: ATTT

[Guest guest]

Hi.

I'm new to the group. I have a 4 y. old son with d-cf. He had normal casts when

he was born, then at 4 months he had a full surgery. After that we used

'Vikhagen'-braces and done manipulation once a day. We haven't followed the

Ponseti method (unfortunately).

Some days ago we visited a Ponseti doctor in Sweden (Bertil Romanus). He

recommended that we should have an Anterior Tibialis Transfer operation. Does

anybody know anything about the consequences of this operation? Does anybody

have good/bed experience? I'm scared to have an operation if the outcome will be

worse for Brage. Is there any literature that is available on the subject?

Ellen and Brage, Norway.

Ellen Eckhoff Planke

Volcanic Basin Petroleum Research AS

Forskningsparken, Gaustadalléen 21

0349 Oslo, Norway

Phone: +47-22 95 89 24

Mobile: +47-90 87 50 14

Email: ellen@...

Web: www.vbpr.no

Re: Alfa Flex brace versus Dennis Brown bar

Hi Joyce,

the ALFA-Flex-Brace is ok! They have some problems with blisters,

especially in the older style sandals, but they are working on it.

My daughter wears the Brace since 14 months and had no problems

whatsoever.

The material is very soft leather and definitely NOT vinyl, at the

heel there is an insert of some type of cloth (cotton, I guess) with

some " upholstery " beneath it. The middle strap is always with

buckles and holes, so there is noch problem with the heel staying

down. Pia has got velcro-straps at her shoes (the other two straps),

but there are shoes available (maybe all the newer shoes have this)

where you have all the straps with buckles. The nice thing is, that

you can disconnect the shoes from the brace.

I think semeda will have shoes with an insert soon (my guess is

something like in the P/M's). They designed the brace together with

Dr. Sinclair, who introduced the Ponseti-Method to Germany and

worked some years in the US before. He is very strict with the

method and would never use a brace that doesn't fulfill the criteria

for the treatment!

So don't worry... Dylan will be fine with the brace!

Maybe you would like to check out my new homepage www.ponseti-

fuesse.de - there are some pictures of the brace.

mom of Pia (bcf, ALFA-Flex-Brace nights and naps)

>

> My 5-week old son, Dylan, will be done with his casts in 3 weeks.

He

> had four weekly casts and is now on the post-tenotomy three week

cast.

> Hurray. My dr was at a Ponseti conference and is considering the

> Semeda Alfa-Flex brace (http://www.semeda.de/Web/ponseti_en.htm)

> instead of what he normally recommends, the Dennis Brown brace. He

has

> no experience with the Semeda brace but says we can try it if we

want

> to. Thanks to whomever posted the link to the Semeda site, I was

> actually able to pull out a print out of the brace at the end of

our

> last dr visit :-). One concern I have about the shoes for the Alfa-

> Flex is that they look like they use velcro and I'm concerned

about

> those staying tight and closed. Has anyone used the Alfa-Flex

brace

> and can comment on it? I'm wondering if we should just go with the

> Dennis Brown bar because it's a known option although it's a bit

heavy

> from what I've read.

>

> Joyce

> The Netherlands

> Dylan, born 14-Apr-06 with rcf

>