Re: Can I cut off circulation?

[Guest guest]

Hi ,

has been in the s for about 6 weeks and although her

feet are not fat, her legs/ankles are very fat. She weighed 17

pounds, 5 ounces at 4 months so yes, she is a big girl! Anyway, I

tighten up the straps as much as I can and although it displaces the

fat (a temporary thing just due to the shoes) and pushes it all up

above the ankle, I have not gotten the impression that her

circulation is compromised at all. Hers are so tight that I can see

the marks of the straps imprinted on her feet, too. I don't think

you can cut off the circulation on the baby's feet with the shoes.

Carol and

>

> We just got the 's (yeah) and things are going great. I

am

> having very little difficulty putting them on and seems to

> tolerate them fine. Tonight when I put them on i was able to get

the

> buckle to the last hole and past to the hole I made in the middle

> strap. has tiny little size 0 feet, but very fat! So now

all

> of his chubbiness is oozing around the straps. He didn't fight it

at

> all and he is quite happy in bed right now. But my dh freaked me

out

> about cutting off his circulation and now i am obsessing that his

feet

> are going to go purple. Dumb question to follow: If the shoes

were

> too tight he would tell me right? Well he is only 10 months but

he

> would at least cry and fuss right?

> I guess I need a bit of reassurance otherwise I will keep myself

all

> night worrying. Normally I am up all night anyway, but my sweet

> little one is finally sleeping through the night!! Anyway, any

help

> would be great!

> Sorry for the crazy post

>

> Hunter 07/31/03

> 05/12/05 BCF PM's 20/7

>

[Guest guest]

Not dumb at all...in fact, I was so obsessed and worried about this that I cut

holes in all the socks I put on her (the new ones too...lol) for about a month!

She was always Ok though. Sometimes her foot would turn a little red right after

putting them on for about 1/2 hour, but would then be Ok. I kinda felt silly for

cutting up good socks after a while. I dont do it anymore, but I use cotton

tights. Partially cause they dont bunch up as easily, but I guess part of that

obsession is still there as I can stretch the tights to see if her feet look Ok.

The chubbiness plumping out is Ok. Just watch out for that middle strap. Lilee

has had some trouble with it. Not to say as you would. Good luck and congrats on

the P/M's!

P.S. Did Shriners pay for them? Are they still in debate over them?

Christee

Mother of...

*Josh

**Aspen~ Bilateral minor Metatarsus Adductus (6 yrs old)

***Dylan (4 yrs old)

****Lilee ~ Unilateral A-Typical (complex) Club Foot w/Plantaris (R foot) &

Mild Metatarsus Adductus (L foot).

*P/M Brace 18/24.Currently healing pressure ulcer/sore :*( (in the P/M's

w/DuoDerm & Mole Foam)

Concidering Dobbs bar & braces

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[Guest guest]

I don't think you really can cut off circulation, since the Markells

are always made extremely tight (I think tighter than the PM's for

sure) and it hasn't really popped up yet as an issue. The leather

will stretch on the PM's soon too. It will stretch at night while

worn even, and maybe seem a bit looser in the am than the night

before. If they hurt him, he'll tell you. If you want to check

though, you can cut a hole in the toe of his socks and watch his

feet. Then again, even if they did turn a bit purple it doesn't seem

to matter. Darbi's whole legs were purple at times when she first

wore the Markells and Sussman told me not to worry about that. Of

course I did but it never seemed to bother her at the time.

the really fatty puffy feet (i.e. infant or fresh out of casts are

often like this) can puff a bit between the straps. I am pretty sure

that's on the normal side...

Don't worry unless you hear him fussing and/or when you take them off

in the am there's some kind of sore or bad red marks. His feet *are*

on the sensitive side (pressure wise) so you might see a bit more red

than you're used to but over time they should get less red (while out

of the shoes) and as he gets used to these his feet are also going to

get a little tougher in that respect.

I've heard this kid cry... he'll tell you if there's something not

cool with his shoes LOL!

Kori

At 07:32 PM 3/11/2006, you wrote:

>We just got the 's (yeah) and things are going great. I am

>having very little difficulty putting them on and seems to

>tolerate them fine. Tonight when I put them on i was able to get the

>buckle to the last hole and past to the hole I made in the middle

>strap. has tiny little size 0 feet, but very fat! So now all

>of his chubbiness is oozing around the straps. He didn't fight it at

>all and he is quite happy in bed right now. But my dh freaked me out

>about cutting off his circulation and now i am obsessing that his feet

>are going to go purple. Dumb question to follow: If the shoes were

>too tight he would tell me right? Well he is only 10 months but he

>would at least cry and fuss right?

>I guess I need a bit of reassurance otherwise I will keep myself all

>night worrying. Normally I am up all night anyway, but my sweet

>little one is finally sleeping through the night!! Anyway, any help

>would be great!

