Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 Hi Natalia I am sorry to hear that you will be in Club Med for a long while. You can visit my baby Zach anytime at www.dawsonland.net. Sara > Hi you guys. > > I think I might be here for a long long time. I am feeling so beaten > up and progress seems minimal. I had another attack this morning when > I could not breathe - it was scary but shorter and more controlled. > So though I have the greatest support in the world from my family, and > you guys of course, I am in for the long haul here and it;s going to be > the fight of my life. It will be the greatest feeling ever to walk out > of here being able to breathe on my own. > > For now I have an idea. I want to get to know all of you guys. So > since I am in bed all the time and life seems to be passing my by, I > want you all to send me pictures of yourselves. Your kids, families, > all that. Who have CF, who don't. I need faces here. I think it will > be funny for me, and i would love to put together some sort of a book. > To start I will send mine via email here. > > If you are interested please send me your picture and a little who's > who info card to: > > Natalia Boguslawska > 717 Eglinton Ave W, apt.507 > Toronto, Ontario > M5N 1C9 > Canada > > Send them this way. My dad and can pick them up from my place, > better than trusting the hospital mail with pictures of all you > beautiful people. > > > ---------- > > > > Here's me this summer. I was doing well. I'll send one out this week > from my digital camera, so the comparison could be made, and so that > you all don't think I'm kidding about being sickly. This was a great > summer. Plus Lance Armstrong said in one of his books that its a good > idea to take pictures of yourself when you are at your worst so that > you don't forget. With CF we can't forget and let things slide. > > I am so excited to 'see' all you guys!!! Start the mail coming. > > Natalia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 Hi you guys. I think I might be here for a long long time. I am feeling so beaten up and progress seems minimal. I had another attack this morning when I could not breathe - it was scary but shorter and more controlled. So though I have the greatest support in the world from my family, and you guys of course, I am in for the long haul here and it;s going to be the fight of my life. It will be the greatest feeling ever to walk out of here being able to breathe on my own. For now I have an idea. I want to get to know all of you guys. So since I am in bed all the time and life seems to be passing my by, I want you all to send me pictures of yourselves. Your kids, families, all that. Who have CF, who don't. I need faces here. I think it will be funny for me, and i would love to put together some sort of a book. To start I will send mine via email here. If you are interested please send me your picture and a little who's who info card to: Natalia Boguslawska 717 Eglinton Ave W, apt.507 Toronto, Ontario M5N 1C9 Canada Send them this way. My dad and can pick them up from my place, better than trusting the hospital mail with pictures of all you beautiful people. ---------- Here's me this summer. I was doing well. I'll send one out this week from my digital camera, so the comparison could be made, and so that you all don't think I'm kidding about being sickly. This was a great summer. Plus Lance Armstrong said in one of his books that its a good idea to take pictures of yourself when you are at your worst so that you don't forget. With CF we can't forget and let things slide. I am so excited to 'see' all you guys!!! Start the mail coming. Natalia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 Natalia, I'm so sorry that you are having to fight so hard. I will keep you in my prayers, if it's ok with you. If you want to check out " The Queen of The Universe " , go to our site at http://groups.msn.com/TeamJane She is also on the National CF awareness committee site at www.cfawareness.org in the meet us section. Thanks everyone. Hi you guys. I think I might be here for a long long time. I am feeling so beaten up and progress seems minimal. I had another attack this morning when I could not breathe - it was scary but shorter and more controlled. So though I have the greatest support in the world from my family, and you guys of course, I am in for the long haul here and it;s going to be the fight of my life. It will be the greatest feeling ever to walk out of here being able to breathe on my own. For now I have an idea. I want to get to know all of you guys. So since I am in bed all the time and life seems to be passing my by, I want