Re: neuro

[Guest guest]

To my knowledge, the neuro's won't do measurements and almost all of them will deny you. At least that is what my ped told me. I think that there are some exceptions, but as a group, they are more worried about what is inside the head. We did go to a neuro and we were denied. All he did was have his PA take a history and feel my daughter's head. Then, they told me that it would probably round out some and that a band was a "grueling" therapy that wasn't worth the cost, time, or effeort. However, my ped did not send me there for an opinion on the band - she wanted to rule out cranio. After speaking with him, I called her and she gave me the referral to a cranial doctor for another opinion on the band.

Is there any way that you can check to see how frequently this neuro recommends a band? And, do you have a choice between the ones that you see?

Also, I know that Hanger requires a script, but the STARband and doc band locations don't. Is there any way that you can handle a one time travel to one of these locations to get measurements and their opinion? You could then bring this to the neuro or even have it sent to the ped to see if they will agree to write the script.

From: critter lover <tinsel2003@...>Plagiocephaly Sent: Mon, July 12, 2010 3:19:00 PMSubject: neuro

I didn't get a script but I got a referral to a neuro. Can anyone tell me what will happen there? He also said it wasn't terrible and I may get denied but I will feel so much better knowing I tried and perhaps got some measurements?Kim

[Guest guest]

Kim,My daughter was banded at the direction of a neurosurgeon, so there are some of them who do see the benefits of banding(lucky for us.) 's neurosurgeon examined her head to rule out cranio, took measurements and took a developmental history. 's measurements by the neuro were taken using special measuring instruments. There were quite a few measurments done and I did notice that they were done in cm, instead of mm. If I were you before I visted the neuro, I would call ahead and ask if the specialist bands for deformational plagiocephaly if it is significant. If you are told that the neuro doesn't band, I would look for one who does or a craniofacial specialist. As noted, many neurosurgeons are not that concerned with banding as they are used to treating

children with very serious diseases/illnesses. However, there are indeed some exceptions to that, as was the case with the specialist who treated . My daughter's initial measurement by the neuro was 1.45cm(14.5mm.) There were several others, but this reflects the asymmetry when measured around the head, with 0 being completely symmetrical. He noted that she had significant flatness on the left, back-side of her head and diagnosed her with a severe case. Her band was covered by insurance. She saw the neurosurgeon again near the completion of band treatment and was released. Hope this helps and good luck!-AmyFrom: <watsonmel3@...>Plagiocephaly Sent: Tue, July 13, 2010 1:14:23 PMSubject: Re: neuro

To my knowledge, the neuro's won't do measurements and almost all of them will deny you. At least that is what my ped told me. I think that there are some exceptions, but as a group, they are more worried about what is inside the head. We did go to a neuro and we were denied. All he did was have his PA take a history and feel my daughter's head. Then, they told me that it would probably round out some and that a band was a "grueling" therapy that wasn't worth the cost, time, or effeort. However, my ped did not send me there for an opinion on the band - she wanted to rule out cranio. After speaking with him, I called her and she gave me the referral to a cranial doctor for another opinion on the band.

Is there any way that you can check to see how frequently this neuro recommends a band? And, do you have a choice between the ones that you see?

Also, I know that Hanger requires a script, but the STARband and doc band locations don't. Is there any way that you can handle a one time travel to one of these locations to get measurements and their opinion? You could then bring this to the neuro or even have it sent to the ped to see if they will agree to write the script.

From: critter lover <tinsel2003 (DOT) com>PlagiocephalySent: Mon, July 12, 2010 3:19:00 PMSubject: neuro

I didn't get a script but I got a referral to a neuro. Can anyone tell me what will happen there? He also said it wasn't terrible and I may get denied but I will feel so much better knowing I tried and perhaps got some measurements?Kim

[Guest guest]

There's no way I can drive that far especially on a weekly basis. So Hanger is my only option as it's "only" an hour away. I haven't gotten any phone calls yet. The ped was making me the appt so I'm suppose to wait for their phone call. I have no idea who the neuro is He did mention they might not give me a script if it's not that bad. Sound slike this is not going my way after all. It's already going to take awhile to get things going :/KimFrom: <watsonmel3@...>Plagiocephaly Sent: Tue, July 13, 2010 10:14:23 AMSubject: Re: neuro

To my knowledge, the neuro's won't do measurements and almost all of them will deny you. At least that is what my ped told me. I think that there are some exceptions, but as a group, they are more worried about what is inside the head. We did go to a neuro and we were denied. All he did was have his PA take a history and feel my daughter's head. Then, they told me that it would probably round out some and that a band was a "grueling" therapy that wasn't worth the cost, time, or effeort. However, my ped did not send me there for an opinion on the band - she wanted to rule out cranio. After speaking with him, I called her and she gave me the referral to a cranial doctor for another opinion on the band.

