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Hi all, I talked to last night on the phone and Savannah is still the

same. She is on 24 hr dialysis right now and her " coma " is drug induced so that

her body could rest. They are hoping to be able to take her off dialysis soon

to see if her kidneys will be able to function on their own. They still don't

know what caused the swelling of her brain, they say that they don't think that

it is secondary to her toxicity from the tobramyacin, it's just kind of a wait

and see thing. I just thought that I would update you all on this since so many

have sent kind words and lots of prayers for Savannah and her family. As

always, once I learn more I will let you all know.

Katy

Mom to Austin 4 no CF & Piper 17 months w/CF

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Thank you Katy,

Please continue to post us as you can. I am praying daily for that wee one.

So precious in our site , but know that SHE IS ALSO IN HIS......... Your a

doll to let us know

LOVE & HUGS<

Grandmom\Bev

Savannah

Hi all, I talked to last night on the phone and Savannah is still the

same. She is on 24 hr dialysis right now and her " coma " is drug induced so

that her body could rest. They are hoping to be able to take her off

dialysis soon to see if her kidneys will be able to function on their own.

They still don't know what caused the swelling of her brain, they say that

they don't think that it is secondary to her toxicity from the tobramyacin,

it's just kind of a wait and see thing. I just thought that I would update

you all on this since so many have sent kind words and lots of prayers for

Savannah and her family. As always, once I learn more I will let you all

know.

Katy

Mom to Austin 4 no CF & Piper 17 months w/CF

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Thank you, Katy--we are pulling HARD! n

Savannah

Hi all, I talked to last night on the phone and Savannah is still the

same. She is on 24 hr dialysis right now and her " coma " is drug induced so that

her body could rest. They are hoping to be able to take her off dialysis soon

to see if her kidneys will be able to function on their own. They still don't

know what caused the swelling of her brain, they say that they don't think that

it is secondary to her toxicity from the tobramyacin, it's just kind of a wait

and see thing. I just thought that I would update you all on this since so many

have sent kind words and lots of prayers for Savannah and her family. As

always, once I learn more I will let you all know.

Katy

Mom to Austin 4 no CF & Piper 17 months w/CF

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  • 2 weeks later...

AWESOME NEWS!!!!!!

Savannah

Hi all!!! called me about an hour ago to let me know that they are

home!!!!!!! Savannah is resting comfortably in her own bed and they are very

thankful for all the thoughts, prayers, cards, and kind words.

Katy

Mom to Austin 4 no CF & Piper 18 months w/CF

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In a message dated 1/20/2004 1:01:13 PM Central Standard Time,

Youthful64@... writes:

I am so glad to hear that Savannah is home!!! I always say it takes a year

before they get back to normal after going through anything major. Like always

she is in my thoughts and prayers. Take care!! Deb A

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I am so happy to hear some positive news & reports for Savannah . YEAh..

Get better even sooner now.

LOVE & HUGS with oodles of great special thoughts,

GrandmomBEV

Savannah

I just want to take this time to say a big THANK YOU to everyone who

prayed,

thought about, sent a card and checked up on us. Savannah is resting

comfortably at home now. She went back to the doctors last night so it

will be a couple

of days before I get any results back on her blood work. At this time

the

only CF meds she is on are her breathing treatments and one inhaler. Her

doctor

said it will probably be six months before she is back to taking

everything.

Now we have to go and get a hearing test done. Savannah still sleeps a

lot and

her balance is still off. Also her joints really are bothering her. She

cannot

take Advil now (it goes through your kidneys) and Tylenol isn't helping.

Also

she is still having trouble with short term memory things. Savannah

cries at

the smallest things too. It some ways she has changed but who wouldn't

after

everything she has gone through. I'll be on line to check my mail but my

responses will be few and far between until Savannah is a lot better.

Oh, If you sent a card to St. 's before we transferred to St.

Francis

they did forward them to our home. Thanks again.

Mom to 2 w/o CF and Savannah w/ CF

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