Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 Hello again, Just thought I'd share some good news and ask a question about some not-so-good news. We had our endocrine appointment with Dr Brain yesterday and the results back from her pituitary scan blood tests were all normal range (except IGF1 and IGF3 were on the low side) this gets rid of our main worry that there was a problem with Madz' pituitary gland due to the cleft palate. Are the IGF results typical for RSS? So I left GOS hospital feeling pretty high (she is 11lbs and 56.5cm) - only to get back to an ansamachine message to say her hip xray looks odd and she needs to see the osteo consultant. That makes 6 teams of doctors she is seeing! Anyway, she was born breech and so was potentially prone to hip dislocation so had 2 ultrasound checks in the first 3 months that showed initially immaturity of the hip joint and then a normal range result. However at the developmental assessment the Dr said her bum (butt!) creases were not symmetrical so she should have an Xray (9 months). The xray shows there is some cause for concern that the ball & socket joint is not growing in the correct way and she may need a cast (I haven't had the osteo appt yet so don't know much else). I am v depressed as I am back working part time & things were going so well. Is there any chance the xray showed up anything RSS related that might be less serious? eg bone age/asymmetry? Thanks for your help. Gillian --------------------------------- Yahoo! Messenger NEW - crystal clear PC to PCcalling worldwide with voicemail Quote Link to comment Share on other sites More sharing options...
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