Re: Jennie (Lindsey)

[Guest guest]

> Hi Jennie,

It sounds like you had quite a scare with Lindsey. Is it possible

that she is hypoglycemic? Hypoglycemia is associated with RSS, and

could cause her to pass out if it is severe enough. On the other

hand, excessive thirst is one of the signs of diabetes which would be

the opposite of hypoglycemia.

What part of Florida do you live in? I live in South Florida, and I

have an 11-year-old son with RSS.

Kim C.

> A few weeks ago Lindsey passed out in Target,we never made it past

> the cart

> section. She became dizzy,said she's needed to sit down and next

> thing she

> fell straight back on her head, thankfully that part of the floor

> was carpet. it

> was only a matter of seconds when she came to. I got her to the

> restaurant

> part and gave her an iccee. She's drank some.but was

> sweating,still dizzy and

> her head hurt. She has another story what happened,she doesn't

> remember

> anything. I took her to the ER and and we waited 3 hours to be

> seen. Cat scan was

> neg and they said her blood work was fine,but the ped a few days

> later said

> it showed she had a viral infection. she's did a finger stick to

> compare and

> her numbers were even lower,she also had a slight fever,just like

> she did at

> the hospital,but acting completely normal and not sick what so

> ever which is

> strange too(100.3)she runs 96,so for her this seems signifant. The

> pediatrician did her blood pressure standing up,sitting up and

> laying down and it

> showed her body is definitely not getting enough to drink. For

> many months now

> lindsey is ALWAYS thirsty and drinking. so now it makes since whys

> she always

> thrirsty! but why isn't her body hydrating herself? We are in

> Florida and it

> is hot,but Lindsey doesn't play outside. there are no girls for

> her to play

> with around here so she's just stays indoors. At target we walked

> from the

> car to Target, when she collapsed,so I don't think being over

> heated is a

> factor.

>

> I never mentioned Lindsey was dx with RSS to the ER PA,and honestly

> I didn't

> remember! We have one geneticist say yes,for sure and 2 others said

> maybe,but they want to test for other things which we haven tgot

> the orders for. But

> a light bulb went off this morning that maybe this could be a RSS

> thing?

> Lindsey is 9 years old, 47 pounds and about 49 inches tall. I'm

> attaching a

> picture i took the other day.

>

> jennie

>