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Hi

I'm Deborah mum to Lilydee 9 months we live in Newcastle Upon Tyne, England.

I read a posting regarding a UK convention, can anyone tell me when and where?

Lilydee has RSS which was diagnosed at 8 months, I had a terrible pregnancy, but

was all worth it when my beautiful angel was born at 3Ib 10.5oz my heart melted

when I was given this little bundle of joy.

Lilydee is doing really well and is becoming a real livewire.

The support group has given me so much reassurance.

Thank you to all the mum and dads

Love Deborah

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