Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 Hi Bev... Hope you had a great holiday, u were missed::) I am anxious to see what you have to say about the mild/whole mutation thing.I tried to scroll to view archives(i am set at receiving NO emails on this group, theres too many), but didnt see anything from you.Can you share your thoughts? Appreciative as always, Patty :):), Isnt it beautiful to be alive???Its wonderful down here...the sun just brings out all the happiness in me(the heat could take a hike though,lol) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 Hey gal, I just glanced here & saw your post. I am on my way out but wanted you to know missed all other posts. Sorry or I would have answered. I think that is a big very hard ....not really clear......story on what each gene detected can mean. From what I have heard -IT hasn't had enough study to declare one more " mild " than another , etc. There are so many different parts of each persons make-up -genetically that there are no two alike anywhere on earth. Even twins. both types....have different fingerprints.........sooooooooooooo, I think that we should take each person with CF & treat them " generally " the same(similar) & then look at symptoms & treat those. It is something that would be very helpful to KNOW, but all the big guns researchers deny that they are exact in their makeup , say, ALL those with D508 are one treatment,----- & so on. I rely on symptoms when it has come to ERIN & she is doing well. As things happen/change, -----so will her treatments & life style as necessary. Most I have heard from " FOLKS " is like a READERS DIGEST EDUCATION & NOT TRULY BACKED BY THE BIG GUN RESEARCHERS.-----but -that said, we want to listen to all we hear & not poo-poo anyone's ideas. Things changes we learn more daily ANYWAY, just my opinion. Got to get outa here & meet Patti (daughter ) LOVE & HUGS, GrandmomBEV Bev R117H Hi Bev... Hope you had a great holiday, u were missed::) I am anxious to see what you have to say about the mild/whole mutation thing.I tried to scroll to view archives(i am set at receiving NO emails on this group, theres too many), but didnt see anything from you.Can you share your thoughts? Appreciative as always, Patty :):), Isnt it beautiful to be alive???Its wonderful down here...the sun just brings out all the happiness in me(the heat could take a hike though,lol) ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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