is

[Guest guest]

Hi! I just want to introduce my son to this group. He was born

premature at 28 weeks and weighted less than 2 pounds. I had too

many complications during pregnancy including oligohydramnio and

placenta abruption but despite all these complications, he was born

relatively healthy, breathing by himself, etc. He stayed 68 days in

NICU until we reached almost 5 pounds, but after that, he has been

very healthy. He will be 4yrs old by the end of October but he is

little, he is 22 pounds and 35 inches tall. Although he doesn't

have any feeding problems, and he eats a lot, he doesn't gain much

weight. I think he has been around the same weight for months.

Last year he was diagnosed with SGA (Small for Gestational Age) and

was supposed to start the GH therapy but our health insurance said

that the therapy was not approved for SGA and we were unable to do

it by ourselves been so expensive. The doctor said we can wait a

little longer. We went to different doctors looking for guidance

and help and recently he has been diagnosed with RSS. Now that the

diagnose changed I hope that we can start with the therapy. He

started school this year and he is very smart, he has been saying

things like " I am tall " and now I am concern about his self esteem.

I really hope I can manage that. I already contacted a psychologist

for orientation.

I found this web site looking for information about RSS and it is

good to know that we are not alone and that we can share some of our

concerns with other people. For now, I don't have too much

information about what is going to happen and how we are going to

manage this but at least I know a place where I can go for

information and support.