>Sorry for the crazy post

>

>Hunter 07/31/03

> 05/12/05 BCF PM's 20/7

>

>

>

>

>

>

>

[Guest guest]

Hayden has the exact same feet - chubby little size zeros! I have not had any

trouble with circulation on his feet in the s and I actually had the

orthotist punch extra holes in the straps to get them tighter. The center

strap I have to pull pretty tight to get it to fasten. The only thing I have

noticed is that sometimes he has a slight red mark across the top of his foot

where that strap lays. I think the top strap should be snug, but not too tight

because that is where you could run into circulation troubles. Hope that

helps!

wrote: We just got the 's

(yeah) and things are going great. I am

having very little difficulty putting them on and seems to

tolerate them fine. Tonight when I put them on i was able to get the

buckle to the last hole and past to the hole I made in the middle

strap. has tiny little size 0 feet, but very fat! So now all

of his chubbiness is oozing around the straps. He didn't fight it at

all and he is quite happy in bed right now. But my dh freaked me out

about cutting off his circulation and now i am obsessing that his feet

are going to go purple. Dumb question to follow: If the shoes were

too tight he would tell me right? Well he is only 10 months but he

would at least cry and fuss right?

I guess I need a bit of reassurance otherwise I will keep myself all

night worrying. Normally I am up all night anyway, but my sweet

little one is finally sleeping through the night!! Anyway, any help

would be great!

Sorry for the crazy post

Hunter 07/31/03

05/12/05 BCF PM's 20/7

[Guest guest]

No, Shriners did not pay for them.

It was a big deal I guess-administration had to get involved and everything.

was in AFO's for a long time and our dr at Shriners wanted to keep him in

them. The dr was even hesitant to put him in the Markells because he thought

the AFO's were doing *ok*. He said that I didn't need the s.

Not too happy with him at the moment. I can't wait to go back in there in

June for his next appointment and when the dr tells me how great s feet

look tell him that we have been in the PM's the whole time!

Christee wrote:

Not dumb at all...in fact, I was so obsessed and worried about this that I cut

holes in all the socks I put on her (the new ones too...lol) for about a month!

She was always Ok though. Sometimes her foot would turn a little red right after

putting them on for about 1/2 hour, but would then be Ok. I kinda felt silly for

cutting up good socks after a while. I dont do it anymore, but I use cotton

tights. Partially cause they dont bunch up as easily, but I guess part of that

obsession is still there as I can stretch the tights to see if her feet look Ok.

The chubbiness plumping out is Ok. Just watch out for that middle strap. Lilee

has had some trouble with it. Not to say as you would. Good luck and congrats on

the P/M's!

P.S. Did Shriners pay for them? Are they still in debate over them?

Christee

Mother of...

*Josh

**Aspen~ Bilateral minor Metatarsus Adductus (6 yrs old)

***Dylan (4 yrs old)

****Lilee ~ Unilateral A-Typical (complex) Club Foot w/Plantaris (R foot) &

Mild Metatarsus Adductus (L foot).

*P/M Brace 18/24.Currently healing pressure ulcer/sore :*( (in the P/M's

w/DuoDerm & Mole Foam)

Concidering Dobbs bar & braces

---------------------------------

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[Guest guest]

AWW, Im sorry about that. Luckily Lilee got new shoes (1 pair they bought, 2

pair she's needed. I paid for the first cause Shriners wasnt our Dr. at the

time) right before Aiona and Sussman started haggling over it. You must have

Aiona then? Lilee has been having a hard time with middle straps and sores that

I couldnt even call then to get advice for fear that would throw more fire in

the pit, ya know. Sad when Dr.'s are so 'old school' that they are unwilling and

ignorant to other wonderful choices! Lilee's sore have been dealt with my 2

local Peditricians, a local Ped-Orthotist, and Josh be phone all

working together. I hate to see when Lilee needs her next pair. I'll really tell

them what I think! >:o/ I will have to find a way to pay for them ourselves!

Wont be too long. She grew out of her first pair in 2 1/2 months! It's been

about that now. Just got a letter from Shriner's today too telling us they

changed our appt. for 2 weeks further! >:o/ OoooK, why!? I expect

she will need a new pair in probably another 2 months or so?

Christee

Mother of...

*Josh

**Aspen~ Bilateral minor Metatarsus Adductus (6 yrs old)

***Dylan (4 yrs old)

****Lilee ~ Unilateral A-Typical (complex) Club Foot w/Plantaris (R foot) &

Mild Metatarsus Adductus (L foot).

