Seeking encouragement

[Guest guest]

Hi. My name is and my son Caleb is 8 months old who was born

with bilateral club feet--my gift to him. I too had bilateral club

feet but I had to go through so many surgeries until I was 7 years

old. Caleb, is actually seeing the same doctor I had when I was a

child. I think that's kind of neat. Anyway, when Caleb was 6 days

old, the Ponsetti treatment began with weeks of castings. He then

had the tetonomy (not sure how to spell it)the minor surgery of

lengthening the heel cord. He had casts one more month after that.

Then at 3 months old he got his first pair of the Denison Brown

orthopaedic brace shoes. They are such a pain!!! Well, he's had

those for 5 months now. Wearing them day and night. And his heels

are still up too high. When he stands up, they look normal. But

when he's not bearing weight on them, they are up too high. So, his

doctor says he needs to have a second tetonomy. But since Caleb is

8 months old, his doctor can't do it in the office. It has to be

done at a hospital. And with insurance reasons, blah blah blah, his

doctor can't so we're meeting a new doctor in July who apparently

will do the second tetonomy. I'm just so discouraged. I just want

this all to be over with. Caleb slips out of his shoes 5 times a

day and wakes up in the morning with at least one off. He was

sleeping through the night, but not recently. I blame the shoes,

because with one on and one off, the bar twists his poor foot and he

wakes up screaming. Sorry for rambling on. I'm just seeking some

encouragement. I know Caleb will be able to walk and run. I don't

doubt that. I;m nervous about the second tetonomy and going back

into casts after he's been out of them for 5 months now. Any

advice? Thanks