Re: Gretchen, tell your mom...

March 30, 2006

Be sure to keep telling your mom this. I think my mom feels badly too

whenever I talk about Sammy's treatment (although she never says

anything). I have told her several times that this method was just

not really recognized in the 60's & 70's, people would have been VERY

lucky indeed to have known about the Ponseti method and treated with

it outside of U of I. The big thing in those days was the PMR as it

was just being pioneered by Dr. Turco at the time. Heck, it's only

just in the last 5 years that the P method has become what you could

consider " mainstream " . More doctors are getting trained in the method

all the time, it's just a matter of finding the ones who are doing it

correctly, without tweaking it, and who have enough experience to

really know what they are doing. I have to laugh at my Ortho now, he

said my foot looks " really good " for a clubfoot. I said it doesn't

feel really good and he should see my son's foot if he wants to see

what really good REALLY looks like!

> >

> > Gretchen,

> > I don't have a lot of details myself, but here's what I've pieced

> > together from my mom and my knowledge now. I had both long leg

> casts

> > and below the knee casts. I do know I had the achilles tendon

> > lengthening (same type of long incision up the back of my heel and

> > part way up my calf), a posteriomedial release as well as some other

> > tendon transfers on the top of my foot, including an ATTT (anterior

> > tibial tendon transfer). I also wore a DBB for some time and the

> knee

> > high to ankle brace (like Forrest's I wore mine during the day

> > around age 4-6). I have a high arch and my metatarsals are at a

> > higher angle than most due to the cavus not being corrected

> properly.

> > I never had any bone surgeries but there are several adults I know

> > through these groups who did.

> > Hope this helps, let me know if you have any other questions. I

> don't

> > mind a bit.

> >

>

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