help please

[Guest guest]

>

> Does it do it at night or anytime day or night?

>

> Roxanna

> You're Unique

> Just like everyone else...

> ( ) Help please

>

>

> I have a 10 year old Aspie Son that has decided that it is too

much

> work to walk to the bathroom and has decided that the corners of

his

> bedroom work just fine to urinate. Besides just being disgusting

it is

> ruining the floors. Any ideas on how to stop this?

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.169 / Virus Database: 270.6.21/1674 - Release Date:

9/16/2008 8:15 AM

>

[Guest guest]

Hi Roxanna,

Sorry for the lack of reply. I was out of internet access for the

last week. I had a long talk with s after reading the

responses here as well as having a talk with other Aspie parents. He

is not doing it in his sleep or at night. He was doing it because he

didn't want to take the time to stop what he was doing (computer or

TV) to go to the bathroom. We have had a long talk about the reasons

why it is so bad what he is doing. We also followed through with the

consequenses we had warned him of before as well as warned him of

what the future consequences would be if he does it again. We will

see if he does it again or not.

Keep your fingers crossed for me.

Vickie

>

> Does it do it at night or anytime day or night?

>

> Roxanna

> You're Unique

> Just like everyone else...

> ( ) Help please

>

>

> I have a 10 year old Aspie Son that has decided that it is too

much

> work to walk to the bathroom and has decided that the corners of

his

> bedroom work just fine to urinate. Besides just being disgusting

it is

> ruining the floors. Any ideas on how to stop this?

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.169 / Virus Database: 270.6.21/1674 - Release Date:

9/16/2008 8:15 AM

>

[Guest guest]

This post resonates with me. My AS son is age 9, and his brother is age 7, as well as a sister, age 5. It is difficult at times to explain the behavior of my AS son to his siblings, who look up to him. I think that perhaps "It's So Much Work to Be Your Friend," by Lavoie might be of help, but I would also be interested in any resources specifically for siblings.

On a related note, it is so wonderful that siblings can be so patient, so tender and accepting of one another! Since friendships do not come easily to me son, I am grateful for his siblings!

-Cassie

From: Vickie Boehnlein <baneline1@...>Subject: ( ) Help please Date: Monday, December 15, 2008, 10:17 AM

I am having some problems between my AS son, age 10, and my NT daughter, age 7. My sweet daughter is having a very hard time with her brothers behavior. He is being a bully a lot of the time but to be fair she also instigates (or triggers) many of his attacks. I have been trying to explain to her why he acts the way he does but it is hard for her to understand. Does anyone know of any age appropriate resourse that would help me explain to her what his AS is all about and why he is the way he is?Vickie

[Guest guest]

I don't know if this would be helpful at all. I bought the book I've linked below for my son. It basically goes over and "gives a name" to all the feelings you may have for your sibling with AS. It was written by an 8 year old boy with an aspie brother. Sometimes kids act out or cause trouble because they don't know how to deal with what they feel. I certainly would not read this book all at once but break into a few pages at a time and use it as a resource to talk about if your child feels this way and ways to help. http://www.amazon.com/Brotherly-Feelings-Emotions-Aspergers-Syndrome/dp/184310850X/ref=sr_1_1?ie=UTF8 & s=books & qid=1229363682 & sr=1-1ConnieCassie Murray <ringmurray@...> wrote: This post resonates with me. My AS son is age 9, and his brother is age 7, as well as a sister, age 5. It is difficult at times to explain the behavior of my AS son to his siblings, who look up to him. I think that perhaps "It's So Much Work to Be Your Friend," by Lavoie might be of help, but I would also be

interested in any resources specifically for siblings. On a related note, it is so wonderful that siblings can be so patient, so tender and accepting of one another! Since friendships do not come easily to me son, I am grateful for his siblings! -Cassie From: Vickie Boehnlein <baneline1msn>Subject: ( ) Help please Date: Monday, December 15, 2008, 10:17 AM I am having some problems between my AS son, age 10, and my NT daughter, age 7. My sweet daughter is having a very hard time with her brothers behavior. He is being a bully a lot of the time but to be fair she also instigates (or triggers)

many of his attacks. I have been trying to explain to her why he acts the way he does but it is hard for her to understand. Does anyone know of any age appropriate resourse that would help me explain to her what his AS is all about and why he is the way he is?Vickie

