Re: Re: Help and Advice please!

[Guest guest]

ok, good! Pictures would surely help. And when you do that, you

should also send copies to Dr. Ponseti. We can take a look at his

feet and tell you if something doesn't look quite right, however we

are not doctors and Dr. Ponseti would be the one to consult on this

for a definite answer.

Walking on the side/edge of the foot may indicate a relapse. Being

that your son has obviously had Ponseti treatment if relapse has

occurred (which can and does happen occasionally) it should be

relatively easy for a Ponseti Doctor to re-cast to correct

it. Re-casting is the first step with these feet and in most cases

(nearly ALL!) it can be corrected as quick and painless as it was

initially. Then back to the FAB brace (DBB - what he wears now) and

the hours may be increased as well for a short time.

If you would like to show us pictures of his feet, please take this

series as Dr. Ponseti will want to see these kinds of pictures:

1 - from front and back (directly - not off to either side) with him

standing on a hard surface as he normally stands. View should be

from the knees down (get camera down on the floor to take pics)

2 - from each side with him standing (same position as before, just

showing right and left feet from the side)

3 - The soles of his feet

4 - Side view (profile) of each foot separately with you using your

whole palm to push his foot/toes as far up towards his head

(dorsiflexion) as possible. Keep the sole of the foot flat with your

palm. You want to show how far past " L " (0 degrees or Neutral) his

foot can dorsiflex.

5 - any video of him walking or running if you have it. (this would

be for Dr. Ponseti - the file would probably be too large to send

through yahoo)

We have an email list dedicated to sharing photos (feet and faces!)

at yahoo. http://health.groups.yahoo.com/group/CFPics/

A file will be sent to the email address you use to subscribe. In

that file is a short survey which needs to be returned. Just copy

the survey, reply to the email that included the file and paste your

answers into the body of the email. We will approve you as soon as

that survey is returned. Then, you can send an email to the list

addy, CFPics and attach your photos. Yahoo rejects

files larger than 1mb so you'll want to make sure they are resized

down to around 100-300kb each to be able to send more than one in

each email to the list. If you need photo editing software, this

program is freeware (really, really free! forever!) and quite easy to

use. www.irfanview.com is where you can download it.

Any other questions please let us know. I will be looking for your

request for membership and survey at CFPics and get you approved as

soon as possible!

Kori

At 01:46 PM 5/29/2006, you wrote:

>Hi Kori,

>My son was born in Hamilton On and was immediately put in casts. The

>casts ranged from below knee to above knee to all the way up to his

>hips. At 3 weeks old he had his achilles nicked (no stitches were

>required). At 10 months old we were told the dr. wanted to break

>both legs and reset them. My husband and I refused the surgery

>(thankfully). I contacted Dr. Ponseti and he put me in touch with

>Dr. Carey in London Ontario. After 3 castings his little feet were

>perfect and he did not require his achilles being severed. Dr. Carey

>has put in the Dennis Brown Bar since last June and is doing

>very well with it. He wears teh bar just a bedtime and he sleeps for

>12 hours a night. did physio until he started walking and at

>that point physio said he was basically doing his own therapy and

>there was no need to continue. HE does walk... with a bit of a swing

>of the legs and he does NOT bend his knees when he walks. He also

>cannot jump. He does wear orthotics in his hightops to keep his toes

>from turning in. Woudl pics of his feet help? If so where do I send

>them too?

>I hope this helps,

>

>

>

>

> > >Hi there, my little guy was born with bilateral clubfeet and is

>now

> > >2.5 years old. He just started walking 7 months ago and does not

>run

> > >and cannot jump. Is this normal with clubfoot kiddies? We only

>buy

> > >him Nike hightops because they have the best support and yesterday

>I

> > >thought I would try sandals on him, it was not very good. His

>little

> > >ankles just turned right over when he would walk.

> > >Also, the kids were playing in teh sprinkler and when -

>would

> > >walk on teh sidewalk his right foot would leave a full foot printa

>nd

> > >the left would only leave a print of teh side of his foot. Is this

> > >normal or should I be concerned?

> > >

> > >Sorry for all of the rambling!

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >