Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Hope you have a good week and that your appointment goes well. We'll be waiting to hear from you. Thanks for letting me know about the dh! My husband used to think that lol meant lots of love and was getting quite confused. Dawna > > > > > > I wasn't sure if this was a chat or not - so, if I've failed to > > post > > > this properly - my apologies! > > > > > > I wanted to share something positive with my whole experience > with > > > Ian - something that may be able to benefit others in our > efforts > > to > > > teach our physicians about RSS. > > > > > > When I was in the emergency room - I had brought my files with > me - > > > of which I have a complete set for Dr. H at home for our > > appointment > > > on Thursday - and in these files are all of Ian's medical > records. > > > But, more importantly, I had brought a few things that I had > pulled > > > off the MAGIC website that I immediately shared with the ER > docs, > > > Nurses, Pediatric Unit physician and Ped Nurses. I couldn't > > beleive > > > the overwhelming response I recieved. All of the individuals I > > > shared this information with were actually VERY happy that I > shared > > > it with them. They ALL said that it helped them to understand > RSS > > > and help them to take care of his needs while he was there. As > a > > > matter of fact, EVERY person I shared it with told me after the > > fact > > > that they " looked up MAGIC " on the internet and read even more. > > > They all came to see Ian in his room - just so they could get > > > a " better look " at him and learn more about his condition. > These > > > are physicians! These are Nurses! I was so happy. The staff > at > > > this hospital really wanted to learn about RSS and were so > willing > > > to be " directed " with Ian's care as opposed to only telling me > what > > > to do. It was the best experience at a hospital I have ever > had. > > > (I even had a future job offer by one of the VP's! - LOL another > > > story) But, I'm sharing this to let you know - that not every > > > physician or nurse out there will be as willing to learn - but, > > it's > > > always worth a try to give them the option. By bringing with me > > > Jodie Zwain's e-mail on Saturday, info from MAGIC - it also made > > > them realize that I'm serious about my son's healthcare and want > > > them to be just as serious. I was treated like a Queen and Ian > was > > > treated like a Prince. I reminded everyone there that RSS just > > > isn't about " being short " - there are so many other things we > must > > > be in tune with and they all agreed. I think I even made my > > > Pediatrician realize (after seeing his blood sugar at 48) was > that > > > maybe her other RSS patients (if there really are any in her > > > practice - she sais there are) are not being monitored the way > they > > > should?? Who knows. But, I think I made an impression. > > > > > > Just a little something positive to remind us that during all > these > > > stressful and difficult times - there is some positive out there. > > > > > > My best to all of those who are dealing with difficult times > right > > > now. I'm there with you and in your thoughts. > > > > > > - Hugs. > > > > > > - H > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2005 Report Share Posted October 31, 2005 You guys drive????? Oh please. You need exercise, exercise is good!! Mind you I ended up in the car, but that's when I lost Adam and it was either that or call 9-1-1. Life is never easy for me. I stopped to talk to a neighbour. I think I said 5 words and I turned and he was gone. I assumed he went right (as we had already been to the left). Called and hollered and looked for him for 10 minutes, started to panic, got in the car and drove around. Meanwhile I had all the parents out looking for him!!! He went left when I thought he would go right! I was so upset I didn't even yell. Oh sure, and his father thought he could go out alone!!! Well that's it for me, that was his last year (as I mentioned before I thought LAST year should have been the last). UGH UGH UGH. Debs More good news > > > > > > More relief! We finally got an appointment with the new > ped!!!!! Life > > at the moment is pretty darn good. > > > > Had to share! )))) perma grins > > Dawna > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 Oh ba ha ha I guess my email isn't doing that great yet!! LOL LOL LOL Did you get a load of the date ON YOUR ORIGINAL EMAIL?? It's from October 17th and I just got it now. BA HA HA BA BA laughing myself silly here! " Never Mind " Deb Chat - Deb > Deb - is your e-mail working yet? Just curious. > > - H > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 Deb - LOL - now that's weird!!! Nice to hear you laughing again! LOL - H > > Oh ba ha ha > I guess my email isn't doing that great yet!! LOL LOL LOL > Did you get a load of the date ON YOUR ORIGINAL EMAIL?? > It's from October 17th and I just got it now. > > BA HA HA BA BA laughing myself silly here! > > " Never Mind " > > Deb > > Chat - Deb > > > > Deb - is your e-mail working yet? Just curious. > > > > - H > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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