Re: GH Article - Never apologize - keep researching!

[Guest guest]

- Never apologize!!!! The only reason we RSS/SGA parents

get any information is because parents like you are searching for

it. So never apologize. We all have to keep digging and digging,

and msot of what we find will end up not applying to our kids, and

every so often, we find a nugget of gold. So keep up what you are

doing!

S.

> Okay everyone - sounds like I got everyone excited about something

I

> shouldn't have - the growth hormone article. My apologies.

>

> I will say, however, that in my opinion - it shows an

understanding

> with the FDA that there are children out there who desperately

need

> growth hormone - whether or not it works for them (we still need

to

> try it) and that once approvals begin - there will hopefully be a

> shift in the view of short-statured children and their need to

> obtain what is an acceptable height in society. I guess what I'm

> saying is that every little bit of good news helps - whether or

not

> it has to do with our children. It reminds me of IVF. IVF was

not

> accepted by many insurances for many many years and the majority

of

> insurances still have a hard time accepting IVF as a means to

allow

> those who are otherwise unable to have children. However, IVF is

> covered by some insurances and it has helped many such as myself.

> Everytime I read something about IVF in the news - I felt it was

> always in a positive direction because it got the " news " out there

> to many people. So, let's hope that this article, being in the

Wall

> Street Journal, gets people to see that short-statured children

are

> out there and that it's important we do " something " about it.

>

> So, I guess my next goal is to get an article written myself so

that

> I can spread the word about RSS ?? We'll see. We'll see.

>

> Sorry though if I got everyone excited about the GH article. It

was

> not my intentions to dissappoint anyone.

>

> - (H)