[Guest guest]

In my area there is an Aspergers support group for siblings...very helpful. Type in Asperger's support and the city or county you live and see what comes up. If nothing call your local Autism Organization or Aspergers Organization and ask them. If you live in California calling the local Regional Center is a good start as well. They have all kinds of resources for families. Also, she can go to therapy (assuming your son is recieving therapy) and talk to the therapist about her problems with her brother. This can also help your son understand how his behavior is affecting the family.Here's a few online resources. The last one is actually a DVD designed for children your daughter's

age.www.aspergers-and-pdd.com/siblings-of-aspergers-kids.htmlwww.suite101.com/article.cfm/aspergers_syndrome/81395 - 27k -www.autism-society.org/site/News2?page=NewsArticle & id=9854 From: Vickie Boehnlein <baneline1@...>Subject: ( ) Help please Date: Monday, December 15, 2008, 7:17 AM

I am having some problems between my AS son, age 10, and my NT

daughter, age 7. My sweet daughter is having a very hard time with her

brothers behavior. He is being a bully a lot of the time but to be

fair she also instigates (or triggers) many of his attacks. I have

been trying to explain to her why he acts the way he does but it is

hard for her to understand.

Does anyone know of any age appropriate resourse that would help me

explain to her what his AS is all about and why he is the way he is?

Vickie

[Guest guest]

My son did this as well due to having some emotional problems because

I had to separate my two boys. He resented having to be in a

different room. He would always have an excuse but he knew what he

was doing. I made him clean it up. I also put him in nighttime

pull-ups...he had no excuse after that. No more urinated in the room

at night. I gave him the discretion as to when he needed to stop

using the pull-ups. I explained that it was up to him when he could

stop using them; however, I would expect that he would not urinate in

the room any longer. His pull-ups were consistently dry in the

morning and after two days he decided he did not need them any longer.

Haven't had a problem sense.

>

> I have a 10 year old Aspie Son that has decided that it is too much

> work to walk to the bathroom and has decided that the corners of his

> bedroom work just fine to urinate. Besides just being disgusting it is

> ruining the floors. Any ideas on how to stop this?

>

[Guest guest]

> Looking into natural stuff for constipation for a 4 year old, 1 year old, 12

year old, and 9 year old. Constipation runs highly in our extended family so any

information will be appreciated please.

Ideas here

http://www.danasview.net/constip.htm

> Also think dana posted a link to miralax, would love to read it.

Here is my page

http://www.danasview.net/miralax.htm

Dana

[Guest guest]

Ask to go on the gel start at 10 grams this is the best info I can give you your

Testosterone levels are crashing your good after the shot but your crashing by

the next one. Or see a Private Dr.

Co-Moderator

Phil

> From: swjohnson2004 <s.w.johnson@...>

> Subject: Help please

>

> Date: Monday, January 11, 2010, 10:43 AM

> Hi Guy's, it's been a while since I

> posted, but I need some help and guidance.  My whole

> world has turned upside down over the last few months. 

