Re: iel Q. Bolton

January 5, 2004

In a message dated 1/5/2004 4:12:40 AM Central Standard Time,

boguslawska@... writes:

Natalia

I am so glad to hear you are doing much better! I have a question for you.

Does you stomach hurt when you eat something even if you take enzymes? My girls

have been using the glutathione and when we were busy going to relatives for

the Christmas holidays there were two days that my girls didn't get the proper

amount of glutathione the next days they complain about there stomach more

then they every had. I was really worried that they were coming down with

something but they were eating and they did not have a temp. I was just

wondering if

that is something you fight with everyday. I know the nurse at school has even

said they do not complain about there stomach near as much. I was just

wondering if the glutathione was helping them more with there stomach. Thanks

Deb A

January 6, 2004

In a message dated 1/6/2004 3:12:38 PM Central Standard Time,

boguslawska@... writes:

Natalia

Know you helped me a lot. I think I will get my youngest to eat more small

meals. My oldest doesn't seem to have as much problems with eating like my

youngest. For the last 9 months she has not put much weight on at all. I think

only

2 pounds which is better then nothing but I worry. She seems to complain more

then my oldest. We have tried increasing her enzymes to but it doesn't seem

to help. I think I will try the smaller meals and see if that works. Thanks Deb

A

PS have you gotten our picture that I sent you?

January 6, 2004

OOP's I forgot to tell you what glutathione is. It the herb that

Hudson has done studies on and is trying to get the CF foundation to do more

lengthy studies on it. She has 3 boys that have been on it her oldest has been

on

it for 5 years and they have all been very well. We started taking it in Sept

and so far so good!! But I was amazed by the fact when we didn't take it how

there stomachs hurt more. Deb A

January 6, 2004

In a message dated 1/6/2004 4:33:30 PM Central Standard Time,

boguslawska@... writes:

and watch increasing enzymes. when I take too many, I have more

stomach problems. I know that many doctors say that there is an almost

infinite number that you can take with food - that's not true. I know

from months of altering my enzymes with specific meals, and I cam e to

some pretty obvious conclusions. There is an optimum, and you have to

find that. To little causes oil, too many causes constipation and pain.

On Tuesday, January 6, 2004, at 04:34 PM, gdattig5@... wrote

Oh Ok I have been increasing it thinking it might help. Now tonight she just

got done eating and is telling me that her back hurts?? It is on the right

side on her back. Any Ideas???? Deb A

January 6, 2004

I have had some bad stomach problems for a while now. They started

during high school. I was always not eating since I had so much

problems with bloating and constipation. When your stomach hurts all

the time, it's hard to have a good meal. After seeing tons of

gastro-specialits here in Toronto, I was prescribed mineral oil daily,

and go-lightly (that is spelled wrong, but it is this horrible

substance that clears you out, it's awful to drink. and you have to

take 2 gallons within a few hours. I hated it). So I took matters in

my own hands and started to experiment with foods etc. What I learned,

and what has stuck with me and worked really well since now I have

normal digestion, is I started to eat small meals. Basically eating

all day, but small amounts at a time. Same calorie intake, just no

huge meals. Restaurants kill me like that. I go and eat these huge

un-human portions, and then I can't go for the next week. The pain

from that is horrible. I recommend, and this is only what works for

me, is small meals and small enzyme intake at a time. So a couple

here, then the next hour a couple there. In fact I think that I take

in more calories this way, than eating 3 large meals a day.

I don't know what the glutathione is?

But I certainly fight with the digestion part of CF just as much as the

lung part. The worst part is that it always caused me to have issues

with food, since for along time food came with stomach pain, which

meant that I ate less than normal people should. Let alone people that

need high calorie and sugar diets. Then diabetes came along, and

that's a whole different ball game. But again, more restrictions on

food and diet. Insulin is great. But the whole drama around eating

makes me crazy.

Sorry, that probably did not help.

Natalia

On Monday, January 5, 2004, at 11:30 AM, gdattig5@... wrote:

> In a message dated 1/5/2004 4:12:40 AM Central Standard Time,

> boguslawska@... writes:

> Natalia

> I am so glad to hear you are doing much better! I have a question for

> you.

