Re: Re: Too old at 9 months corrected??!

[Guest guest]

Hi,

I agree! We got our Starband at 12 months, wore it a year, and saw

significant correction, although it was very slow. My son had

mild/moderate plagio. There is still some flattening, but it is

borderline normal. Our son was past 20 months before he took the band

off.

-Kathy, mom to 24 months

christineashok wrote:

You can still see a lot of change after 1 yr - especially since

your son is a premie. Find another doctor who is more knowledgeable

about banding. It sounds like this guy takes only the easiest cases.

Hanger can be good if the ortho is experience. Some people also travel

to get a band. We were lucky to have a good provider close by.

-christine

sydney, 4yrs, starband grad

>

> I live in Nashville TN and just saw Dr. at Vanderbilt

Childrens Hospital. (We don't have a docband or starband office here.)

made us get a cat scan before we could even see him --which we

did and there were no premature fusions. But now at our office visit,

he told my husband and me that my son was too old to get a helmet. My

son is 1yr actual and 9months corrected. I was pretty shocked. (Most

people, including med professionals, said that as long as we had a Rx

and a clean CT scan, he'd helmet in even the mildest of cases --and I

believe our case, which is plagio, is closer to the moderate rating)

>

> Anyway, he gave two reasons for refusing us, 1) that my son was

old enough to keep taking the helmet off, and 2)that the studies he

relies on and his own experince is that the skull plates have done

their majority of growing during that first year of life, so the helmet

really won't impact its shape to any significant degree. I asked if we

could still do it knowing and being okay with whatever minimal changes

we could get, and he pretty much just said that he won't do it for us.

Anyone have any conversations like this where you went? Did you have to

conjole the person into agreeing to do it? Did any of you have problems

with your child taking the helmet off all the time?

>

> We do have a Hangar office here in Nashville so they'll probably

be our next step. I'm just so shocked over the Vandy appointment that

I'm still trying to get my bearings. Thanks for any feedback.

> Carla

>

[Guest guest]

Hi Kathy,so is done with his band? How did he do when it was time to stop? Did you have to do it gradually?

Good Luck with the NCR , Tampa, FL, 29 mos, starband grad Mar 2010

Plagiocephaly From: kathylorajensen@...Date: Sat, 5 Jun 2010 08:45:17 -0700Subject: Re: Re: Too old at 9 months corrected??!

Hi,I agree! We got our Starband at 12 months, wore it a year, and saw significant correction, although it was very slow. My son had mild/moderate plagio. There is still some flattening, but it is borderline normal. Our son was past 20 months before he took the band off. -Kathy, mom to 24 monthschristineashok wrote: You can still see a lot of change after 1 yr - especially since your son is a premie. Find another doctor who is more knowledgeable about banding. It sounds like this guy takes only the easiest cases. Hanger can be good if the ortho is experience. Some people also travel to get a band. We were lucky to have a good provider close by.-christinesydney, 4yrs, starband grad>> I live in Nashville TN and just saw Dr. at Vanderbilt Childrens Hospital. (We don't have a docband or starband office here.) made us get a cat scan before we could even see him --which we did and there were no premature fusions. But now at our office visit, he told my husband and me that my son was too old to get a helmet. My son is 1yr actual and 9months corrected. I was pretty shocked. (Most people, including med professionals, said that as long as we had a Rx and a clean CT scan, he'd helmet in even the mildest of cases --and I believe our case, which is plagio, is closer to the moderate rating)> > Anyway, he gave two reasons for refusing us, 1) that my son was old enough to keep taking the helmet off, and 2)that the studies he relies on and his own experince is that the skull plates have done their majority of growing during that first year of life, so the helmet really won't impact its shape to any significant degree. I asked if we could still do it knowing and being okay with whatever minimal changes we could get, and he pretty much just said that he won't do it for us. Anyone have any conversations like this where you went? Did you have to conjole the person into agreeing to do it? Did any of you have problems with your child taking the helmet off all the time?> > We do have a Hangar office here in Nashville so they'll probably be our next step. I'm just so shocked over the Vandy appointment that I'm still trying to get my bearings. Thanks for any feedback.> Carla>

[Guest guest]

I heard the same thing from a neurosurgeon when my daughter was 13 months old. Of course, he also told me that it would still round out on its own. This contradicted what my ped had told me. Luckily, I pushed the issue and asked my ped for more information and she sent me to another specialist.

