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Hi Inga

Did you read my post. I am not on my private email maybe we can chat

around 8pm I have to go out or if you call my and I am home we can hang up

and we can go to the chat line. of land

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  • 4 years later...
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Thanks! I'd rather not have to go so often for shots, but I suppose less

scars is nice. Boy, I did some big ones on his legs when we first got that

growth hormone... Trade-offs, huh?

Inga

At 09:06 PM 7/7/2005 +0000, you wrote:

>Inga,

>

>Lupron and Zoladex both accomplish the same goal: delaying

>puberty. The basic difference is that Lupron is an injection given

>every 28 days or so and Zoladex is a pellet inserted just under the

>skin in the abdomen every 90 days or so. We had the choice, but

>opted for Zoladex for several reasons. One was that we would not

>have to trek into NYC every 28 days for the shot. Two was that Max

>would only get the medication every 90 days, a more comfortable

>option for him. Three was that we were able to put Emla cream on

>for at least 4 hours prior to the insertion, so he was almost pain-

>free. (He did feel the last bit of the pellet being put in and then

>had some soreness for a day or two after.)

>

>The negative side to Zoladex? Minor, but still.... Max has little

>tiny scars where the pellets were inserted. He has 4 major scars on

>his abdomen already, so I guess the extra points are not a big

>deal.

>No way will you ever find him without a shirt on, though.

>

>Jodi Z

>

>

>

>

>

>

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  • 2 months later...

Inga,

The problem with switching to another GI practice is sort of

complicated. First of all, this practice is supposed to be the best

in the area next to going back to NYC. And Dr. Rosh came from Mt.

Sinai where Dr. H. is, so we know he is really good.

Second, Max is 17. If he were to be hospitalized for a GI problem,

he would have to be on the pediatric floor up until he is 21. Most

adult GI docs are not allowed privileges in the Childrens' Hospital,

if any at all.

What was explained to me by a friend who is an advanced practice

nurse practioner is that these guys are pressured by insurance.

Insurance does not pay them what they used to get so the docs have

to see more patients in order to keep up their incomes. Also, they

are pressured by the hospital itself, as well as insurance, to see

as many kids as they can. They are only allotted a set amount of

minutes/patient.

Does this seem fair? NO. Does this really excuse the lack of

treatment that Max has been getting? NO. So I have to be a pushy,

bitchy mom in order to get what my child/teenager needs.

One good note: Max started on the Zelnorm last night. It's almost

8am and he is not awake and hiccuping. We also noticed that he was

not hiccuping quite as much late in the evening, either. I don't

know if it's a placebo effect or if we are jumping to conclusions

too soon, but we will see. I've also told Max that I just KNOW this

med is going to work. I'm hoping that he will believe it, too, and

that will have a positive effect as well.

Jodi Z

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If pride weren't a factor, they could get a lot of help with all their

pressure by taking your insights more seriously. Oh well, I forgot that

the pediatric classification lasted that long - hey, I was married at 20!

Hopefully they'll gain some wisdom soon or a truly better practice will

become apparent somehow. Sigh, until then you might need to walk gingerly

around their pride a bit when things aren't as urgent, eh? Maybe think of

some sincere compliments or something...

Inga

At 11:58 AM 10/4/2005 +0000, you wrote:

>Inga,

>

>The problem with switching to another GI practice is sort of

>complicated. First of all, this practice is supposed to be the best

>in the area next to going back to NYC. And Dr. Rosh came from Mt.

>Sinai where Dr. H. is, so we know he is really good.

>

>Second, Max is 17. If he were to be hospitalized for a GI problem,

>he would have to be on the pediatric floor up until he is 21. Most

>adult GI docs are not allowed privileges in the Childrens' Hospital,

>if any at all.

>

>What was explained to me by a friend who is an advanced practice

>nurse practioner is that these guys are pressured by insurance.

>Insurance does not pay them what they used to get so the docs have

>to see more patients in order to keep up their incomes. Also, they

>are pressured by the hospital itself, as well as insurance, to see

>as many kids as they can. They are only allotted a set amount of

>minutes/patient.

>

>Does this seem fair? NO. Does this really excuse the lack of

>treatment that Max has been getting? NO. So I have to be a pushy,

>bitchy mom in order to get what my child/teenager needs.

>

>One good note: Max started on the Zelnorm last night. It's almost

>8am and he is not awake and hiccuping. We also noticed that he was

>not hiccuping quite as much late in the evening, either. I don't

>know if it's a placebo effect or if we are jumping to conclusions

>too soon, but we will see. I've also told Max that I just KNOW this

>med is going to work. I'm hoping that he will believe it, too, and

>that will have a positive effect as well.

>

>Jodi Z

>

>

>

>

>

>

>

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