Re: Re: Positve Fat study - Deb

[Guest guest]

In a message dated 1/5/2004 10:41:02 PM Central Standard Time,

gale.harris@... writes:

Did your girls have any digestion issues prior to diagnosis? Do they

need enzymes? If so, how did the doctors explain thier digestion

issues prior to diagnosis?

Gale

Gale they do take enzymes and their stools look fine but they still complain

of there stomach hurting. But since we started the glutathione it seems to be

better. Deb A

[Guest guest]

Gale, this an interesting question for all of us wcf, and our kids wcf.

Thank you, n

Re: Positve Fat study - Deb

Did your girls have any digestion issues prior to diagnosis? Do they

need enzymes? If so, how did the doctors explain thier digestion

issues prior to diagnosis?

Gale

> In a message dated 1/3/2004 4:44:09 PM Central Standard Time,

> heritage2akrdmr@a... writes:

> I am a mother of a 6 month old girl who has had diarrhea for six

> weeks an initial test for fat in her stool was positive and they

are

> noe checking her for CF..she is a very lite eater and slow to gain

> weight but is still following her same growth curve, she has had

> congestion for 6 weeks also. My question is has anyone else been

> diagnosed like this? The doctor also said the test may not show CF

> because of her age..is there any other way to tell? Thnk

> BECAUSE OF HER AGE???? My daughter was 6 years old when she was

diagnosed and

> my youngest was a year old. If your doctor told you that he can't

make a

> diagnoses because of her age GET A NEW DOCTOR!!!!! My 6 year old

daughter (at the

> time she is now 11) had polyps in her nose that is how we were

diagnosed. She

> had the runny stools and stuffed up nose. She did pretty will with

her weight

> it was more sinuses is how my daughters were diagnosed. You can

have a DNA

> test done too if the sweat test comes back negative. Deb A

>

>

>

[Guest guest]

In a message dated 1/6/2004 12:08:29 AM Central Standard Time,

gale.harris@... writes:

Deb,

I hope that you don't mind me asking, but didn't they have really

loose stools prior to the enzymes? Kind of like constant diarhea?

I kept Abby over night last Friday. She sleeps with me. She woke up

several times during the night, crying with stomach pain. Poor

baby. The next morning, she pooped three times before noon. Really

runny, then big and firm, then really runny again. I can't make any

sense of this. Too many enzymes? Too few enzymes??

Gale

Did she eat something before she took the enzymes? I know sometimes that

happens to my girls but I think it is because the sneak things to eat without

taking their enzymes.

My girls did have runny stools some of the time but my oldest at a year old

also had a shunt put in that drained into her abdomen so I thought that is what

was causing the runny stools. And our Ped. doctor said it was because I gave

them to much fruit juice to drink. My youngest was only a 1 year old when she

was diagnosed and I remember telling my husband I think Natalynn body system

is a lot like 's. So I never put two and two together until the polyps.

Deb A

[Guest guest]

Deb--

I mean were the stomach pains constant? frequent bowel movements?

I am supposed to submit a stool sample for (11) and am having difficulty

obtaining it. My 7 year old tease him about pooping in a cup so is

against it! Is there any other way to test?

Damn.........

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

[Guest guest]

Sure; put small bucket in the toilet and do not tell the other kids and that way

he can just sit on the toilet seat and to it and you can race in abd renive saud

bucket, claiming that you sure hate cleaning toilets, and then put some in the

lab container or equivalent, and dump it back down the toilet--well, that is

what I did--helps to have the other kids occupied with a video game or TV!

Love and luck, n--of course you do not have to tell the kid where his

poop is headed!

Re: Re: Positve Fat study - Deb

Deb--

I mean were the stomach pains constant? frequent bowel movements?

I am supposed to submit a stool sample for (11) and am having difficulty

obtaining it. My 7 year old tease him about pooping in a cup so is

against it! Is there any other way to test?

Damn.........

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

[Guest guest]

In a message dated 1/6/2004 9:03:38 PM Central Standard Time,

ROSEMARY3FOR3wCF@... writes:

Deb--

I mean were the stomach pains constant? frequent bowel movements?

Ya the bowel movements are frequent. She usually tells me first thing in the

morning but I figure they have to be hunger pains but she will also tell mw

after she has eaten too. Deb A