> Started in May 09, when the endo questioned the dose of

> sustenon, I was on 100ml every 5 days (he put me on it!), he

> reckoned it was suppressing my pituitary and so wanted to

> reduce by 50% my dose.  The company that make the

> product then stopped making it in the dose I was taking, so

> quick calculations were made and it ended up I was taking 1

> shot of 250 every 28 days.  Well a month or two later

> all hell seemed to break lose.  I was experiencing

> chronic insomnia, aching joints (bad!) and then to top it

> all off I started experiencing " blackouts " , in that I would

> find myself waking up on the floor and not knowing how I got

> there (in my opinion because of the lack of sleep).  A

> Lot of other behaviour changes too.  Went back to see

> the endo.....who denied any link...then after a while let

> slip that he had read about others throughout the country

> (UK), who had had  similar experiences.  He

> ordered some tests and when I went back to see them I ended

> up with the boss again.  Who totally dismissed any

> connection to the change of dose and said that there were

> only 2 reasons for aching joints.......osteo arthritis or

> rheumatoid arthritis.  He wanted me to go on a 3 weekly

> cycle which I have totally refused to do.  Can you

> offer me any guidance or lead me to articles which I may be

> able to produce to my Dr as supporting evidence. 

> Thanks guys

>

>

>

> ------------------------------------

>

>

[Guest guest]

On Mon, 11 Jan 2010 15:43:56 -0000, you wrote:

>Hi Guy's, it's been a while since I posted, but I need some help and guidance.

My whole world has turned upside down over the last few months. Started in May

09, when the endo questioned the dose of sustenon, I was on 100ml every 5 days

(he put me on it!), he reckoned it was suppressing my pituitary and so wanted to

reduce by 50% my dose. The company that make the product then stopped making it

in the dose I was taking, so quick calculations were made and it ended up I was

taking 1 shot of 250 every 28 days. Well a month or two later all hell seemed

to break lose. I was experiencing chronic insomnia, aching joints (bad!) and

then to top it all off I started experiencing " blackouts " , in that I would find

myself waking up on the floor and not knowing how I got there (in my opinion

because of the lack of sleep). A Lot of other behaviour changes too. Went back

to see the endo.....who denied any link...then after a while let slip that he

had read about others throughout the country

>(UK), who had had similar experiences. He ordered some tests and when I went

back to see them I ended up with the boss again. Who totally dismissed any

connection to the change of dose and said that there were only 2 reasons for

aching joints.......osteo arthritis or rheumatoid arthritis. He wanted me to go

on a 3 weekly cycle which I have totally refused to do. Can you offer me any

guidance or lead me to articles which I may be able to produce to my Dr as

supporting evidence. Thanks guys

Read this:

http://www.aace.com/pub/pdf/guidelines/hypogonadism.pdf

3 weeks is far too long a cycle. Most of us do 100 mg a week.

These guidelines suggest injections every 7 to 10 days.

What were your T levels the second time around?

T is a powerful steroid and does prevent a lot of pain. Also low T

leads to low bone density. I doubt you're low enough for this to be

the source of your pain, but share the numbers you got back.

Virtually all of us here know that low T results in lots of aches and

pains. The endos need to learn a bit.

[Guest guest]

The Compounder website has some good info on LDN to show your doctor. I am

considering getting my LDN from them. The Compounder is on the list of reliable

pharmacies for LDN.

http://www.thecompounder.com/alternative-treatments/multiple-sclerosis/low-dose-\

naltrexone

http://www.thecompounder.com/alternative-treatments/multiple-sclerosis/low-dose-\

naltrexone/how-can-i-obtain-ldn-and-what-will-it-cost

http://www.thecompounder.com/alternative-treatments/multiple-sclerosis/low-dose-\

naltrexone/prescribing-low-dose-naltrexone

http://www.thecompounder.com/alternative-treatments/multiple-sclerosis/low-dose-\

naltrexone/can-i-use-low-dose-naltrexone

http://www.thecompounder.com/alternative-treatments/multiple-sclerosis/low-dose-\

naltrexone/suggested-ldn-order-form

Art

Low Dose Naltrexone Forum

http://ldn.proboards.com/index.cgi?

--

>

> Hi, I am pretty new. I was unable to find anyone to give me a script for LDN.

I am on SSI for FMS< CFS, Depression, Perperial Neuropathy, intersisitial

cystisis and a few other issues, Plus dyslexia!