you all to send me pictures of yourselves. Your kids, families, all that. Who have CF, who don't. I need faces here. I think it will be funny for me, and i would love to put together some sort of a book. To start I will send mine via email here. If you are interested please send me your picture and a little who's who info card to: Natalia Boguslawska 717 Eglinton Ave W, apt.507 Toronto, Ontario M5N 1C9 Canada Send them this way. My dad and can pick them up from my place, better than trusting the hospital mail with pictures of all you beautiful people. ---------- Here's me this summer. I was doing well. I'll send one out this week from my digital camera, so the comparison could be made, and so that you all don't think I'm kidding about being sickly. This was a great summer. Plus Lance Armstrong said in one of his books that its a good idea to take pictures of yourself when you are at your worst so that you don't forget. With CF we can't forget and let things slide. I am so excited to 'see' all you guys!!! Start the mail coming. Natalia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 Natalia--for some instant gratification, you are welcome to visit our website for some viewing enjoyment. My 2 1/2 yr old son has CF and is a delight (well, I may be a bit biased). If you have access to a computer (I hope you do!), go to http://www.babyfergie.com I hope those docs are nice to you and get those lungs back in action ! have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2004 Report Share Posted January 3, 2004 Hey Natalia, I would love to come and visit you. I live in Aurora, Ontario. What hospital are you in? I have a 3 sons, my youngest has CF. He had a hospital stay back in October. He is now on 3 masks/day, TOBI twice, pulmacort twice, both with ventilin. I am so sorry that you are having troubles. I am praying for you to get better soon. Love, Cheryl Thanks everyone. Hi you guys. I think I might be here for a long long time. I am feeling so beaten up and progress seems minimal. I had another attack this morning when I could not breathe - it was scary but shorter and more controlled. So though I have the greatest support in the world from my family, and you guys of course, I am in for the long haul here and it;s going to be the fight of my life. It will be the greatest feeling ever to walk out of here being able to breathe on my own. For now I have an idea. I want to get to know all of you guys. So since I am in bed all the time and life seems to be passing my by, I want you all to send me pictures of yourselves. Your kids, families, all that. Who have CF, who don't. I need faces here. I think it will be funny for me, and i would love to put together some sort of a book. To start I will send mine via email here. If you are interested please send me your picture and a little who's who info card to: Natalia Boguslawska 717 Eglinton Ave W, apt.507 Toronto, Ontario M5N 1C9 Canada Send them this way. My dad and can pick them up from my place, better than trusting the hospital mail with pictures of all you beautiful people. ---------- Here's me this summer. I was doing well. I'll send one out this week from my digital camera, so the comparison could be made, and so that you all don't think I'm kidding about being sickly. This was a great summer. Plus Lance Armstrong said in one of his books that its a good idea to take pictures of yourself when you are at your worst so that you don't forget. With CF we can't forget and let things slide. I am so excited to 'see' all you guys!!! Start the mail coming. Natalia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 Cheryl, I am at St.Mikes Hospital in Toronto, in BOND on the 6th floor. In the respirology in-patient. My parents live in Markham, which is not that far from Aurora. I used to ride horses when I was younger in Aurora, it's nice there. But I am a city girl =) I hope that I get to meet you. Natalia On Saturday, January 3, 2004, at 10:36 PM, T & C Cowl wrote: > Hey Natalia, > > I would love to come and visit you. I live in Aurora, Ontario. What > hospital are you in? I have a 3 sons, my youngest has CF. He had a > hospital stay back in October. He is now on 3 masks/day, TOBI twice, > pulmacort twice, both with ventilin. > > I am so sorry that you are having troubles. I am praying for you to > get > better soon. > > Love, > Cheryl > > Thanks everyone. > > Hi you guys. > > I think I might be here for a long long time. I am feeling so beaten > up and progress seems minimal. I had another attack this morning when > I could not breathe - it was scary but shorter and more controlled. > So though I have the greatest support in the world from