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Bev R117H

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Hi Bev...

Hope you had a great holiday, u were missed::):)

I am anxious to see what you have to say about the mild/whole

mutation thing.I tried to scroll to view archives(i am set at

receiving NO emails on this group, theres too many), but didnt see

anything from you.Can you share your thoughts?

Appreciative as always,

Patty :):):):):), Isnt it beautiful to be alive???Its wonderful down

here...the sun just brings out all the happiness in me(the heat could

take a hike though,lol)

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Hey gal, I just glanced here & saw your post. I am on my way out but wanted

you to know missed all other posts. Sorry or I would have answered.

I think that is a big very hard ....not really clear......story on what

each gene detected can mean. From what I have heard -IT hasn't had enough

study to declare one more " mild " than another , etc. There are so many

different parts of each persons make-up -genetically that there are no two

alike anywhere on earth. Even twins. both types....have different

fingerprints.........sooooooooooooo, I think that we should take each person

with CF & treat them " generally " the same(similar) & then look at symptoms

& treat those.

It is something that would be very helpful to KNOW, but all the big guns

researchers deny that they are exact in their makeup , say, ALL those with

D508 are one treatment,----- & so on.

I rely on symptoms when it has come to ERIN & she is doing well. As things

happen/change, -----so will her treatments & life style as necessary.

Most I have heard from " FOLKS " is like a READERS DIGEST EDUCATION & NOT

TRULY BACKED BY THE BIG GUN RESEARCHERS.-----but -that said, we want to

listen to all we hear & not poo-poo anyone's ideas. Things changes we learn

more daily

ANYWAY, just my opinion.

Got to get outa here & meet Patti (daughter )

LOVE & HUGS, GrandmomBEV

Bev R117H

Hi Bev...

Hope you had a great holiday, u were missed::):)

I am anxious to see what you have to say about the mild/whole

mutation thing.I tried to scroll to view archives(i am set at

receiving NO emails on this group, theres too many), but didnt see

anything from you.Can you share your thoughts?

Appreciative as always,

Patty :):):):):), Isnt it beautiful to be alive???Its wonderful down

here...the sun just brings out all the happiness in me(the heat could

take a hike though,lol)

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

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