I agree with everyone else. Please get to your local Hanger office as you stated that you would. Even if your baby wasn't a premie, he wouldn't be too old. My daughter was almost 15 months when banded and she got some improvement. Take a look at her pictures here:

http://www.flickr.com/photos/11835424@N06/page3/

This is the page that has the before and after pictures on it.

So, yes, age does matter, but it isn't too late. This doctor is giving you his opinion, but there are others out there who have other opinions. Most bands are FDA approved for up until 18 months.

, mom to , 2 3/4 years

STARband grad May 2009

Chiro and CST

land Re: Re: Too old at 9 months corrected??!

Hi,I agree! We got our Starband at 12 months, wore it a year, and saw significant correction, although it was very slow. My son had mild/moderate plagio. There is still some flattening, but it is borderline normal. Our son was past 20 months before he took the band off. -Kathy, mom to 24 monthschristineashok wrote:

You can still see a lot of change after 1 yr - especially since your son is a premie. Find another doctor who is more knowledgeable about banding. It sounds like this guy takes only the easiest cases. Hanger can be good if the ortho is experience. Some people also travel to get a band. We were lucky to have a good provider close by.-christinesydney, 4yrs, starband grad>> I live in Nashville TN and just saw Dr. at Vanderbilt Childrens Hospital. (We don't have a docband or starband office here.) made us get a cat scan before we could even see him --which we did and there were no premature fusions. But now at our office visit, he told my husband and me that my son was too old to get a helmet. My son is 1yr actual and 9months corrected. I was pretty shocked. (Most people, including med professionals, said that as long as we had a Rx and a clean CT scan, he'd helmet in even the mildest of cases --and I believe our case, which is plagio, is closer to the moderate rating)> > Anyway, he gave two reasons for refusing us, 1) that my son was old enough to keep taking the helmet off, and 2)that the studies he relies on and his own experince is that the skull plates have done their majority of growing during that first year of life, so the helmet really won't impact its shape to any significant degree. I asked if we could still do it knowing and being okay with whatever minimal changes we could get, and he pretty much just said that he won't do it for us. Anyone have any conversations like this where you went? Did you have to conjole the person into agreeing to do it? Did any of you have problems with your child taking the helmet off all the time?> > We do have a Hangar office here in Nashville so they'll probably be our next step. I'm just so shocked over the Vandy appointment that I'm still trying to get my bearings. Thanks for any feedback.> Carla>

[Guest guest]

Hi,

Actually, he still wears it!  Dr. Eon saw the helmet and was okay with

it.  Over the past couple months, I can still see a little improvement,

and possibly still from the helmet.  My husband said if it was his

choice, he would probably take it off this month, but he is okay with

going longer.  Right now I'm not ready to take it off, since I'm still

having troubles dealing with seeing the plagio on my older son after

his shorter haircut.  Our ortho said can wear the helmet until he

outgrows it.  I didn't really believe it at first, but we have another

appointment for an adjustment in a few weeks without a scan. 

Best,

Kathy, mom to 24 months, and 5.5 years

Lulei wrote:

 

Hi Kathy,

so is done with his band? How did he do when it was time to stop?

Did you have to do it gradually?

 

Good Luck with the NCR

 

, Tampa, FL

, 29 mos, starband grad Mar 2010

 

 

Plagiocephaly

From: kathylorajensengmail

Date: Sat, 5 Jun 2010 08:45:17 -0700

Subject: Re: Re: Too old at 9 months corrected??!

 

Hi,

I agree!  We got our Starband at 12 months, wore it a year, and saw

significant correction, although it was very slow.  My son had

mild/moderate plagio.  There is still some flattening, but it is

borderline normal.  Our son was past 20 months before he took the band

off. 

