific. and original posititive test and CDC reports from 2000. but they

>say I don't have lyme anymore, I am cured and don't need IV. ugg. nothing

>has changed. I have a fortune worth of meds in my refrigerator and no way

>to get them into my veins. Today we have to appeal, can you guys give me

>any advice, any web pages or letters that can help.

--

sincerely

william meyer

October 8, 2002

I would not put any hope in changing your insurance company

decision. I have found fighting that angle not worth the time.

Try to get more western blot tests. Chances are you will come up

positive on all five bands. Then you have some ammo.

We all know that negative western blot antibody tests do not mean

you are not infected. The burden of proof should be on them to prove

you are not infected! They can't!

I would think medciare will be easier to deal with. The goverment

programs tend to follow doctors orders. Just dont ask, get it done

and let medicare wory about it later. You will find it hard to get

them to commoit to anything .

Another option would be to get a real " sick attack " , and go to the

local emergency room.

Tell them to call your doc and get his advice. Maybe they could

start you? I dont know but think of different angles. I was put in

the hospital for three days to get my IV started.

Also, Why dont you just agree to get the pic line and have them bill

you. Tell the provider to send you a bill. Get your meds and worry

about things when all is done and you are better. You can send

medicare the bill when you are done and see what they do. If you

dont get the meds, paying this bill will be the least of your

problems!!!

Health first, everything else later! Hearses dont come with luggage

racks!

I ws on roceph and never saw powder form. Are you sure ?

world

May 3, 2003

>>What I am curious about

> is that he still has loose bowel movements (although the reddness

> around his anus is GONE!!!). Before the enzymes, he had a stool

> culture which showed a baceterial overgrowth, but no yeast.

He might still have a bacteria problem. Consider adding Culturelle.

For some kids, they still need a few food removals, even with enzymes.

Dana

July 9, 2003

Hi All

I need you all to tell me off please and give me some motivation as I

have become very slack over the past week or so despite being so strict

with myself for a month prior to that and feeling fantastic for it. My

fiancé of 5 and a half years told me last week that he doesn't know if

he loves me enough to marry me and I have moved out for the time being

until he sorts his head out. I have been so bad since then as chocolate

has always been a comfort food for me and once I gave into the

temptation I was stuffed. I now can't stop myself and am eating huge

amounts of chocolate, even though I know it's bad for me and every time

it makes me feel so terrible that I swear I won't do it tomorrow.

Of course I am the only one who can break the cycle but I am having so

much trouble doing so. I thought some not so subtle reminders about how

bad this is for me might help!

Thanks for listening (well, reading actually!)

Mickaela

Digest Number 1795

July 10, 2003

Doesn't sugar-free jello contain corn starch?

Duncan Crow

> While nutrasweet and dairy really aren't that greatest

> things I'd say for your current situation go and get a

> bunch of sugar-free instant Jello chocolate pudding

> and some organic milk to mix with it. This won't feed

> the Candida and will satisfy the chocolate cravings

> and need for a comfort food.

August 5, 2003

Lol, I'm weaning my daughter right now, just posted on another board

about it. I've been told and believe to wean in tiny amounts. If you

are not using liquid, I recommend moving over to the liquid, you can

wean easier that way.

I just dropped Allie (4 yrs, 33lbs) from 1/4 teas. to 1mL. I use a

bulb syringe and I'm gonna start marking lines on it so I can keep

it accurate over the coming weeks. I plan on supplementing with

tryptophan to help replenish her seratonin, she GREATLY improved

when she started the Paxil, and make fantastic developmental gains,

I want to keep it going. I don't know about inositol, I don't

remember what it was, but I read something that made me think it

wouldn't help her, but I'm sure it may be fine for your son!

Debi

> Next, He is definitely OCD and Im wanting to get off the Paxil.

I'm

> wanting to start INositol, I've read up but I want to hear from

> others that are using it. Thanks Alisha

August 6, 2003

Don't forget everyone is different and there are plenty of people who have

more drawn out and gradual changes - you just don't hear about them as much.

I'm sure someone on here said a short while ago to allow three months for

the body adjusting so 2 1/2 weeks is not v. long.

Julea )

Truly, it is in darkness that one finds the light,

so it is when we are in sorrow then,

that this light is nearest to all of us.

August 6, 2003

> Zeb is on ZP, No-Phenol, Pep and did well with these, I have been

> working on yeast for about 2 1/2 weeks, which I haven't seen any

> changes or negatives, I would have sworn he had a yeast issue. He

> had some lose stools but that was a blessing for him. I'm just not

> seeing the improvements with the enzymes that others have reported,

> yes there are small things and over all he is doing wonderful, but I

> want more:)

I had this issue with my son, and he used those exact enzymes. My son

still needed food removals, and he also needed chelation.

http://www.danasview.net/chelate.htm

Do you still keep your child away from certain foods? You might want

to rotate the foods you give him, to see if you might need to keep him

away from certain foods. This also applied to supplements for my son,

he only just recently started tolerating supplements.

>> Is there a chance he might respond better to Enzymaid or

> another brand

It is possible, altho Enzymaid is only for gluten/casein infractions,

so far as I know.

or could it be he is just one of the ones who is not

> affected by the enzymes? He doesn't reallt react either good or bad

> when foods are taken away or given.

Which foods have you tried removing? What about supplements?

Dana

September 2, 2003

Hi Bill

I also have hcv...with cirrosis...and blue cross my dr. insisted on treating me with interfuron...and ribovirn...and it worked excellent...I took the full 1 year treatment...it was,nt easy but I did it...I am now clear of the virus...its been 6 months since I completed the TX...and there is no detectable virus in my system..I am back to work and feel better than I have in 5 years

what ever you do at least get a 2,nd opinion...I am a pipe fitter and do alot of heavy work...and I have all the energy I need...I am 51 and have had hcv for 30 years...If I can help in anyway please let me know..........