Is there any way that you can check to see how frequently this neuro recommends a band? And, do you have a choice between the ones that you see?

Also, I know that Hanger requires a script, but the STARband and doc band locations don't. Is there any way that you can handle a one time travel to one of these locations to get measurements and their opinion? You could then bring this to the neuro or even have it sent to the ped to see if they will agree to write the script.

From: critter lover <tinsel2003 (DOT) com>PlagiocephalySent: Mon, July 12, 2010 3:19:00 PMSubject: neuro

I didn't get a script but I got a referral to a neuro. Can anyone tell me what will happen there? He also said it wasn't terrible and I may get denied but I will feel so much better knowing I tried and perhaps got some measurements?Kim

[Guest guest]

Kim,You have to do what works for your family. At least it sounds like the neuro does band. Some don't or very rarely band except in the most severe cases. I don't think the neuro who recommended banding my daughter is handing out scripts to anyone who wants them. I think he is prescribing them to babies who actually need them. Perhaps, you'll get lucky and see this same type of neurosurgeon. On the flip side, the other neuro in the same practice only bands in the most severe cases. A staff member told me that he maybe prescribed two helmets during the past year and those cases were the most severe. It just goes to show that prescribing helmet therapy can be very subjective. I'm just so thankful that we saw the other neuro, who is very educated on the subject.Some helmet providers don't

require an Rx to make an appt. It may save you some time if it takes a while to get in at the location where you would seek treatment. I did this and thank goodness I did. It took about 2 1/2 weeks to get in to see the helmet provider that provided treatment to my daughter. It saved a ton of time. saw the neuro on a Monday and the helmet provider the very next day. If I had not done this, her treatment would have been delayed by almost a month.Good luck to you.-AmyFrom: critter lover <tinsel2003@...>To:

Plagiocephaly Sent: Tue, July 13, 2010 4:02:21 PMSubject: Re: neuro

There's no way I can drive that far especially on a weekly basis. So Hanger is my only option as it's "only" an hour away. I haven't gotten any phone calls yet. The ped was making me the appt so I'm suppose to wait for their phone call. I have no idea who the neuro is He did mention they might not give me a script if it's not that bad. Sound slike this is not going my way after all. It's already going to take awhile to get things going :/KimFrom: <watsonmel3 (DOT) com>PlagiocephalySent: Tue, July 13, 2010 10:14:23 AMSubject: Re: neuro

To my knowledge, the neuro's won't do measurements and almost all of them will deny you. At least that is what my ped told me. I think that there are some exceptions, but as a group, they are more worried about what is inside the head. We did go to a neuro and we were denied. All he did was have his PA take a history and feel my daughter's head. Then, they told me that it would probably round out some and that a band was a "grueling" therapy that wasn't worth the cost, time, or effeort. However, my ped did not send me there for an opinion on the band - she wanted to rule out cranio. After speaking with him, I called her and she gave me the referral to a cranial doctor for another opinion on the band.

Is there any way that you can check to see how frequently this neuro recommends a band? And, do you have a choice between the ones that you see?

Also, I know that Hanger requires a script, but the STARband and doc band locations don't. Is there any way that you can handle a one time travel to one of these locations to get measurements and their opinion? You could then bring this to the neuro or even have it sent to the ped to see if they will agree to write the script.

From: critter lover <tinsel2003 (DOT) com>PlagiocephalySent: Mon, July 12, 2010 3:19:00 PMSubject: neuro

I didn't get a script but I got a referral to a neuro. Can anyone tell me what will happen there? He also said it wasn't terrible and I may get denied but I will feel so much better knowing I tried and perhaps got some measurements?Kim

[Guest guest]

But could you manage a one-time appointment just to get some numbers to give to the neuro. You wouldn't have to use them for the band - you could just use them to support your argument about whether the band is needed.

