talk w/Tim's endo on Lupron/Arimidex/bone age/diabetes

[Guest guest]

Tim's endo got back to me today. I hope I get this all right, but this I

believe is the gist of what he said:

Studies have shown that after a year of using Arimidex that there was no

difference in predicted height. Boys make a little of their own estrogen

but most is converted from testosterone. The Lupron decreases the

estrogen. The bone age increases more rapidly with more estrogen, so the

Lupron should help the bone age to reach maturation more slowly, which

would be age 18. Tim's bone age is 2 years ahead (12yrs instead of his

chronological age of 10 yrs). So he increased his Lupron doseage.

The treatment of bone age with Lupron and not with Arimidex was started by

Dr. Geffner from LA, who also presented at the MAGIC conference and was

recommended to me by MAGIC a few years ago, so I guess there are different

opinions about its use by good endos. I hope they do get this right

though. I suppose with a bone age 2 years ahead of his age, since our endo

said he would stop growing at a bone age of 18, he would only have until

he's 16 - unless they can slow it WAY down to be progressing LESS than his

chrono age - but I don't have any idea if the side effects of Lupron would

be worth such a slowing!

The symptoms of diabetes are a lot of drinking and peeing, which Tim

doesn't have, so I don't think his weight gain comes from that. I'm

thinking that maybe he just got in a bit more of an oral eating habit over

the summer in addition to his gtube. For awhile, I subtracted his oral

calories from his tube feedings, but I hadn't done this for a while...

Inga