> My primary would not agree to try it, in fact in said that FM does not exist

and is a disease for women with emotional problems! Sigh... it is hard to find a

Dr when you are on disability. Anyway, my Shrink, has agree to look at the

information and will give me a script if he thinks it might help. I printed the

Stanford study, can you suggest other things for me to run off that would be

good for him to read? Please. I am having trouble finding medical Dr's talking

about LDN for my conditions, mostly MS or cancer.

> Also he wants information on dosage, time of day to take it, etc.

> I heard Skips is the best and cheapest place to buy it, is that true? I was

told to buy the 4 mg , that you can cut it. I am very sensitive to medications

so I want to be careful

>

> I get colds, flu, bronchitis all the time so if this would help with my muscle

pain, my low immunity and sleep I would be in heaven. I am not expecting a cure,

I have been ill for over 15 years, however, to feel better and be able to see my

grandsons would be so wonderful.  

>

> Thank you in advance for any information ....

> Angel

>

> " Courage does not always roar. Sometimes, it is the quiet voice at the end of

the day saying, " I will try again tomorrow " . "

>

>        

>

[Guest guest]

I would have your doctor go to the source....on www.low dose naltrexone.org at the end of the page lists Dr. Bihari and Dr. Zagon's phone numbers. Both were very helpful when I called with questions. If your doctor won't call...then you call.

I have to tell you, Angel, your symptoms are very typical for tick-borne bacterial/viral infections www.canlyme.com . You don't have to remember a tick bite to be infected with this mess. These infections are multi-systemic...they can invade any organ, any system, any bone, any soft tissue...including the gut. Literally it can cause problems from head to toe. LDN is no match for these infections, but it is very helpful.

I hope you are able to get your health turned around soon.

Take care-

Help Please

Posted by: "Angel" whiteangel1853@... whiteangel1853

Fri Apr 30, 2010 10:55 pm (PDT)

Hi, I am pretty new. I was unable to find anyone to give me a script for LDN. I am on SSI for FMS< CFS, Depression, Perperial Neuropathy, intersisitial cystisis and a few other issues, Plus dyslexia! My primary would not agree to try it, in fact in said that FM does not exist and is a disease for women with emotional problems! Sigh... it is hard to find a Dr when you are on disability. Anyway, my Shrink, has agree to look at the information and will give me a script if he thinks it might help. I printed the Stanford study, can you suggest other things for me to run off that would be good for him to read? Please. I am having trouble finding medical Dr's talking about LDN for my conditions, mostly MS or cancer. Also he wants information on dosage, time of day to take it, etc. I heard Skips is the best and cheapest place to buy it, is that true? I was told to buy the 4 mg , that you can cut it. I am very sensitive to medications so I want to be careful I get colds, flu, bronchitis all the time so if this would help with my muscle pain, my low immunity and sleep I would be in heaven. I am not expecting a cure, I have been ill for over 15 years, however, to feel better and be able to see my grandsons would be so wonderful. Thank you in advance for any information .... Angel

[Guest guest]

I posted this info below for all to see, but not sure if it is allowed? It has not appeared on other LDN sites that I have posted to before therefore I am sending it to you personally also!> > > Try this website http://www.co-cure.org/USA_NY.htm there are a few Drs listed on this website.> > Might want to also try this website: http://www.acamnet.org/site/c.ltJWJ4MPIwE/b.5420171/k.7A8D/ACAM_Homepage.htm and if the "FInd a Physcian..." link does not work try "contact us" my dr is on both of these websites and he prescribed me LDN. > > Best of Luck,> > GG in NH

PS I have a LDN flyer in PDF that I could attach to an email and perhaps this would help convince your Dr or the websites it provides would help.

Help Please

Posted by: "Angel" whiteangel1853@... whiteangel1853

Fri Apr 30, 2010 10:55 pm (PDT)

Hi, I am pretty new. I was unable to find anyone to give me a script for LDN. I am on SSI for FMS< CFS, Depression, Perperial Neuropathy, intersisitial cystisis and a few other issues, Plus dyslexia!