Mike.................

February 20, 2004

> I joined your group hoping for help, what kind I really don't know. <

We can all try to help, sometimes just having someone to listen is all we need

while we vent.

> What I've read so far has not told me a lot about your group in the past

month. <

You have been reading posts for a month and don't know what we are about? We are

a group in which you can come to with your back problems and get support, others

experiences, etc.

> I don't even really know why I joined. Other than maybe someone out there

understands where I am. <

Understanding...that is a possibility.

> 4 yrs ago I broke L-5 in a lifting accident with a patient. <

Are you a nurse or what? Did you file workers compensation?

> I'm honestly not sure what was done surgically now I've heard too many

conflicting stories. <

One of the first things you need to do is understand your case. Know what is

going on and what has been done. Any medical treatments have to be documented

and are available in your medical file.

> About 3 weeks ago I though my spinal arthritis was flaring up, the pain got

really bad and sleep became a commodity item. Over the past 3 weeks the pain has

grown unbearable, I've been in the emergency room once, had a cat scan, have now

seen a neurosurgeon, a regular MD, had a contrast and non contrast mri, done am

on two forms of morphine and in excruciating pain. <

What do all the tests and doctors say is wrong? When it first flared up, did

something set it off?

We can always try to give support, but it helps to have a clearer picture of

what is going on. Most prople who have dealt with a back injury knows exactly

what is wrong and what treatments have been done. Personal knowledge of your

problem is the key to everything.

Viv in GA

August 18, 2004

You have warm fuzzies? Sorry couldn't resist.

I'm not sure what your fuzzies are. Mine look like small pieces of wet

toilet paper in small balls, or pieces of cottage cheese.

I verified that with a naturopath, he said that candida does look like

that.

Rick

> I'm new and I've been doing a bowel cleanse. I've read people saying

> that they can see whole yeast colonies after doing this and/or a

> liver cleanse. Can anyone tell me what a yeast colonie looks like.

> I've had some strange stuff come out of me. Some I'm sure is the

> mucoid plaque but there's other stuff that's kind of " fuzzy or

> furry " stuck to it.

>

> Thanks

>

> Sue

August 19, 2004

Sue,

I have gotten big wads of hairy looking strings all rolled up together during

enemas. I have also gotten alot of white stringy floaters. I think that they

are yeast, but am not quite sure. I always feel really good after I get rid of

them though.

Debbie (in New York)

I'm new and I've been doing a bowel cleanse. I've read people saying

that they can see whole yeast colonies after doing this and/or a

liver cleanse. Can anyone tell me what a yeast colonie looks like.

I've had some strange stuff come out of me. Some I'm sure is the

mucoid plaque but there's other stuff that's kind of " fuzzy or

furry " stuck to it.

Thanks

Sue

December 10, 2004

When you went in for your blood test did you put on the gel before the test if

so you could have got a spick in the blood test. You should not put on the gel

before you are tested. I have had my blood test come back way to high and this

was why. If you did just in the last 6 hrs put on the gel then had your blood

tested I would call the Dr.and tell him and have the test redone before

lowiering your gel. I don't know why he told you that using less will not cause

you problems. I have always had problmes when I was told to do this. If you

were on the higher amount for over a month you will feel like crap.

Phil

myhormonez <myhormonez@...> wrote:

Survey

Please help us to improve . Take the survey now!

Hello anybody please help My new endo just called me to tell me that

my testosterone is high I just took this test last tuesday dec 07/04

the result said 960 is high I am 40 and still the test from last

month was 400 he saic not to use 5g AG. I use to use the 2.5g of AG

so he said to use that old dose the smallest amount what do you guys

think is going on please help. I know it is confusing to me too

becouse the first test was last month before I double the dose with

aproval of the new endo doc by the way I was felling I guess he

agreed with me when I asked him to double the dose maybe he should

not have without looking lab works . Any ways I am going back to my

old dosage 2.5g Ag from now on. since he called to letme know he

also assured me it is okay if you go back to old dose so back to

square one I guess enough for now but please share your thoughts.

---------------------------------

December 10, 2004

Yes phil first I am glad you are up and runing (all is well). To

answer some of the questions you asked it is funny yes I put the

androgel first and went to get the test done on the first one it

came low 400 testosterone But a week later i did another test but

different time you see I apply only 2.5g in the am hour did the test

at around 5:pm that well over 10 hours after I applied the gel the

result as by the phone said 960 and to go back only on 2.5g of AG

what do you make out of this man oh man confuse as heck I need help

suggestions as to what to do or say to this doctors.

> Survey

> Please help us to improve . Take the survey now!

>

> Hello anybody please help My new endo just called me to tell me

that

> my testosterone is high I just took this test last tuesday dec

07/04

> the result said 960 is high I am 40 and still the test from last

> month was 400 he saic not to use 5g AG. I use to use the 2.5g of

AG

> so he said to use that old dose the smallest amount what do you

guys

> think is going on please help. I know it is confusing to me too

> becouse the first test was last month before I double the dose

with

> aproval of the new endo doc by the way I was felling I guess he

> agreed with me when I asked him to double the dose maybe he should

> not have without looking lab works . Any ways I am going back to

my

> old dosage 2.5g Ag from now on. since he called to letme know he

> also assured me it is okay if you go back to old dose so back to

> square one I guess enough for now but please share your thoughts.

>

> ---------------------------------

>

December 10, 2004

I would call and ask to do the test over in one week you can't go from 400 to

over 900 I have never seen this.