my family, and > you guys of course, I am in for the long haul here and it;s going to be > the fight of my life. It will be the greatest feeling ever to walk out > of here being able to breathe on my own. > > For now I have an idea. I want to get to know all of you guys. So > since I am in bed all the time and life seems to be passing my by, I > want you all to send me pictures of yourselves. Your kids, families, > all that. Who have CF, who don't. I need faces here. I think it will > be funny for me, and i would love to put together some sort of a book. > To start I will send mine via email here. > > If you are interested please send me your picture and a little who's > who info card to: > > Natalia Boguslawska > 717 Eglinton Ave W, apt.507 > Toronto, Ontario > M5N 1C9 > Canada > > Send them this way. My dad and can pick them up from my place, > better than trusting the hospital mail with pictures of all you > beautiful people. > > >  ---------- > > > > Here's me this summer. I was doing well. I'll send one out this week > from my digital camera, so the comparison could be made, and so that > you all don't think I'm kidding about being sickly. This was a great > summer. Plus Lance Armstrong said in one of his books that its a good > idea to take pictures of yourself when you are at your worst so that > you don't forget. With CF we can't forget and let things slide. > > I am so excited to 'see' all you guys!!! Start the mail coming. > > Natalia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 I would love to come and meet you and this week would work for me since my husband is home. Are you able to have visitors? Is that a stupid question? Can you tell me why, exactly, you are there? Have you cultured something? I have been out of the country, so I was on no mail for a while so I didn't get to read any of your previous posts. We are supposed to get a lot of snow tonight. I could come by go-train. Hope to hear from you soon, Love, Cheryl p.s. I will dream sweet dreams for you tonight, breathing deeply, with wonderful healthy LUNGS!!! Thanks everyone. > > Hi you guys. > > I think I might be here for a long long time. I am feeling so beaten > up and progress seems minimal. I had another attack this morning when > I could not breathe - it was scary but shorter and more controlled. > So though I have the greatest support in the world from my family, and > you guys of course, I am in for the long haul here and it;s going to be > the fight of my life. It will be the greatest feeling ever to walk out > of here being able to breathe on my own. > > For now I have an idea. I want to get to know all of you guys. So > since I am in bed all the time and life seems to be passing my by, I > want you all to send me pictures of yourselves. Your kids, families, > all that. Who have CF, who don't. I need faces here. I think it will > be funny for me, and i would love to put together some sort of a book. > To start I will send mine via email here. > > If you are interested please send me your picture and a little who's > who info card to: > > Natalia Boguslawska > 717 Eglinton Ave W, apt.507 > Toronto, Ontario > M5N 1C9 > Canada > > Send them this way. My dad and can pick them up from my place, > better than trusting the hospital mail with pictures of all you > beautiful people. > > >  ---------- > > > > Here's me this summer. I was doing well. I'll send one out this week > from my digital camera, so the comparison could be made, and so that > you all don't think I'm kidding about being sickly. This was a great > summer. Plus Lance Armstrong said in one of his books that its a good > idea to take pictures of yourself when you are at your worst so that > you don't forget. With CF we can't forget and let things slide. > > I am so excited to 'see' all you guys!!! Start the mail coming. > > Natalia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 This is my second response to you, in case you are reading this one first. Do you have to wear a hospital gown while you are there? If so, do you find it a pain in the rear end? Let me know because if you would like, I can make you one that is IV friendly. What do you like? What size are you? I can get you some really funky material if you like. Let me know. Cheryl Thanks everyone. > > Hi you guys. > > I think I might be here for a long long time. I am feeling so beaten > up and progress seems minimal. I had another attack this morning when > I could not breathe - it was scary but shorter and more controlled. > So though I have the greatest support in the world from my family, and > you guys of course, I am in for the long haul here and it;s going to be > the