My primary would not agree to try it, in fact in said that FM does not exist and is a disease for women with emotional problems! Sigh... it is hard to find a Dr when you are on disability. Anyway, my Shrink, has agree to look at the information and will give me a script if he thinks it might help. I printed the Stanford study, can you suggest other things for me to run off that would be good for him to read? Please. I am having trouble finding medical Dr's talking about LDN for my conditions, mostly MS or cancer.

Also he wants information on dosage, time of day to take it, etc.

I heard Skips is the best and cheapest place to buy it, is that true? I was told to buy the 4 mg , that you can cut it. I am very sensitive to medications so I want to be careful I get colds, flu, bronchitis all the time so if this would help with my muscle pain, my low immunity and sleep I would be in heaven. I am not expecting a cure, I have been ill for over 15 years, however, to feel better and be able to see my grandsons would be so wonderful. Thank you in advance for any information .... Angel"Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow"."

[Guest guest]

At/around bedtime is usually the recommendation, with 'between 10pm and 2am' being a reasonable sort of range... depending on your bedtime. As far as I know LDN should not interfere with Klonopin or with other supplements/drugs that are not opiates/narcotics. Melatonin and inositol are fine. Low carb/specific carb diets can help with yeast issues, as can certain supplements, such as olive leaf extract. Skips is an excellent pharmacy, the pharmacists are knowledgeable about LDN, the price is reasonable and shipping is fast. You can save money on shipping by ordering several months at a time - LDN capsules won't go bad quickly, so that is no problem. Any doctor can fax in the prescription for you - Skip's Pharmacy contact info can be gotten easily using Google. LDN from Skip's come in capsule form rather than pills, so I can't advise on taking half a dose for four days - and am not certain why that would be necessary, but I assume that Skip's pharmacist or any other pharmacist experienced with LDN can advise you on that issue. I would advise against using a pharmacy not listed in our list files as experienced and reliable.Good luck!~EileenOn May 17, 2010, at 8:12 PM, Lady Raven wrote:

Well, I finally got a script for LDN from my "shrink" today, my PC, Neruologist and other Dr's would not even look at the information.

He asked me to bring him the Stanford study and any other information I could find on LDN. He gave me a script for 4.5mg. That I should take half a pill for the first 4 days.

I would like some recommendations for taking.

1. I have read best to take between 10-midnight, correct? That taking during the day is not a good idea.

2. I am not on any opium or pain related drugs.

3. I have lowered my Klonpin from 2mg to .50 over the last nine months in preparation for this.

3. I read it might disturb my sleep for several nights. I have a sleep disorder. I am prepared. Can I still take my liquid Melatonin and Insoitol?

4. Some people are saying it makes yeast problems worse. I am going back on a yeast free diet. I have had chronic yeast problems.

I have CFS/FMS, Periphal Neuropathy, Osteoporosis, Osteo Arthritis, Sleep disorder, Carpal Tunnel and plantar fasicitis and a learning disability ,so I am not expecting miracles but some relief would be wonderful.

I am going to continue taking my protein powder, Vit C, E, Gluthaonine, Allergy herbs, Vit D, and hope for the best.

I have a list of 5 Pharmacists- I have heard that Skips is the best. Who is the best? Who has the best price?

I am on SSI so I cannot go the the Dr's who specialize in using LDN, I have to use research and others knowledge to get me through this.

I am in So CA if anyone else is local and would be open to sharing.

Thank you for your time.

Raven

[Guest guest]

You wont be able to split a capsual unless you open it up and mix it with water

and take a lesser amount. The best thing would have been to get a script for

1.5mg if you are drug sensitive and then slowly work your way up to 4.5mg If

you can ask your shrink to change the script and then you can fax it off to

Skips I think that will be the best way to do it.

Good luck!

[Guest guest]

one can buy some empty caps and divide the powder approx by eye. sometimes

a health food store sells them by " each " or a small quantity.

as it happens, i just bought 80,000 empty OO gelatin caps to sell so i can

have a few years worth on-hand and make some money too. can't really afford

my supps unless bought in bulk and cap them myself. next i hope to buy a

dozen or two filler devices at wholesale price like the one i use that's

pretty cool. " The Capsule Machine " .

i wonder what a bag of 80,000 OO caps will look like? it's not like i have

a lot of extra room.

> [low dose naltrexone] re: help please

>

> You wont be able to split a capsual unless you open it up and

> mix it with water and take a lesser amount. The best thing

> would have been to get a script for 1.5mg if you are drug

> sensitive and then slowly work your way up to 4.5mg If you

> can ask your shrink to change the script and then you can fax

> it off to Skips I think that will be the best way to do it.

> Good luck!

[Guest guest]

In desperation, you can open the capsule and stick each half in a piece of bread

to close the end. You will have to estimate half the amount, but can get close.

Of course in years past, people were started on 4.5mg, or sometimes 3 and then

up to 4.5. That is how I and all of my family started. I know that there is a

lot of talk about starting ultra low and for some that is important, but for

most, Dr. Bihari simply started them without a lot of trepidation.

Francie

http://LDN-for-MS.com

>

> one can buy some empty caps and divide the powder approx by eye. sometimes

> a health food store sells them by " each " or a small quantity.

>

> >

> > You wont be able to split a capsual unless you open it up and

> > mix it with water and take a lesser amount. The best thing

> > would have been to get a script for 1.5mg if you are drug

> > sensitive and then slowly work your way up to 4.5mg If you

> > can ask your shrink to change the script and then you can fax

> > it off to Skips I think that will be the best way to do it.

> > Good luck!

>

[Guest guest]

He should be fine. My son takes 20 drops and he is only 60 pounds.

On Sat, Nov 20, 2010 at 5:25 PM, <tigger3799@...> wrote:

>

>

> my son is 98lbs 11 years old hubby gave him 20 drops of gse which should

> have been 10 his lips are really red, i gave him a charcoal , will he be

> ok??

> ty

>

>

[Guest guest]

thank you very much !

In a message dated 11/20/2010 9:27:17 P.M. Central Standard Time,

autismtookmickie@... writes:

He should be fine. My son takes 20 drops and he is only 60 pounds.

On Sat, Nov 20, 2010 at 5:25 PM, <tigger3799@...> wrote:

>

>

> my son is 98lbs 11 years old hubby gave him 20 drops of gse which should

> have been 10 his lips are really red, i gave him a charcoal , will he be

> ok??

> ty

>

>

[Guest guest]

GSE is high phenol. Do you have any No-Fenol?

S S

Re: HELP please

Posted by: " Zurama " autismtookmickie@... artdezurama

Sat Nov 20, 2010 7:27 pm (PST)

He should be fine. My son takes 20 drops and he is only 60 pounds.

On Sat, Nov 20, 2010 at 5:25 PM, <tigger3799@...> wrote:

>

>

> my son is 98lbs 11 years old hubby gave him 20 drops of gse which should

> have been 10 his lips are really red, i gave him a charcoal , will he be

> ok??

> ty

[Guest guest]

im the mother of beautiful baby girl vorn full term naturally and perfect. she

developed a flat head around 3months everyone gps,physio , pead, etc told me it

will round out,..... she is now nearly 7months and although has improved alot i

think its still bad ive been told its mild but its not. she is flat in the back

and one the one side,and ears are off. her face is fine. it has started to pop

out {lumpy head] but her flat side hasnt started yet. im at a loss as what to do

my hubby just sees a perfect little girl and believes it will correct itself

ears and all. i stress about it everyday, i have no one to talk too and i dont

no what to do, she sleeps on her tummy now mostly and at 4months we started side

sleeping etc on the good side. she has improved like i said but her ears are

still off. do they ever improve? without helmet,, he is fully against helmet as

are most specialists in my country australia. thankyou