From: critter lover <tinsel2003@...>Plagiocephaly Sent: Tue, July 13, 2010 4:02:21 PMSubject: Re: neuro

There's no way I can drive that far especially on a weekly basis. So Hanger is my only option as it's "only" an hour away. I haven't gotten any phone calls yet. The ped was making me the appt so I'm suppose to wait for their phone call. I have no idea who the neuro is He did mention they might not give me a script if it's not that bad. Sound slike this is not going my way after all. It's already going to take awhile to get things going :/Kim

From: <watsonmel3 (DOT) com>PlagiocephalySent: Tue, July 13, 2010 10:14:23 AMSubject: Re: neuro

To my knowledge, the neuro's won't do measurements and almost all of them will deny you. At least that is what my ped told me. I think that there are some exceptions, but as a group, they are more worried about what is inside the head. We did go to a neuro and we were denied. All he did was have his PA take a history and feel my daughter's head. Then, they told me that it would probably round out some and that a band was a "grueling" therapy that wasn't worth the cost, time, or effeort. However, my ped did not send me there for an opinion on the band - she wanted to rule out cranio. After speaking with him, I called her and she gave me the referral to a cranial doctor for another opinion on the band.

Is there any way that you can check to see how frequently this neuro recommends a band? And, do you have a choice between the ones that you see?

Also, I know that Hanger requires a script, but the STARband and doc band locations don't. Is there any way that you can handle a one time travel to one of these locations to get measurements and their opinion? You could then bring this to the neuro or even have it sent to the ped to see if they will agree to write the script.

From: critter lover <tinsel2003 (DOT) com>PlagiocephalySent: Mon, July 12, 2010 3:19:00 PMSubject: neuro

I didn't get a script but I got a referral to a neuro. Can anyone tell me what will happen there? He also said it wasn't terrible and I may get denied but I will feel so much better knowing I tried and perhaps got some measurements?Kim

[Guest guest]

why are helmut prescriptions treated like gold? How can it harm the child to look.. better? Seems cruel. Still no call from anyone on my side.KimFrom: Amy McGinnis <mcg_woo@...>Plagiocephaly Sent: Tue, July 13, 2010 6:22:52 PMSubject: Re:

neuro

Kim,You have to do what works for your family. At least it sounds like the neuro does band. Some don't or very rarely band except in the most severe cases. I don't think the neuro who recommended banding my daughter is handing out scripts to anyone who wants them. I think he is prescribing them to babies who actually need them. Perhaps, you'll get lucky and see this same type of neurosurgeon. On the flip side, the other neuro in the same practice only bands in the most severe cases. A staff member told me that he maybe prescribed two helmets during the past year and those cases were the most severe. It just goes to show that prescribing helmet therapy can be very subjective. I'm just so thankful that we saw the other neuro, who is very educated on the subject.Some helmet providers don't

require an Rx to make an appt. It may save you some time if it takes a while to get in at the location where you would seek treatment. I did this and thank goodness I did. It took about 2 1/2 weeks to get in to see the helmet provider that provided treatment to my daughter. It saved a ton of time. saw the neuro on a Monday and the helmet provider the very next day. If I had not done this, her treatment would have been delayed by almost a month.Good luck to you.-AmyFrom: critter lover <tinsel2003 (DOT) com>To:

PlagiocephalySent: Tue, July 13, 2010 4:02:21 PMSubject: Re: neuro

There's no way I can drive that far especially on a weekly basis. So Hanger is my only option as it's "only" an hour away. I haven't gotten any phone calls yet. The ped was making me the appt so I'm suppose to wait for their phone call. I have no idea who the neuro is He did mention they might not give me a script if it's not that bad. Sound slike this is not going my way after all. It's already going to take awhile to get things going :/KimFrom: <watsonmel3 (DOT) com>PlagiocephalySent: Tue, July 13, 2010 10:14:23 AMSubject: Re: neuro

To my knowledge, the neuro's won't do measurements and almost all of them will deny you. At least that is what my ped told me. I think that there are some exceptions, but as a group, they are more worried about what is inside the head. We did go to a neuro and we were denied. All he did was have his PA take a history and feel my daughter's head. Then, they told me that it would probably round out some and that a band was a "grueling" therapy that wasn't worth the cost, time, or effeort. However, my ped did not send me there for an opinion on the band - she wanted to rule out cranio. After speaking with him, I called her and she gave me the referral to a cranial doctor for another opinion on the band.

