Guest guest Posted September 10, 2005 Report Share Posted September 10, 2005 At the convention Dr H. recommended that we stop Pippins daytime tube feeds. Which we did immediately J She goes to feeding therapy every 2 weeks, so I've been using that scale to watch her weight. At the first 2-week weight check she was down 9oz.L At the second check she hadn't lost or gained-and she had an ear infection, on antibiotic etc. Her most recent check in on Wednesday and she's up 5oz. I'm so proud of her. She really is trying to eat and be a big girl. We've -->She's come so far! It really does get easier. I just a few years ago thought my world was crashing down but look how far we've come! Our next stop on this crazy road is in NY on Oct 24 for Pippin's first " real " Dr H appt and then GH. Thank you to everybody on this site for all your help and advice. Team Lapish Dan, Jenyfer, Tully (my big Kindergarten girl), Pippin (RSS almost 3), and Ryker (the big lug) Quote Link to comment Share on other sites More sharing options...
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