Re: need good RSS person in Portland, Oregon-Debbie

[Guest guest]

Hi Debbie,

I'm the RSS adult that was referring to in her

email. I recently moved to Seattle to begin law

school at Seattle University. Unfortunately, I can't

help you out with doctors, because I'm so new to the

area myself. However, I wanted to let you know that

I'm in your general geographical area if you need

anything. You can either contact me via the list or

through my email, which is hillaryjorgensen @yahoo.com

(no space).

~Hillary

22, RSS

--- wrote:

> Hi,

>

> I'm sure you will get many more responses but if

> there is anyway you

> can just up and go and get to the convention you

> will truly feel much

> more in control of things when you leave. I went

> for the first time

> last year and even though you hear everyone talking

> sightseeing etc

> the medical information in amazing and empowering.

> There is another

> mom in Oregon, or maybe WA state? And, Hillary (one

> of the adults is

> out in Law school either in OR or WA, I am just not

> able to

> remember. I think Seattle,WA though....

>

> , mom to , 5 and Emerence 29 mo 21lbs 32

> in

>

>

> > Hi,

> >

> > I know many of you are busy at the convention. I

> just

> > discovered RSS and then this site a couple days

> ago.

> >

> > I have an 8 year old little girl going into

> > " precocious puberty " who it seems very likely is

> RSS

> > with a mild " phenotype " . However, due to her

> being

> > internationally adopted, there is no early medical

> > background and so this is complicating getting a

> > diagnosis.

> >

> > She DOES have:

> >

> > hypoglycemic (which was VERY bad after recent

> > operation when she was kept from food and water

> all

> > night and until after the operation which didn't

> START

> > until 1:30pm)

> >

> > incurving pinkies

> >

> > small chin

> >

> > SMALL stature

> >

> > until this past year when I really worked on

> intensive

> > feeding, was very thin, now is just right.

> >

> > If ANYONE can refer me to an RSS specialist nearby

> to

> > Portland, Oregon I would REALLY appreciate it.

> >

> > The last thing my daughter needs in addition to

> > everything else she has to deal with is " breasts "

> in

> > third grade when she is only 47 1/2 " tall.

> >

> > Thank you very much!

> >

> > Debbie

> >

> >

> > __________________________________________________

> >