Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 I received a message from Emory Genetics that my son, , who was diagnosed with RSS last week, has normal growth hormone levels. So, now what? I have read that we can increase his caloric intake, but he simply does not have an appetite some days. I did not have a chance to call thwm back to ask questions, so they may have some suggestions. However, has VERY mild physical charastics of RSS. However, he is 2 1/2 and weighs about 21 pounds. Now, for some background- my husband is 6'4'' and weighs about 190 so he too is tall and thin. I am 5'11 and my daughter is 5 and is taller than EVERYONE in all of her dance classes and at school. I am just a bit confused. His ped. office ran me ragged with every test from Cystic Fibrosis to Renal Tubule Acidosis to try to pin point why he is not gaining weight. I just want to know if any one else has this situation, and what you all may have done in this situation. I also posted a pic under Furman so you could get a feel for my two kids. Thia was taken in February of this year... You guys are fantastic! Quote Link to comment Share on other sites More sharing options...
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