Please tell me when the eating improves?

[Guest guest]

I'm so incredibly tired of this and need to vent to someone. Colin

is turning 5 in 3 months and I really thought we'd be closer to

getting rid of the g-tube than we are. It is so frustrating. Every

meal is a struggle and he just hates to eat.

After being pushed by 3 different doctors and several SLP's to

eliminate the night time feed (he gets 590ccs at night) we decided

to give it a trial run. It was not successful at all and we only

lasted 6 days and went back to our old routine. He was hiding under

the sofa at mealtime because he didn't want to eat. At least before

he would come to the table somewhat willingly.

After switching back to the old routine, we've been trying a

different approach where he is in complete control of what he eats

and as a result he pretty much doesn't eat anything. I don't know

how he has the energy to get through the day. But at least we don't

have to listen to the constant whining and complaining that was

ruining mealtime for our entire family.

Will he ever develop an appetite? He is just never hungry and

Periactin seems to do absolutely nothing.

Thanks for listening,

Colin (RSS) and Hayden - 4-3/4

Grant - 20 mo.