Re: Questions regarding tubes - Deb

[Guest guest]

I'm going to need a suitcase just for all my information that I want

to take to the apt!

Dawna

> Dawna

> Adam never had a tube. But then again we didn't even know there was

anything

> 'wrong " with him until he was two. He ate frequently and a bit at a

time,

> but I always felt he had a good appetite. In fact Dr. H. didn't

even mention

> putting weight on him when she saw him. I think that's pretty good

for his

> height. But I do know that my endo. told me he would not give us

periactin.

> You may have better luck. Better find out all the big pharmacy

names for the

> drugs before you go. I don't think our drug names always match

those in the

> US.

>

> Deb

>

> Questions regarding tubes

>

>

> > Hi all,

> > I have a few questions about feeding tubes. It seems that most of

> > the kids have them. Can you tell me at what point they seem to

need

> > them? Our Ped wasn't following Noah that closely (will be now and

> > I'm considering changing ... took me 3 mos to get the chomosome 7

> > results that I'm sure were sitting there that long).

> >

> > Noah has never been sick and in hospital, he seems to eat but it's

> > not much at a time, I'm getting really worried that we aren't

doing

> > enough except at the same time I'm worried that he will need a

tube.

> > Do you know what I mean? We were worried lately about

hypoglycemia

> > he's always been a sweaty little guy (but then my others are too)

and

> > lately he started waking in the night ... we've been giving him

milk

> > not knowing if it was his sugars or if it was just behavoural.

Also

> > since finding more info about RSS from here and Magic, I started

> > putting a little corn starch in his milk before bed.

> >

> > I'm hoping the endocrinologist will shed some light next week

when we

> > go cause we don't see the ped until november. I'm also going to

ask

> > about that drug that starts with P for appetite. Sorry not up on

all

> > the names yet. I'm going to see if he'll check Noah's sugar when

he

> > does the other testing. We haven't been to the ped since the

spring

> > so I don't even know if NOah has gained weight or not.

> >

> > Do the kids eat too when they have tubes?

> >

> > Dawna

> >

> >

> >

> >

> >

> >

> >