Problems linked w/CF?

[Guest guest]

I found this online looking at another post. NOW I AM

REALLY CONCERNED! Lilee has a good hair patch on her lower back where her spine

meets her butt. We have always thought it was kinda cute, but it has been a

curiosity to me always. I myself have minor scoliosis. So hereditary, she may

have it. Do any other kids here have scoliosis also along with CF? How did you

know? Do they have the hair patch? I have always thought her CF leg was longer

than the other. This may explain that? I am going to call her ped. Dr. tomorrow

and set up an appt. Any feedback GREATLY appreciated! Q: Are there any

signs that parents might look for? A: There may be signs such as a rib hump or

a small " bump " on the back. There may be foot problems, such as a clubfoot,

which could be a tip off. Quite commonly, one will find a hair patch somewhere

along the spine. If you notice any of these signs, take your child to a

scoliosis specialist immediately. Reprinted

by permission of

The National Scoliosis Foundation

72 Mt. Auburn Street

Watertown, MA 02172

TEF/Vater® International

is a nonprofit organization founded by Greg and Terri Burke after their

daughter, Jaclyn, was born with esophageal atresia in 1990. To those children,

born and unborn, with esophageal atresia, tracheo-esophageal fistula, and/or the

VATER/VACTERL Association, and to the very special parents and medical staff who

love and care for them, this organization is dedicated

phone | fax | email info@...

Christee

Mother of...

*Josh (9)~Learning/Speech Delays

**Aspen (6)~ Bilateral Metatarsus Adductus

***Dylan (4)~PTSD/Anxiety

****Lilee (10 months)~A-Typical ®

*P/M Brace 10/24 by request of Dr. P

*Special tongue pads f/ due to chubbyness of foot

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