Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 Hey in Ohio, Try calling that number 19194791471 then push 4403 or just 0.. I have reached Barbara both ways.. Barbara was out sick today though, she was not feeling well so that may be why you could not reach her.. Good luck, in Ga Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2000 Report Share Posted November 10, 2000 so sorry angela I hope he gets what he needs and you can have it as soon as possible. hugs marg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2000 Report Share Posted November 10, 2000 Well you and I seem to be in the same boat ....but at least you finally heard something. I have to get another PCP do the paper work right because mine left town all of a sudden....isnt that just great??? Robin At 01:01 PM 11/10/00 -0000, you wrote: >Well, I just received an email from Dr. R. saying that I have been >rejected. I was rejected because he needs further medical information. >I'm dealing with it...but I am very very disappointed! > >Tired of Being Obese in Ohio > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 I wish that we had started out this way, but since day one for Piper, it was on a spoon, forced into her mouth, so she has developed a very negative association with a spoon, and therefor getting her to take her enzymes has been a daily challenge. I am about ready to throw in the towel!!!! Katy losterloh2 wrote: My daughter is on Ultrase, she is almost 15 months, we dip our finger in applesauce or milk and then into the beads and put them in her mouth on her tongue. I usually follow this with something to drink or eat. We've been doing it since day 1, it was the way they told us to do it with breastfeeding. Sometimes she'll take them on a spoon if I put them in something she really likes and give her a bite first without any enzymes. I also try to distract her so she doesn't see me open the capsules and dump them out. Good luck, hope this helps! Mom to Ellie 14mo wCF and Jack 3 yrs no CF HELP! I am open for ANY AND ALL suggestions, tips, advice, etc on getting my daughters enzymes in her. She is 18 months, and her doc just recently changed her from Creon 10 (which we could just put through her button) to Ultrase MT-12 (which will not go through her button). When I mix them with ANYTHING, she pushes the beads out with her tongue. I am about ready to pull my hair out, HELP!!!!!!!!!! Katy Mom to Austin 4 no CF & Piper 18 months w/CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 Very thick milkshake in favorite flavor? Love, n HELP! I am open for ANY AND ALL suggestions, tips, advice, etc on getting my daughters enzymes in her. She is 18 months, and her doc just recently changed her from Creon 10 (which we could just put through her button) to Ultrase MT-12 (which will not go through her button). When I mix them with ANYTHING, she pushes the beads out with her tongue. I am about ready to pull my hair out, HELP!!!!!!!!!! Katy Mom to Austin 4 no CF & Piper 18 months w/CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 Katy, Don't know anything about those tubes. My daughter has been swallowing them since 3 weeks old. We started with apple puree and mixing the beads in. Then when she was about 4 we opened the capsules and tipped them in with a drink to swallow. Then when they switched her to Creon (1/2 the size of pancrease) she just threw them in her mouth. What about pure and simple bribery. Is there some special lollies or chocolate she could have only when she has her enzymes? Sorry if not much help. Good luck. (Australia) HELP! I am open for ANY AND ALL suggestions, tips, advice, etc on getting my daughters enzymes in her. She is 18 months, and her doc just recently changed her from Creon 10 (which we could just put through her button) to Ultrase MT-12 (which will not go through her button). When I mix them with ANYTHING, she pushes the beads out with her tongue. I am about ready to pull my hair out, HELP!!!!!!!!!! Katy Mom to Austin 4 no CF & Piper 18 months w/CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 Katy, let her have a taste of whatever it is you are about to feed her, then say " no more until you take your enzymes " . She will learn that you are not kidding if you put the food away if she refuses (ok I gave several chances). This is how we had to do it with . Right now she is controlling things and you have to get the control back. I know it stinks but she has to learn. you can get the viokase powdered enzymes for tube feeds it will go through the button, but do not use it for regular food and drinks, only for tube feeds. (it will help you to not feel bad about not giving her the food if you can hook her up to a tube feed, but she will learn that if it goes in her mouth, she must have enzymes) We were advised not to give any enzymes or meds through the tube and then feed her so she wouldn't rely on the tube for the yucky meds and stuff, because it would cause a problem when we take the tube out and she has to take them orally. The only med that we put through the tube is the vitamin K because I " melt " it in hot water and send it through her tube in the middle of a feed. I do that because the " crush it up and put it in the food " method wasn't working because she wouldn't eat all the food and then she wasn't getting all the vitamin....... Good luck, I know how hard it is to fight with them to take their enzymes, I hope that since Piper is older than was when we had to fight that she learns faster than did. mom of 5 with CF and one on the way HELP! I am open for ANY AND ALL suggestions, tips, advice, etc on getting my daughters enzymes in her. She is 18 months, and her doc just recently changed her from Creon 10 (which we could just put through her button) to Ultrase MT-12 (which will not go through her button). When I mix them with ANYTHING, she pushes the beads out with her tongue. I am about ready to pull my hair out, HELP!!!!!!!!!! Katy Mom to Austin 4 no CF & Piper 18 months w/CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 My daughter, Abbey 8 weeks old RCF, is already in the bar and shoes. She has the white leather sandle like shoes that lace up. I cannot get her RCF heel to stay down properly in the shoe. I have tried different socks, adjusting the shoe, etc. Any ideas? I don't want her foot to revert back to what it was or point downward to cause another problem later on. Any advice would be great! Kate Quote Link to comment Share on other sites More sharing options...
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