Many concerns-told today that son's foot may not be fully corrected

July 11, 2006

My son, , has been under the care of Dr Scher at HSS in NYC.

He is now 9 months old and we have been told that there is a

secondary component to his club foot--that it is atypical. The top

of his foot, 2nd through 5 toes, up to his knee are not working

together with the rest of the foot. I will provide as much

background as possible and IF anyone can give us advice that would

be greatly appreciated. Our son, is Twin B... his Twin has no

medical issues. He was diagnosed with clubfoot prenatally upon which

we researched the Ponseti Method and decided to go with Dr Scher.

spent two weeks in the NICU upon birth for other medical

issues and was first casted at 4 weeks. Casting went well...he did

all the right protocol 24/7 shoes and bars. About 3 months ago the

dr. mentioned that his foot seemed atypical... he was tested by MRI

for a tethered spine and it came back negative.He assigned 16 hours

in the shoes and bars (), 4 hours in an AF0, and the other

hours out of them all.He also suggested that we start looking into

PT. At our last visit, 5 weeks ago... he mentioned that his gait may

not ever be normal and that he has 4 other cases that are similar to

's and that the child may need long term bracing and will not

walk properly.He also mentioned future casting may be needed. We

are scheduled to return for a " checkup " next week... and I have no

idea where to go from here. Do we look into talking to Dr. Ponseti,

do we look into a neurologist (he already saw one to rule out the

tethered spine), are we doing all we can do? If anyone has any

ideas/experiences to share please help.

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