fight of my life. It will be the greatest feeling ever to walk out > of here being able to breathe on my own. > > For now I have an idea. I want to get to know all of you guys. So > since I am in bed all the time and life seems to be passing my by, I > want you all to send me pictures of yourselves. Your kids, families, > all that. Who have CF, who don't. I need faces here. I think it will > be funny for me, and i would love to put together some sort of a book. > To start I will send mine via email here. > > If you are interested please send me your picture and a little who's > who info card to: > > Natalia Boguslawska > 717 Eglinton Ave W, apt.507 > Toronto, Ontario > M5N 1C9 > Canada > > Send them this way. My dad and can pick them up from my place, > better than trusting the hospital mail with pictures of all you > beautiful people. > > >  ---------- > > > > Here's me this summer. I was doing well. I'll send one out this week > from my digital camera, so the comparison could be made, and so that > you all don't think I'm kidding about being sickly. This was a great > summer. Plus Lance Armstrong said in one of his books that its a good > idea to take pictures of yourself when you are at your worst so that > you don't forget. With CF we can't forget and let things slide. > > I am so excited to 'see' all you guys!!! Start the mail coming. > > Natalia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 Cheryl, I am here since my lung function fell to a very low level and I stopped being able to breathe well. They think that I might have had a viral infection perhaps in October. It allowed for phlegm to store up in parts of my lungs, and now its choking me. I am not contagious and though I perhaps had the flu a few months ago, now it's just me fighting the stuff in my lungs. I was in isolation until they knew that it was not SARS, flu or anything else. They are so sensitive since SARS, rightly so I guess. I am allowed visitors. In fact I have had to cut down on friends and family coming too much since I could not 'entertain' that much. Today was an amazing day for me though. I feel 100% better, which is still so far from the normal me, but I see light for the first time in weeks. Anytime, you are welcome. I would love to chat. Natalia On Sunday, January 4, 2004, at 06:46 PM, T & C Cowl wrote: > I would love to come and meet you and this week would work for me since > my husband is home. Are you able to have visitors? Is that a stupid > question? Can you tell me why, exactly, you are there? Have you > cultured something? I have been out of the country, so I was on no > mail > for a while so I didn't get to read any of your previous posts. We are > supposed to get a lot of snow tonight. I could come by go-train. > > Hope to hear from you soon, > Love, > Cheryl > p.s. I will dream sweet dreams for you tonight, breathing deeply, with > wonderful healthy LUNGS!!! > > Thanks everyone. > > > > Hi you guys. > > > > I think I might be here for a long long time. I am feeling so beaten > > up and progress seems minimal. I had another attack this morning > when > > I could not breathe - it was scary but shorter and more controlled. > > So though I have the greatest support in the world from my family, > and > > you guys of course, I am in for the long haul here and it;s going to > be > > the fight of my life. It will be the greatest feeling ever to walk > out > > of here being able to breathe on my own. > > > > For now I have an idea. I want to get to know all of you guys. So > > since I am in bed all the time and life seems to be passing my by, I > > want you all to send me pictures of yourselves. Your kids, families, > > all that. Who have CF, who don't. I need faces here. I think it > will > > be funny for me, and i would love to put together some sort of a > book. > > To start I will send mine via email here. > > > > If you are interested please send me your picture and a little who's > > who info card to: > > > > Natalia Boguslawska > > 717 Eglinton Ave W, apt.507 > > Toronto, Ontario > > M5N 1C9 > > Canada > > > > Send them this way. My dad and can pick them up from my place, > > better than trusting the hospital mail with pictures of all you > > beautiful people. > > > > > >  ---------- > > > > > > > > Here's me this summer. I was doing well. I'll send one out this > week > > from my digital camera, so the comparison could be made, and so that > > you all don't think I'm kidding about being sickly. This was a great > > summer. Plus Lance Armstrong said in one of his books that its a > good > > idea to take pictures of yourself when you are at your worst so that > > you don't forget. With CF we