Is there any way that you can check to see how frequently this neuro recommends a band? And, do you have a choice between the ones that you see?

Also, I know that Hanger requires a script, but the STARband and doc band locations don't. Is there any way that you can handle a one time travel to one of these locations to get measurements and their opinion? You could then bring this to the neuro or even have it sent to the ped to see if they will agree to write the script.

From: critter lover <tinsel2003 (DOT) com>PlagiocephalySent: Mon, July 12, 2010 3:19:00 PMSubject: neuro

I didn't get a script but I got a referral to a neuro. Can anyone tell me what will happen there? He also said it wasn't terrible and I may get denied but I will feel so much better knowing I tried and perhaps got some measurements?Kim

[Guest guest]

I guess the analogy is not to got to a devout vegetarian doctor and expect them to recommend a meat only diet to you. You just have to make sure that you are truly getting an unbiased opinion. Once your baby is past that one year mark, there is kind of that panicky feeling that you will lose your opportunity to band (at least I had that feeling). The process doesn't move along quickly enough and you have very little control over it. For younger babies, they might just have to wear the band a little bit longer. For us, it means the amount of correction that is possible. Looking back on how I handled things, I now know that I could have moved the process on a little faster than I did. Obviously, you can't move appointments up, but you can make sure that you have all of your ducks aligned before you go there. If I knew what I know now, I would not have waited for my specialist appointment before getting measurements from my band companies. And, I would

not have waited to check out insurance or the credentials of my band options.

Unfortunately, Hanger requires a script to get a consult. My thought was just that you (Kim) could speed the process along if you could manage to present to the neuro a set of measurements, a scan (starscan), or pictures (like CT does). Maybe those would even convince the pediatrician that it would be okay to write the script. I do remember hearing of a couple of cases where pediatricians had changed their minds and agreed to write the script after the parent went for the band company consultation and presented the doc with some hard evidence.

So, I wasn't really talking about getting the band from elsewhere, but was just wondering whether a one-time long trip could be instrumental in speeding up the process. Obviously, I can't answer whether or not it is doable, but if it were, I think that it would be totally worth it.

The process may seem painstakingly slow for all moms, when when your baby is past prime banding age or even much beyond that, it seems to last an eternity.

From: Amy McGinnis <mcg_woo@...>Plagiocephaly Sent: Tue, July 13, 2010 9:22:52 PMSubject: Re: neuro

Kim,You have to do what works for your family. At least it sounds like the neuro does band. Some don't or very rarely band except in the most severe cases. I don't think the neuro who recommended banding my daughter is handing out scripts to anyone who wants them. I think he is prescribing them to babies who actually need them. Perhaps, you'll get lucky and see this same type of neurosurgeon. On the flip side, the other neuro in the same practice only bands in the most severe cases. A staff member told me that he maybe prescribed two helmets during the past year and those cases were the most severe. It just goes to show that prescribing helmet therapy can be very subjective. I'm just so thankful that we saw the other neuro, who is very educated on the subject.Some helmet providers don't require an Rx to make an appt. It may save you some time if it takes a while to get in at the location where you would seek treatment. I did this and

thank goodness I did. It took about 2 1/2 weeks to get in to see the helmet provider that provided treatment to my daughter. It saved a ton of time. saw the neuro on a Monday and the helmet provider the very next day. If I had not done this, her treatment would have been delayed by almost a month.Good luck to you.-Amy

From: critter lover <tinsel2003 (DOT) com>PlagiocephalySent: Tue, July 13, 2010 4:02:21 PMSubject: Re: neuro

There's no way I can drive that far especially on a weekly basis. So Hanger is my only option as it's "only" an hour away. I haven't gotten any phone calls yet. The ped was making me the appt so I'm suppose to wait for their phone call. I have no idea who the neuro is He did mention they might not give me a script if it's not that bad. Sound slike this is not going my way after all. It's already going to take awhile to get things going :/Kim

