Re: Pictures, these will work

[Guest guest]

Natalia,

It was apparent to me in our cyberworld how beautiful of a person you

are on the inside, but I didnt expect you to be so lovely on the

outside, too:):)Thankyou so much for sharing not only your

pictures, but a part of who you are.Your qualities of strength and

determination are admirable.I'm thankful you are a part of this

group...your insight is priceless.

Patty, mom to TyTy,8wcf and 2 wocf

P.S.If its the prayers that have helped you, its the prayers I'll

continue to send for you(the light of many outshines the light of one)

Glad to hear of some improvement!!:)

> Here's me. Some pictures from the past few years.

>

> http://photos.yahoo.com/nboguslawska

>

> I know the ones that I sent before did not make it anywhere. So

keep

> yours coming , I want to see your faces.

> Today has been a great day. I have been off of oxygen for the

better

> part today. Still have a long way to go, but today some prayers

were

> answered. Small steps.

>

> Natalia

[Guest guest]

Awwwww, I think you are adorable--but then I am biased, having children

older than you! Love, n Rojas (my cf kid, 38, is cute, too, and blonde

(only one not dark) like my husband, who was blonde, but olive-skinned----

Pictures, these will work

Here's me. Some pictures from the past few years.

http://photos.yahoo.com/nboguslawska

I know the ones that I sent before did not make it anywhere. So keep

yours coming , I want to see your faces.

Today has been a great day. I have been off of oxygen for the better

part today. Still have a long way to go, but today some prayers were

answered. Small steps.

Natalia

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Dear Natalia,

I rarely post, but I have been compelled to write to thank you for sharing

so much of yourself with this group in such a truly honest and realistic

fashion.

You write (excellently, by the way) what you really feel and I have printed

" Natalia's Philosophy " for my son Jack, now almost 3 with CF, that I keep on

a tack board in his bedroom, next to his favorite night-time books. I read

your words silently nearly every night to myself and I have hopes that Jack

will not only be able to read your words, but to appreciate them when he is

a young adult.

Please know that you are a great source of inspiration to Jack and I....and

we humbly thank you and wish you the very speediest of recoveries! You can

do it... small steps.

My love,

Paige Bolton

PS-- I am printing pics of my little DUDE to send to you via regular post.

He is GORGEOUS and nobody believes that he has a " chronic illness " ...not now

anyway.

Pictures, these will work

> Here's me. Some pictures from the past few years.

>

> http://photos.yahoo.com/nboguslawska

>

> I know the ones that I sent before did not make it anywhere. So keep

> yours coming , I want to see your faces.

> Today has been a great day. I have been off of oxygen for the better

> part today. Still have a long way to go, but today some prayers were

> answered. Small steps.

>

> Natalia

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

>

[Guest guest]

What a lovely gal you are. It appears you are a French model :) thanks

so much for sharing.

Your a lovely gal . I am so glad your on the list as well. Bless you!!

LOVE & HUGS, GrandmomBE

Re: Pictures, these will work

Natalia,

It was apparent to me in our cyberworld how beautiful of a person you

are on the inside, but I didnt expect you to be so lovely on the

outside, too:):)Thankyou so much for sharing not only your

pictures, but a part of who you are.Your qualities of strength and

determination are admirable.I'm thankful you are a part of this

group...your insight is priceless.

Patty, mom to TyTy,8wcf and 2 wocf

P.S.If its the prayers that have helped you, its the prayers I'll

continue to send for you(the light of many outshines the light of one)

Glad to hear of some improvement!!:)

> Here's me. Some pictures from the past few years.

>

> http://photos.yahoo.com/nboguslawska

>

> I know the ones that I sent before did not make it anywhere. So

keep

> yours coming , I want to see your faces.

> Today has been a great day. I have been off of oxygen for the

better

> part today. Still have a long way to go, but today some prayers

were

> answered. Small steps.

>

> Natalia

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

No on ever believes that I have a chronic illness either, like many

people with CF, our illness is inside. And that is a blessing. Make

it work for him in the future. But don't let it fool you into

listening to friends and family about how you should treat him. He's

still a sick little boy, and CF is like the devil on his body.

I am so flattered by your words. It makes me so happy to know that

someone is listening, since right now I know that I am right about

certain things. What I am living through now cannot be denied or

questioned, and I have learned from it like you would not believe.

There are some things that I know now for sure, that I did not know a

month ago, and all of a sudden my life has changed and I can truly say

that I understand CF. I know what it is that I have inside me. I

also know what it takes to stay afloat. And it's more WW2 than Iraq,

meaning it's harder, larger and faster with more damage than I could

have ever thought. It grabs hold without easily recognizable signs

(though there are sides that we need to learn, like we learned to

recognize hatred in men like Hitler) and that the battle and the

aftermath are on in the same. I still cannot believe that this

happened to me. That it was me that could not breathe a few days ago,

that my mom and dad had to watch their 24 year old daughter suffocate.

This disease does not care about me, it needs to survive in my lungs

and body like I need it not to be there. So we fight. Right now I am

winning, and no matter what the outcome is for the next couple of

years, I have won by admitting to myself that it could happen to me,

and that it did, and that that does not make me less of a whole person,

it just makes me human. God made sure that I learned that this time,

that my suffering is not mine alone.

I'm going to go back to some sleeping. I feel good, but woke up to

feel stuff out. I am still a little scared to sleep. The last time

that I could not breathe was while sleeping. I woke up being drained

of breath. But I am getting my confidence back - confidence that my

body will not fail me.

Thanks for writing, Keep in touch and ask me anything you want about

this. The truth is that I am pretty interested in sharing the past few

months with everyone, slowly. They have been defining when it comes to

how I understand and treat CF. It gives me tremendous satisfaction

that someone is reading what I write - though these area just my

thoughts and opinions, I know that they are worth something.