can't forget and let things slide. > > > > I am so excited to 'see' all you guys!!! Start the mail coming. > > > > Natalia > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 Yeah I do wear a hospital gown. I would love one, if you have some time to make it. I am really small. I'm 5'7, but really tiny everywhere. Waist 27, hips 29, no boobs, really slim legs. I have lost some weight here, but I am generally tiny, even only with respect to proportions - more like a little boy than a 24 year old woman. I am a 0-2 at Banana Republic, a 0-2, 2-4 at depending on the fit. I'm not sure if that helps. I just like nice cotton, something comfy to sleep in. Plus I sweat like a pig, all that working happening in my lungs I guess, so light fabric is better. That's a cool thing you do. May be it will serve me well!! Natalia On Sunday, January 4, 2004, at 06:52 PM, T & C Cowl wrote: > This is my second response to you, in case you are reading this one > first. Do you have to wear a hospital gown while you are there? If > so, > do you find it a pain in the rear end? Let me know because if you > would like, I can make you one that is IV friendly. What do you like? > What size are you? I can get you some really funky material if you > like. > > Let me know. > Cheryl > > Thanks everyone. > > > > Hi you guys. > > > > I think I might be here for a long long time. I am feeling so beaten > > up and progress seems minimal. I had another attack this morning > when > > I could not breathe - it was scary but shorter and more controlled. > > So though I have the greatest support in the world from my family, > and > > you guys of course, I am in for the long haul here and it;s going to > be > > the fight of my life. It will be the greatest feeling ever to walk > out > > of here being able to breathe on my own. > > > > For now I have an idea. I want to get to know all of you guys. So > > since I am in bed all the time and life seems to be passing my by, I > > want you all to send me pictures of yourselves. Your kids, families, > > all that. Who have CF, who don't. I need faces here. I think it > will > > be funny for me, and i would love to put together some sort of a > book. > > To start I will send mine via email here. > > > > If you are interested please send me your picture and a little who's > > who info card to: > > > > Natalia Boguslawska > > 717 Eglinton Ave W, apt.507 > > Toronto, Ontario > > M5N 1C9 > > Canada > > > > Send them this way. My dad and can pick them up from my place, > > better than trusting the hospital mail with pictures of all you > > beautiful people. > > > > > >  ---------- > > > > > > > > Here's me this summer. I was doing well. I'll send one out this > week > > from my digital camera, so the comparison could be made, and so that > > you all don't think I'm kidding about being sickly. This was a great > > summer. Plus Lance Armstrong said in one of his books that its a > good > > idea to take pictures of yourself when you are at your worst so that > > you don't forget. With CF we can't forget and let things slide. > > > > I am so excited to 'see' all you guys!!! Start the mail coming. > > > > Natalia > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 Natalia, you keep fighting, woman! We are all for you! n Rojas Thanks everyone. > > > > Hi you guys. > > > > I think I might be here for a long long time. I am feeling so beaten > > up and progress seems minimal. I had another attack this morning > when > > I could not breathe - it was scary but shorter and more controlled. > > So though I have the greatest support in the world from my family, > and > > you guys of course, I am in for the long haul here and it;s going to > be > > the fight of my life. It will be the greatest feeling ever to walk > out > > of here being able to breathe on my own. > > > > For now I have an idea. I want to get to know all of you guys. So > > since I am in bed all the time and life seems to be passing my by, I > > want you all to send me pictures of yourselves. Your kids, families, > > all that. Who have CF, who don't. I need faces here. I think it > will > > be funny for me, and i would love to put together some sort of a > book. > > To start I will send mine via email here. > > > > If you are interested please send me your picture and a little who's > > who info card to: > > > > Natalia Boguslawska > > 717 Eglinton Ave W, apt.507 > > Toronto, Ontario > > M5N 1C9 > > Canada > > > > Send them this way. My dad and can pick them up from my place, > > better than trusting the hospital mail with pictures of all you > > beautiful people. > > > > > > ---------- > > > > > > > > Here's me this summer. I was doing