Fw: New peptide research

[Guest guest]

>I am forwarding this e-mail I recieved from someone who is very involved

and knowledgeable about autism issue. She has her own foundation and speaks

at autism conferences about the gfcf diet and ABA. I thought it very

interesting and decided to pass it onto you.

By the was, Dr. Shaw has just released a new 2nd edition to his book

" Biological Treatments for Autism and PDD " and it is available on the Great

Plains Website at www.gpl4u.com. It is so full of great information and is

useful as a resource guide of all the different therapies and treatments

that have worked for our children. Great chapters on vaccines, immune

deficiencies, digestive system, heavy metals, and inborn errors of

metabolism. Of course there is the updated information on antiobiotics,

yeast, microorganisms in the intestinal tract which is the place where his

research started. This book is a MUST HAVE even if you have the original

copy. It also is a great book to buy for your doctor, to help him/her know

how to help treat your child. His first book was the first thing I read

when I had just found out that my 2 year old son was autistic, and it lit a

fire under me to get going on diet, anti-fungal treatments etc. IHe is

almost completely recovered today as a result. I am so thankful to Dr. Shaw

for this book and there is nothing as inclusive and comprehensive like it on

the market.

Dear Parents,

>

> Hi! Sorry I've been so out of touch. I've been dealing with my son's

> serious gastrointestinal problem and that has been a priority over my

> advocacy work. But … I haven't been idle. I've been participating in a

> research project and gathering information, some of which I want to share

> with you now.

>

> First, there is new information on the horizon regarding the high peptide

> issues with our kids. Because of my close physical proximity to Great

> Plains Laboratory (10 minute drive), I have access to Dr. Shaw on

an

> ongoing basis. Because of this, Dr. Shaw is readily accessible to me and

>this allows me pass on his wisdom to you when I'm presented with questions

I do

>not have the expertise to answer.

>

> One of the issues that has continued to creep up over the last several

> months is the concern of the accuracy of Great Plains Laboratory's peptide

test.

> The reason for the concern has been the peptide test showing children with

> high peptides even while on a strict casein and gluten free diet. My

child

> is one of these children. The tendency to jump to the conclusion the test

> as inaccurate is understandable but one would be remiss to look at what

> information those high peptide results actually provide us.

>

> Those high levels, even with the strict removal of casein and gluten,

means

> there is still a peptide problem in our kids despite our efforts to remove

> these specific problem foods. Perhaps this is why some children benefit

> from the diet to the point of recovery and others, like my son, do not.

The

> million-dollar question is what is causing these additional peptides and

is

> there a physical phenomenon going on where perhaps other foods or an

> internal response is causing a replication of the peptides?

>

> At the same time I had my son's peptides tested again, I ran mine and a

> friend ran his. The results were my son's peptides were high for both

> casein and gluten (on a strict c-g/f diet), my casein was high but my

gluten was

> normal and my friend's peptides were both normal. This indicated to me

> accuracy in the testing process. This also confirms the continual peptide

> problem in many of our kids (albeit improved) even on a strict

casein/gluten

> free diet. And this, of course, does not necessarily negate the need to

> remain on the casein and gluten free diet.

>

> After discussing these results with Dr. Shaw, he has suspected for some

time

> the body was producing other peptides or other foods were producing these

> results and was very interested in finding out what sources might be the

> problem foods or chemical reaction in the body might be duplicating these

> peptides. This could possibly be another source for recovery, if

identified

> and a treatment is available or could be manufactured, for at least a

subset

> of this population.

>

> Because of my casein problem, I volunteered and carried out a variety of

> diet restrictions over the summer to see if we might be able to pinpoint

at least

> one suspected source for the high levels of peptides, that source being

soy.

> We suspected the addition of soy protein would increase my casein peptide

> levels.

>

> I gave daily urine samples throughout this process and I was absolutely

> strict regarding the diet resulting in my having to cook almost everything

I

> ate. This (dieters take note) also resulted in a four pound weight loss

in

> the first two weeks even though I was at my ideal weight and consuming

more

> food as a result of craving sweets, my only noticeable symptom on the

> following diet. I removed casein and all soy oil and soy protein foods,

then

> when my casein peptide plateaued in the normal range, I then added in soy

> oil only. Considering the fact soy oil has no soy protein, we did not

expect

> any changes in the peptide levels.

>

> Without going into too many details, the bottom line is this: While off

> casein, soy oil and soy protein, my casein peptide levels normalized.

When

> soy oil only (a main ingredient in most commercial snacks and the oil of

> choice used in deep-frying) was added back into my diet, my gluten

peptides

> (previously normal) went up! This was very surprising! Soy oil may be

only

> one of many sources for the high peptide phenomenon. What do parents

switch

> to when they remove casein and gluten? The answer is rice and soy.

>

> My diet continued on to measure other things I won't go into now, but the

> point is, needless to say, this needs to be studied. Dr. Shaw, as always,

is

> making preparations to utilize the results of this preliminary information

> to research this continued peptide problem. Ongoing research and

continued

> improvements in testing is where your dollars are going when you patronize

> GPL and I hope you will keep this in mind when choosing laboratories to

run

> your tests. And remember most of all, there is always hope for the

future.

>

> >

> Sincerely,

>

> Bowers, Executive Director

> ARMED (Autism Recovery through Medicine, Education & Diet)

> 8601Redbud Lane

> Lenexa, Kansas 66220

>

> www.Rx4autism.org

>

> " I must do something! " is always more powerful than " Something must be

> done! "

>

> " The more difficult the journey, the greater the depth of purification "

> - from 7 days in Tibet

>

>