Keep me updated on little Jack. I am sure that he's a looker, have you

ever seen an ugly CF kid. No way. God takes care of our beauty from

the inside out.

Natalia

[Guest guest]

Hi Natalia,

Enjoyed your pics. Your puppy is very cute! He looks a lot like the one we

lost, Jake. You might not have been on the list when that happened. we have a

new dog now, Lucy. She looks similar also but she is brown. I don't seem to

have any recent pics and our scanner is on the fritz. I will try and send a

card and if I can find any, pics of my kids. How much longer will you be

inpatient or do you have a clue?

love,

M

mom of Nick age 21 nocf , age 19 wcf, and Lucy age 1, very furry (VF)

[Guest guest]

Natalia,

I tried to email you pictures directly but they keep being rejected could you

please send me your email address?

I hope you are feeling a bit better today and that your spirits are up.

Thanks

Mom to Josh 9 wcf & Crohn's and 4 nocf but wants to do

therapy for

his brother.

[Guest guest]

In a message dated 1/6/2004 1:27:47 PM Central Standard Time,

jboguslawski@... writes:

natalia, i know that you will walk out of there. just have that gut

feeling. love you sis.

john

OHHH THAT IS SO SWEET!!! I can't image my brothers being that sweet to me!!!

Deb A

[Guest guest]

natalia, i know that you will walk out of there. just have that gut

feeling. love you sis.

john

Re: Pictures, these will work

,

My puppy is cute. She's almost 2 years now, and the cutest dog ever.

I love her. She lives with my paretns since I can't really take care

of her by myself.

I don't know how long I will be in here for. It will be a long time

I'm sure. I keep thinking, here I go, get me out. But then they come

in and talk about long term oxygen, and home care and stuff that I

cannot deal with that yet. I am still thiniking, I am going to walk

out of here 100% and be able to live the same life that I did before,

until the next exasperation.

My guess, is 3 more weeks. I hate saying that, but I think that's what

it will take. I don't know.

Natalia

On Monday, January 5, 2004, at 02:35 PM, Morey wrote:

> Hi Natalia,

> Enjoyed your pics. Your puppy is very cute!  He looks a lot like the

> one we lost, Jake. You might not have been on the list when that

> happened.  we have a new dog now, Lucy.  She looks similar also but

> she is brown.  I don't seem to have any recent pics and our scanner is

> on the fritz.  I will try and send a card and if I can find any, pics

> of my kids.  How much longer will you be inpatient or do you have a

> clue?

>

> love,

> M

> mom of Nick age 21 nocf , age 19 wcf, and  Lucy age 1, very

> furry (VF)

>

>

>

>

[Guest guest]

,

My puppy is cute. She's almost 2 years now, and the cutest dog ever.

I love her. She lives with my paretns since I can't really take care

of her by myself.

I don't know how long I will be in here for. It will be a long time

I'm sure. I keep thinking, here I go, get me out. But then they come

in and talk about long term oxygen, and home care and stuff that I

cannot deal with that yet. I am still thiniking, I am going to walk

out of here 100% and be able to live the same life that I did before,

until the next exasperation.

My guess, is 3 more weeks. I hate saying that, but I think that's what

it will take. I don't know.

Natalia

On Monday, January 5, 2004, at 02:35 PM, Morey wrote:

> Hi Natalia,

> Enjoyed your pics. Your puppy is very cute!  He looks a lot like the

> one we lost, Jake. You might not have been on the list when that

> happened.  we have a new dog now, Lucy.  She looks similar also but

> she is brown.  I don't seem to have any recent pics and our scanner is

> on the fritz.  I will try and send a card and if I can find any, pics

> of my kids.  How much longer will you be inpatient or do you have a

> clue?

>

> love,

> M

> mom of Nick age 21 nocf , age 19 wcf, and  Lucy age 1, very

> furry (VF)

>

>

>

>

[Guest guest]

Thanks for being there Patty.

You guys mean so much to me. It's funny since when I joined this

group, I did not know what to expect. Expecially since I am the one

with CF, I am not a parent. But now I don't know what I did without

you guys.

> Natalia,

> It was apparent to me in our cyberworld how beautiful of a person you

> are on the inside, but I didnt expect you to be so lovely on the

> outside, too:):)Thankyou so much for sharing not only your

> pictures, but a part of who you are.Your qualities of strength and

> determination are admirable.I'm thankful you are a part of this

> group...your insight is priceless.

>

> Patty, mom to TyTy,8wcf and 2 wocf

>

> P.S.If its the prayers that have helped you, its the prayers I'll

> continue to send for you(the light of many outshines the light of one)

> Glad to hear of some improvement!!:)

>

>

> > Here's me.  Some pictures from the past few years.

> >

> > http://photos.yahoo.com/nboguslawska

> >

> > I know the ones that I sent before did not make it anywhere.  So

> keep

> > yours coming , I want to see your faces.

> > Today has been a great day.  I have been off of oxygen for the

> better

> > part today.  Still have a long way to go, but today some prayers

> were

> > answered.  Small steps.

> >

> > Natalia

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> ------------------------------------

>

>

>

<image.tiff>

>

>

<image.tiff>

>

>

[Guest guest]

My email address:

boguslawska@...

Natalia

On Tuesday, January 6, 2004, at 02:49 PM, Joshscure@... wrote:

> Natalia,

>

> I tried to email you pictures directly but they keep being rejected

> could you

> please send me your email address?

>

> I hope you are feeling a bit better today and that your spirits are up.

>

> Thanks

>

>

>

>

> Mom to Josh 9 wcf & Crohn's and 4 nocf but wants to do

> therapy for

> his brother.

>

>

>