's Mom.....Thank you all for your support!

[Guest guest]

I just want to say thank you to everyone who has answered my post.

All of you have made me feel more at ease. I am so grateful to have

found such a wonderful place to find answers and help during this

stressful time. It also comforting to know that I am not alone.

The Drs have not reached an official diagnosis to date and we are in

the waiting game. Waiting to see the " scale " each week. My gut

instincts tell me that he does have RSS. is

still not eating enough so I am preparing myself for the feeding

tube. We are almost welcoming it because it did work for him when

he was hospitalize at one month old. He managed to gain weight.

I do have one question that I hope someone may be able to answer.

When I asked our peditrian " Do you think has RSS? " his reply

was " I think he has some kind of syndrome. " This has been driving me

crazy since yesterday. I have been researching the net and have not

been able to track anything down.

So my question is are there any similiar syndromes to RSS that he

may be refering to?

Thank you so much for sharing your stories! :-)

You are all in my thoughts and I wish everyone the best.

Ps. The Magic Foundation website is wonderful.

-

" 's Mom "

(Drs leaning toward RSS diagnosis but not official yet.)

Baltimore, MD