well. I'll send one out this > week > > from my digital camera, so the comparison could be made, and so that > > you all don't think I'm kidding about being sickly. This was a great > > summer. Plus Lance Armstrong said in one of his books that its a > good > > idea to take pictures of yourself when you are at your worst so that > > you don't forget. With CF we can't forget and let things slide. > > > > I am so excited to 'see' all you guys!!! Start the mail coming. > > > > Natalia > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 , Your son is really cute!!! Gale > Natalia--for some instant gratification, you are welcome to visit our > website for some viewing enjoyment. My 2 1/2 yr old son has CF and > is a delight (well, I may be a bit biased). If you have access to a > computer (I hope you do!), go to http://www.babyfergie.com > > I hope those docs are nice to you and get those lungs back in action ! > > have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 I would have to agree!!!! thanks! He is nearly 3 yrs old. Can't believe it! > > Natalia--for some instant gratification, you are welcome to visit > our > > website for some viewing enjoyment. My 2 1/2 yr old son has CF and > > is a delight (well, I may be a bit biased). If you have access to > a > > computer (I hope you do!), go to http://www.babyfergie.com > > > > I hope those docs are nice to you and get those lungs back in > action ! > > > > have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 n, I'm fighting. I'm not going to stop. =) On Sunday, January 4, 2004, at 11:45 PM, n Rojas wrote: > Natalia, you keep fighting, woman! We are all for you! n Rojas > Thanks everyone. > > > > > > Hi you guys. > > > > > > I think I might be here for a long long time. I am feeling so > beaten > > > up and progress seems minimal. I had another attack this morning > > when > > > I could not breathe - it was scary but shorter and more controlled. > > > So though I have the greatest support in the world from my family, > > and > > > you guys of course, I am in for the long haul here and it;s going > to > > be > > > the fight of my life. It will be the greatest feeling ever to walk > > out > > > of here being able to breathe on my own. > > > > > > For now I have an idea. I want to get to know all of you guys. So > > > since I am in bed all the time and life seems to be passing my by, > I > > > want you all to send me pictures of yourselves. Your kids, > families, > > > all that. Who have CF, who don't. I need faces here. I think it > > will > > > be funny for me, and i would love to put together some sort of a > > book. > > > To start I will send mine via email here. > > > > > > If you are interested please send me your picture and a little > who's > > > who info card to: > > > > > > Natalia Boguslawska > > > 717 Eglinton Ave W, apt.507 > > > Toronto, Ontario > > > M5N 1C9 > > > Canada > > > > > > Send them this way. My dad and can pick them up from my place, > > > better than trusting the hospital mail with pictures of all you > > > beautiful people. > > > > > > > > > ---------- > > > > > > > > > > > > Here's me this summer. I was doing well. I'll send one out this > > week > > > from my digital camera, so the comparison could be made, and so > that > > > you all don't think I'm kidding about being sickly. This was a > great > > > summer. Plus Lance Armstrong said in one of his books that its a > > good > > > idea to take pictures of yourself when you are at your worst so > that > > > you don't forget. With CF we can't forget and let things slide. > > > > > > I am so excited to 'see' all you guys!!! Start the mail coming. > > > > > > Natalia > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 That kid of yours is awesome!! So adorable. Plus you guys make a beautiful family. There is some crazy love evident in every picture. My dad and I were looking at them last night. I need something to occupy all this hospital time, and that way a very sweet way. Brought a smile to my face. Kids are so innocent and happy, I love that. Natalia > Natalia--for some instant gratification, you are welcome to visit our > website for some viewing enjoyment. My 2 1/2 yr old son has CF and > is a delight (well, I may be a bit biased). If you have access to a > computer (I hope you do!), go to http://www.babyfergie.com > > I hope those docs are nice to you and get those lungs back in action ! > > have been removed] > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > ------------------------------------ > > > <image.tiff> > > <image.tiff> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 , What a cutie she is!! I loved getting all these pictures, it's