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Madison update 10/18

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Today Madison hasn't complained of any pain and had not vomited however her

sugar was good through the night in the 140s but at 9am when she woke up it

was 79. Thats the time I disconnect her from the TPN. I still am unable to get

her to eat. I can't understand if she's getting that much sugar why is it

still dropping? Most children and adults who are on an IV for low blood sugar

get 5% or 10% dextrose. Maddy is on 20.23%. UGHHH so frustrating. Last night

Dr. H sent me an email and told me to check her sugars through the night and

email them to her in the morning so I did. I guess we will see what she

things. From the emails she sent me yesterday the philly docs agree with her

that

NY is the best place for the surgery we just can't seem to get Dr. Spigland on

board. Meanwhile Maddy struggles everyday without eating without drinking

having belly pain and lythargic from her sugars.

Keep ya posted.

Chrissy

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