From: <watsonmel3 (DOT) com>PlagiocephalySent: Tue, July 13, 2010 10:14:23 AMSubject: Re: neuro

To my knowledge, the neuro's won't do measurements and almost all of them will deny you. At least that is what my ped told me. I think that there are some exceptions, but as a group, they are more worried about what is inside the head. We did go to a neuro and we were denied. All he did was have his PA take a history and feel my daughter's head. Then, they told me that it would probably round out some and that a band was a "grueling" therapy that wasn't worth the cost, time, or effeort. However, my ped did not send me there for an opinion on the band - she wanted to rule out cranio. After speaking with him, I called her and she gave me the referral to a cranial doctor for another opinion on the band.

Is there any way that you can check to see how frequently this neuro recommends a band? And, do you have a choice between the ones that you see?

Also, I know that Hanger requires a script, but the STARband and doc band locations don't. Is there any way that you can handle a one time travel to one of these locations to get measurements and their opinion? You could then bring this to the neuro or even have it sent to the ped to see if they will agree to write the script.

From: critter lover <tinsel2003 (DOT) com>PlagiocephalySent: Mon, July 12, 2010 3:19:00 PMSubject: neuro

I didn't get a script but I got a referral to a neuro. Can anyone tell me what will happen there? He also said it wasn't terrible and I may get denied but I will feel so much better knowing I tried and perhaps got some measurements?Kim

[Guest guest]

, I totally agree with you. I wrote a long post about going to Seattle,

Washington for a one-time trip to get measurements and, if she can get both

appointments on the same day, also see the neuro at what looks like a really

good craniofacial team center. The StarScanner and neuro are located at the same

hospital, so that makes me think the neuro's would be pro-band, but who knows.

But alas, my post went MIA. Doh!!! Here's the info again...

StarScanner Location/Phone # (at the Seattle Children's Hospital):

4800 Sand Point Way, N.E.

Seattle, WA 98105

206-386-6100

Seattle Children's Hospital Craniofacial Center:

http://www.seattlechildrens.org/clinics-programs/craniofacial/

>

> But could you manage a one-time appointment just to get some numbers to give

to

> the neuro. You wouldn't have to use them for the band - you could just use

them

> to support your argument about whether the band is needed.

>

>

>

>

>

> ________________________________

> From: critter lover <tinsel2003@...>

> Plagiocephaly

> Sent: Tue, July 13, 2010 4:02:21 PM

> Subject: Re: neuro

>

>  

> There's no way I can drive that far especially on a weekly basis. So Hanger is

> my only option as it's " only " an hour away. I haven't gotten any phone calls

> yet. The ped was making me the appt so I'm suppose to wait for their phone

call.

> I have no idea who the neuro is   He did mention they might not give me a

> script if it's not that bad. Sound slike this is not going my way after all.

> It's already going to take awhile to get things going :/

> Kim

>

>

>

>

>

> ________________________________

> From: <watsonmel3 (DOT) com>

> Plagiocephaly

> Sent: Tue, July 13, 2010 10:14:23 AM

> Subject: Re: neuro

>

>  

> To my knowledge, the neuro's won't do measurements and almost all of them will

> deny you. At least that is what my ped told me. I think that there are some

> exceptions, but as a group, they are more worried about what is inside the

head.

> We did go to a neuro and we were denied. All he did was have his PA take a

> history and feel my daughter's head. Then, they told me that it would probably

> round out some and that a band was a " grueling " therapy that wasn't worth the

> cost, time, or effeort. However, my ped did not send me there for an opinion

on

> the band - she wanted to rule out cranio. After speaking with him, I called

her

> and she gave me the referral to a cranial doctor for another opinion on the

> band.

>

> Is there any way that you can check to see how frequently this neuro

recommends

> a band? And, do you have a choice between the ones that you see?

>

>

> Also, I know that Hanger requires a script, but the STARband and doc band

> locations don't. Is there any way that you can handle a one time travel to one

> of these locations to get measurements and their opinion? You could then bring

> this to the neuro or even have it sent to the ped to see if they will agree to

> write the script.