> Does you stomach hurt when you eat something even if you take enzymes?

> My girls

> have been using the glutathione and when we were busy going to

> relatives for

> the Christmas holidays there were two days that my girls didn't get

> the proper

> amount of glutathione the next days they complain about there stomach

> more

> then they every had. I was really worried that they were coming down

> with

> something but they were eating and they did not have a temp. I was

> just wondering if

> that is something you fight with everyday. I know the nurse at school

> has even

> said they do not complain about there stomach near as much. I was just

> wondering if the glutathione was helping them more with there stomach.

> Thanks Deb A

>

January 6, 2004

and watch increasing enzymes. when I take too many, I have more

stomach problems. I know that many doctors say that there is an almost

infinite number that you can take with food - that's not true. I know

from months of altering my enzymes with specific meals, and I cam e to

some pretty obvious conclusions. There is an optimum, and you have to

find that. To little causes oil, too many causes constipation and pain.

On Tuesday, January 6, 2004, at 04:34 PM, gdattig5@... wrote:

> In a message dated 1/6/2004 3:12:38 PM Central Standard Time,

> boguslawska@... writes:

> Natalia

> Know you helped me a lot. I think I will get my youngest to eat more

> small

> meals. My oldest doesn't seem to have as much problems with eating

> like my

> youngest. For the last 9 months she has not put much weight on at all.

> I think only

> 2 pounds which is better then nothing but I worry. She seems to

> complain more

> then my oldest. We have tried increasing her enzymes to but it doesn't

> seem

> to help. I think I will try the smaller meals and see if that works.

> Thanks Deb

> A

> PS have you gotten our picture that I sent you?

>

January 6, 2004

Thanks Natalia. I am going to forward this post to Toni, my

daughter. Abby, my grand daughter, has huge constipation issues.

Maybe they could try the small meals.

Thanks,

Gale

>

> > In a message dated 1/5/2004 4:12:40 AM Central Standard Time,

> > boguslawska@m... writes:

> > Natalia

> > I am so glad to hear you are doing much better! I have a question

for

> > you.

> > Does you stomach hurt when you eat something even if you take

enzymes?

> > My girls

> > have been using the glutathione and when we were busy going to

> > relatives for

> > the Christmas holidays there were two days that my girls didn't

get

> > the proper

> > amount of glutathione the next days they complain about there

stomach

> > more

> > then they every had. I was really worried that they were coming

down

> > with

> > something but they were eating and they did not have a temp. I

was

> > just wondering if

> > that is something you fight with everyday. I know the nurse at

school

> > has even

> > said they do not complain about there stomach near as much. I was

just

> > wondering if the glutathione was helping them more with there

stomach.

> > Thanks Deb A

> >

January 7, 2004

In a message dated 1/7/2004 9:44:40 AM Central Standard Time,

boguslawska@... writes:

I always got back pain when I was constipated. Consider that. I know

that some of the obstructions that I had, I had for months, sometimes a

year. When they finally took X-Rays they found obstructed bowel that

had been there for ever. That causes you not to really be constipated,

since food still squeezes through, but it causes pain in the back and

cramps, tummy hurts. Sometimes it is important to get that X-Ray done

and go home with this drink they give you to clean stuff out. It's an

afternoon on the toilet. Not so much fun. But the goal is that you

eventually excrete clear liquid, and you know that all is well in

there. It's no big deal to do, but to leave blockages in there can be

severe over time, not to mention painful.

It could be something totally different. But this one is easy to ask

about at Clinic, and easy to fix.

HMMM Neither one of my kids have had bowel blockage even at birth. Can you

still get blocked even though it has not been a problem before? Deb A

January 7, 2004

In a message dated 1/7/2004 10:32:14 AM Central Standard Time,

boguslawska@... writes:

Yeah.

I had perfect digestion until a certain age, and suddenly I had

horrible problems.

Something to consider. The digestive part of CF has to be monitored as

closely as the lungs. Expecially since usually it can be easy to solve

and can make things so much more comfortable. Plus it helps eating

issues that usually arises with CF

Natalia

But she is still having bowel movements. So can you still have some of a

blockage that can cause pain even though you are having bowel movement? Deb A

January 7, 2004