*P/M Brace 18/24.Currently healing pressure ulcer/sore :*( (in the P/M's

w/DuoDerm & Mole Foam)

Concidering Dobbs bar & braces

---------------------------------

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[Guest guest]

when I first came here, all the pictures of CF kids who wore the

Markells had feet that looked like they'd been compressed in shoes

(Markells were only option at the time) with fatty calves above the

top of the shoe edge. I fully expected exactly that after ranking on

Darbi's feet like I had to to get her in lol... however it only

appeared slightly. But... it did happen. It's normal for these

feet to have a *shoed* look for the first year or two I'm pretty

sure. So far, this has never shown up as an issue. They grow into

them nicely.

I find it pretty amazing what these feet can handle as far as

pressure. When they get more mature, they're a totally different

foot. There's none of that going on with Darbi and these larger PM's

have straps much further apart than the little ones. At this age,

all that fat is gone and it's a nice bony foot so it doesn't squish

out at all. But at first, yeah, all that baby stuff does get a bit

squashed in the shoes and it looks a bit funny when they're off.

Kori

At 07:41 PM 3/11/2006, you wrote:

>Hi ,

>

> has been in the s for about 6 weeks and although her

>feet are not fat, her legs/ankles are very fat. She weighed 17

>pounds, 5 ounces at 4 months so yes, she is a big girl! Anyway, I

>tighten up the straps as much as I can and although it displaces the

>fat (a temporary thing just due to the shoes) and pushes it all up

>above the ankle, I have not gotten the impression that her

>circulation is compromised at all. Hers are so tight that I can see

>the marks of the straps imprinted on her feet, too. I don't think

>you can cut off the circulation on the baby's feet with the shoes.

>

>Carol and

>

>

> >

> > We just got the 's (yeah) and things are going great. I

>am

> > having very little difficulty putting them on and seems to

> > tolerate them fine. Tonight when I put them on i was able to get

>the

> > buckle to the last hole and past to the hole I made in the middle

> > strap. has tiny little size 0 feet, but very fat! So now

>all

> > of his chubbiness is oozing around the straps. He didn't fight it

>at

> > all and he is quite happy in bed right now. But my dh freaked me

>out

> > about cutting off his circulation and now i am obsessing that his

>feet

> > are going to go purple. Dumb question to follow: If the shoes

>were

> > too tight he would tell me right? Well he is only 10 months but

>he

> > would at least cry and fuss right?

> > I guess I need a bit of reassurance otherwise I will keep myself

>all

> > night worrying. Normally I am up all night anyway, but my sweet

> > little one is finally sleeping through the night!! Anyway, any

>help

> > would be great!

> > Sorry for the crazy post

> >

> > Hunter 07/31/03

> > 05/12/05 BCF PM's 20/7

> >

>

>

>

>

>

>

>

[Guest guest]

made our shoes a little bit bigger so can wear them a

little longer. When I talked to there I kept telling her Shriners

wouldn't pay and she was very surprised. Anyway, yes I do see Dr. Aiona - Don't

get me wrong, Ia m grateful for all they have done, but i was just really

confused as to why they were denying me these shoes.

You know, they have changed my appointment 3 times for further out too. My dh

said they were afraid of me so they were pushing me back! LOL ! Sweet little

me? LOL!

We actually snuck in to s room with scissors and a flashlight last night

to cut a hole in his socks - I thought my dh was going to commit me or

something! His toes were nice and pink and now this morning his feet are fine -

not even any bad red marks.

Thanks for all your help you guys. At least I got some sleep last night!

Christee wrote:

AWW, Im sorry about that. Luckily Lilee got new shoes (1 pair they bought, 2

pair she's needed. I paid for the first cause Shriners wasnt our Dr. at the

time) right before Aiona and Sussman started haggling over it. You must have

Aiona then? Lilee has been having a hard time with middle straps and sores that

I couldnt even call then to get advice for fear that would throw more fire in

the pit, ya know. Sad when Dr.'s are so 'old school' that they are unwilling and

ignorant to other wonderful choices! Lilee's sore have been dealt with my 2

local Peditricians, a local Ped-Orthotist, and Josh be phone all

working together. I hate to see when Lilee needs her next pair. I'll really tell

them what I think! >:o/ I will have to find a way to pay for them ourselves!

Wont be too long. She grew out of her first pair in 2 1/2 months! It's been

about that now. Just got a letter from Shriner's today too telling us they

changed our appt. for 2 weeks further! >:o/ OoooK, why!? I expect

she will need a new pair in probably another 2 months or so?

Christee

Mother of...

*Josh

**Aspen~ Bilateral minor Metatarsus Adductus (6 yrs old)

***Dylan (4 yrs old)

****Lilee ~ Unilateral A-Typical (complex) Club Foot w/Plantaris (R foot) &

Mild Metatarsus Adductus (L foot).

*P/M Brace 18/24.Currently healing pressure ulcer/sore :*( (in the P/M's

w/DuoDerm & Mole Foam)

Concidering Dobbs bar & braces

---------------------------------

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