fun to see you guys. She looks and seems like a little actress and performer, always glancing into the camera. =) Tell her I say hi. And that she has to keep posing for that camera and having fun. Natalia On Friday, January 2, 2004, at 05:38 PM, ANDREA FITTING wrote: > Natalia, > I'm so sorry that you are having to fight so hard. I will keep you in > my prayers, if it's ok with you. If you want to check out " The Queen > of The Universe " , go to our site at > http://groups.msn.com/TeamJane She is also on the National CF > awareness committee site at www.cfawareness.org in the meet us > section. > >  Thanks everyone. > > >  Hi you guys. > >  I think I might be here for a long long time. I am feeling so beaten >  up and progress seems minimal. I had another attack this morning > when >  I could not breathe - it was scary but shorter and more controlled. >  So though I have the greatest support in the world from my family, > and >  you guys of course, I am in for the long haul here and it;s going to > be >  the fight of my life. It will be the greatest feeling ever to walk > out >  of here being able to breathe on my own. > >  For now I have an idea. I want to get to know all of you guys. So >  since I am in bed all the time and life seems to be passing my by, I >  want you all to send me pictures of yourselves. Your kids, families, >  all that. Who have CF, who don't. I need faces here. I think it > will >  be funny for me, and i would love to put together some sort of a > book. >  To start I will send mine via email here. > >  If you are interested please send me your picture and a little who's >  who info card to: > >  Natalia Boguslawska >  717 Eglinton Ave W, apt.507 >  Toronto, Ontario >  M5N 1C9 >  Canada > >  Send them this way. My dad and can pick them up from my place, >  better than trusting the hospital mail with pictures of all you >  beautiful people. > > >    ---------- > > > >  Here's me this summer. I was doing well. I'll send one out this > week >  from my digital camera, so the comparison could be made, and so that >  you all don't think I'm kidding about being sickly. This was a great >  summer. Plus Lance Armstrong said in one of his books that its a > good >  idea to take pictures of yourself when you are at your worst so that >  you don't forget. With CF we can't forget and let things slide. > >  I am so excited to 'see' all you guys!!! Start the mail coming. > >  Natalia > >  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 how cute!!!! > Hi Natalia > I am sorry to hear that you will be in Club Med for a long while. > You can visit my baby Zach anytime at www.dawsonland.net. > Sara > > > > Hi you guys. > > > > I think I might be here for a long long time. I am feeling so > beaten > > up and progress seems minimal. I had another attack this morning > when > > I could not breathe - it was scary but shorter and more controlled. > > So though I have the greatest support in the world from my family, > and > > you guys of course, I am in for the long haul here and it;s going > to be > > the fight of my life. It will be the greatest feeling ever to > walk out > > of here being able to breathe on my own. > > > > For now I have an idea. I want to get to know all of you guys. > So > > since I am in bed all the time and life seems to be passing my by, > I > > want you all to send me pictures of yourselves. Your kids, > families, > > all that. Who have CF, who don't. I need faces here. I think it > will > > be funny for me, and i would love to put together some sort of a > book. > > To start I will send mine via email here. > > > > If you are interested please send me your picture and a little > who's > > who info card to: > > > > Natalia Boguslawska > > 717 Eglinton Ave W, apt.507 > > Toronto, Ontario > > M5N 1C9 > > Canada > > > > Send them this way. My dad and can pick them up from my > place, > > better than trusting the hospital mail with pictures of all you > > beautiful people. > > > > > >  ---------- > > > > > > > > Here's me this summer. I was doing well. I'll send one out this > week > > from my digital camera, so the comparison could be made, and so > that > > you all don't think I'm kidding about being sickly. This was a > great > > summer. Plus Lance Armstrong said in one of his books that its a > good > > idea to take pictures of yourself when you are at your worst so > that > > you don't forget. With CF we can't forget and let things slide. > > > > I am so excited to 'see' all you guys!!! Start the mail coming. > > > > Natalia > > > > Quote Link to comment Share on other sites More sharing options...
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