Re: Help and Advice please!

[Guest guest]

Hi ,

Welcome!!

Please do not think you are rambling, your concerns are very

valid. This is why we're here and we would love to hear more about

your amazing son! Can you tell us more about his treatment thus

far? How was he treated initially and what kind of bracing does he

use right now? Where are you located and what physician does he see

for his clubfoot? Has he had any surgery on his feet? If so, can you

describe it for us?

sorry for all the questions, but we need to know these things before

we can help you troubleshoot this properly. Please be as detailed as

possible, describe the casts and duration of casting (how many casts,

what did they look like, how often changed, etc.), any surgeries (was

it a simple percutaneous tenotomy which is a quick tiny nick to the

Achilles tendon that does not need stitches or was there more

involvement?), what kind of bracing and how long/often does he wear

it, and anything else that comes to mind. Don't worry about length

of your post, just tell us everything you can k?

Enjoy that warm weather... it's raining here, as usual :~}

Kori

Darbi's Mama

Rt. CF - FAB 10-12hr/d

At 01:11 PM 5/29/2006, you wrote:

>Hi there, my little guy was born with bilateral clubfeet and is now

>2.5 years old. He just started walking 7 months ago and does not run

>and cannot jump. Is this normal with clubfoot kiddies? We only buy

>him Nike hightops because they have the best support and yesterday I

>thought I would try sandals on him, it was not very good. His little

>ankles just turned right over when he would walk.

>Also, the kids were playing in teh sprinkler and when - would

>walk on teh sidewalk his right foot would leave a full foot printa nd

>the left would only leave a print of teh side of his foot. Is this

>normal or should I be concerned?

>

>Sorry for all of the rambling!

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Kori,

My son was born in Hamilton On and was immediately put in casts. The

casts ranged from below knee to above knee to all the way up to his

hips. At 3 weeks old he had his achilles nicked (no stitches were

required). At 10 months old we were told the dr. wanted to break

both legs and reset them. My husband and I refused the surgery

(thankfully). I contacted Dr. Ponseti and he put me in touch with

Dr. Carey in London Ontario. After 3 castings his little feet were

perfect and he did not require his achilles being severed. Dr. Carey

has put in the Dennis Brown Bar since last June and is doing

very well with it. He wears teh bar just a bedtime and he sleeps for

12 hours a night. did physio until he started walking and at

that point physio said he was basically doing his own therapy and

there was no need to continue. HE does walk... with a bit of a swing

of the legs and he does NOT bend his knees when he walks. He also

cannot jump. He does wear orthotics in his hightops to keep his toes

from turning in. Woudl pics of his feet help? If so where do I send

them too?

I hope this helps,

> >Hi there, my little guy was born with bilateral clubfeet and is

now

> >2.5 years old. He just started walking 7 months ago and does not

run

> >and cannot jump. Is this normal with clubfoot kiddies? We only

buy

> >him Nike hightops because they have the best support and yesterday

I

> >thought I would try sandals on him, it was not very good. His

little

> >ankles just turned right over when he would walk.

> >Also, the kids were playing in teh sprinkler and when -

would

> >walk on teh sidewalk his right foot would leave a full foot printa

nd

> >the left would only leave a print of teh side of his foot. Is this

> >normal or should I be concerned?

> >

> >Sorry for all of the rambling!

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi ,

My 3 1/2 year old without clubfeet still cannot jump

properly so I wouldn't worry about that at 2 1/2 years

old.

I can't remember exactly but I don't think he ran

properly at 2 1/2 years old either (he learned to walk

at 17 months).

I'm not quite sure what you mean by your son's ankles

turning over so I can't comment on that.

But what you said about his foot print sounds like he

might be walking on the side of his foot. Is he doing

that all the time? I think I would be concerned if he

was since it could be a sign that the foot is not

properly corrected. I'm no expert on this though.

Have you considered getting a second opinion?

with (3.5y)

and Alister (3.5y, right CF, Ponseti method, UK)

--- johnsmommy7 wrote:

> Hi there, my little guy was born with bilateral

> clubfeet and is now

> 2.5 years old. He just started walking 7 months ago

> and does not run

> and cannot jump. Is this normal with clubfoot

> kiddies? We only buy

> him Nike hightops because they have the best support

> and yesterday I

> thought I would try sandals on him, it was not very

> good. His little

> ankles just turned right over when he would walk.

> Also, the kids were playing in teh sprinkler and

> when - would

> walk on teh sidewalk his right foot would leave a

> full foot printa nd

> the left would only leave a print of teh side of his

> foot. Is this

> normal or should I be concerned?

>

> Sorry for all of the rambling!

>

>

>

>

>

>

>

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