>

>

>

>

>

>

>

> ________________________________

> From: critter lover <tinsel2003 (DOT) com>

> Plagiocephaly

> Sent: Mon, July 12, 2010 3:19:00 PM

> Subject: neuro

>

>  

> I didn't get a script but I got a referral to a neuro. Can anyone tell me what

> will happen there? He also said it wasn't terrible and I may get denied but I

> will feel so much better knowing I tried and perhaps got some measurements?

> Kim

>

[Guest guest]

Just a note about the Seattle location, if I recall correctly from old posts,

they only do the Clarren helmet which is a passive helmet made by Orthomerica,

the same makers of the STARband. Perhaps they are doing the other bands now but

it might be worth checking out.

Molly

On Jul 15, 2010, at 7:40 AM, " stephaniebilliel " <SBilliel@...> wrote:

> , I totally agree with you. I wrote a long post about going to Seattle,

Washington for a one-time trip to get measurements and, if she can get both

appointments on the same day, also see the neuro at what looks like a really

good craniofacial team center. The StarScanner and neuro are located at the same

hospital, so that makes me think the neuro's would be pro-band, but who knows.

But alas, my post went MIA. Doh!!! Here's the info again...

>

> StarScanner Location/Phone # (at the Seattle Children's Hospital):

> 4800 Sand Point Way, N.E.

> Seattle, WA 98105

> 206-386-6100

>

> Seattle Children's Hospital Craniofacial Center:

> http://www.seattlechildrens.org/clinics-programs/craniofacial/

>

>

>

>

>>

>> But could you manage a one-time appointment just to get some numbers to give

to

>> the neuro. You wouldn't have to use them for the band - you could just use

them

>> to support your argument about whether the band is needed.

>>

>>

>>

>>

>>

>> ________________________________

>> From: critter lover <tinsel2003@...>

>> Plagiocephaly

>> Sent: Tue, July 13, 2010 4:02:21 PM

>> Subject: Re: neuro

>>

>> Â

>> There's no way I can drive that far especially on a weekly basis. So Hanger

is

>> my only option as it's " only " an hour away. I haven't gotten any phone calls

>> yet. The ped was making me the appt so I'm suppose to wait for their phone

call.

>> I have no idea who the neuro is  He did mention they might not give me a

>> script if it's not that bad. Sound slike this is not going my way after all.

>> It's already going to take awhile to get things going :/

>> Kim

>>

>>

>>

>>

>>

>> ________________________________

>> From: <watsonmel3 (DOT) com>

>> Plagiocephaly

>> Sent: Tue, July 13, 2010 10:14:23 AM

>> Subject: Re: neuro

>>

>> Â

>> To my knowledge, the neuro's won't do measurements and almost all of them

will

>> deny you. At least that is what my ped told me. I think that there are some

>> exceptions, but as a group, they are more worried about what is inside the

head.

>> We did go to a neuro and we were denied. All he did was have his PA take a

>> history and feel my daughter's head. Then, they told me that it would

probably

>> round out some and that a band was a " grueling " therapy that wasn't worth the

>> cost, time, or effeort. However, my ped did not send me there for an opinion

on

>> the band - she wanted to rule out cranio. After speaking with him, I called

her

>> and she gave me the referral to a cranial doctor for another opinion on the

>> band.

>>

>> Is there any way that you can check to see how frequently this neuro

recommends

>> a band? And, do you have a choice between the ones that you see?

>>

>>

>> Also, I know that Hanger requires a script, but the STARband and doc band

>> locations don't. Is there any way that you can handle a one time travel to

one

>> of these locations to get measurements and their opinion? You could then

bring

>> this to the neuro or even have it sent to the ped to see if they will agree

to

>> write the script.

>>

>>

>>

>>

>>

>>

>>

>> ________________________________

>> From: critter lover <tinsel2003 (DOT) com>

>> Plagiocephaly

>> Sent: Mon, July 12, 2010 3:19:00 PM

>> Subject: neuro

>>

>> Â

>> I didn't get a script but I got a referral to a neuro. Can anyone tell me

what

>> will happen there? He also said it wasn't terrible and I may get denied but I

>> will feel so much better knowing I tried and perhaps got some measurements?

>> Kim

>>

>

>

>

>

> ------------------------------------

>

> For more plagio info