-Kathy, mom to 24 months

christineashok wrote:

 

You can still see a lot of change after 1 yr

- especially since your son is a premie. Find another doctor who is

more knowledgeable about banding. It sounds like this guy takes only

the easiest cases. Hanger can be good if the ortho is experience. Some

people also travel to get a band. We were lucky to have a good provider

close by.

-christine

sydney, 4yrs, starband grad

>

> I live in Nashville TN and just saw Dr. at Vanderbilt

Childrens Hospital. (We don't have a docband or starband office here.)

made us get a cat scan before we could even see him --which we

did and there were no premature fusions. But now at our office visit,

he told my husband and me that my son was too old to get a helmet. My

son is 1yr actual and 9months corrected. I was pretty shocked. (Most

people, including med professionals, said that as long as we had a Rx

and a clean CT scan, he'd helmet in even the mildest of cases --and I

believe our case, which is plagio, is closer to the moderate rating)

>

> Anyway, he gave two reasons for refusing us, 1) that my son was

old enough to keep taking the helmet off, and 2)that the studies he

relies on and his own experince is that the skull plates have done

their majority of growing during that first year of life, so the helmet

really won't impact its shape to any significant degree. I asked if we

could still do it knowing and being okay with whatever minimal changes

we could get, and he pretty much just said that he won't do it for us.

Anyone have any conversations like this where you went? Did you have to

conjole the person into agreeing to do it? Did any of you have problems

with your child taking the helmet off all the time?

>

> We do have a Hangar office here in Nashville so they'll probably

be our next step. I'm just so shocked over the Vandy appointment that

I'm still trying to get my bearings. Thanks for any feedback.

> Carla

>

[Guest guest]

Carla,You should definitely keep pushing if you think your child needs the help. I had to push my daughter 's ped and she sent us to a neurosurgeon, who recommended banding. measured 12-13mm(2 helmet provider measurements) and 1.45 cm(neurosurgeon measurements) pre-treatment. She was banded two days before she turned 8 months on March 5th. Her most recent measurements are .25cm(May 17th neurosurgeon's measurements) and May 24th(4mm helmet provider's measurements.) The neurosurgeon(Dr. Suresh Magge/Children's National Medical Center/DC--he is fantastic!) released her and said that he considers her measurements to be within normal range. When I asked him at 's initial appt. if she was too old to get good results from banding, he assured me that she was the age at which children

are typically banded(skulls are harder and won't correct on their own plus less chance of regression if they are a little older.) is still in her helmet(14 weeks,) but has her next appt. June 21st and I suspect she will be out of it then. She looks great and I am so glad that I pushed the issue.Bottom line: Yes, it is VERY POSSIBLE to get great correction in an older baby despite what some may say. Keep pushing. Only YOU can determine(after doing your own research) what is best for you child.Best of luck!-AmyFrom: <melanie.watson@...>Plagiocephaly Sent: Sat, June 5, 2010 5:34:28 PMSubject: Re: Re: Too old at 9 months corrected??!

I heard the same thing from a neurosurgeon when my daughter was 13 months old. Of course, he also told me that it would still round out on its own. This contradicted what my ped had told me. Luckily, I pushed the issue and asked my ped for more information and she sent me to another specialist.

I agree with everyone else. Please get to your local Hanger office as you stated that you would. Even if your baby wasn't a premie, he wouldn't be too old. My daughter was almost 15 months when banded and she got some improvement. Take a look at her pictures here:

http://www.flickr. com/photos/ 11835424@ N06/page3/

This is the page that has the before and after pictures on it.

So, yes, age does matter, but it isn't too late. This doctor is giving you his opinion, but there are others out there who have other opinions. Most bands are FDA approved for up until 18 months.

, mom to , 2 3/4 years

STARband grad May 2009

Chiro and CST

land Re: Re: Too old at 9 months corrected??!

Hi,I agree! We got our Starband at 12 months, wore it a year, and saw significant correction, although it was very slow. My son had mild/moderate plagio. There is still some flattening, but it is borderline normal. Our son was past 20 months before he took the band off. -Kathy, mom to 24 monthschristineashok wrote:

You can still see a lot of change after 1 yr - especially since your son is a premie. Find another doctor who is more knowledgeable about banding. It sounds like this guy takes only the easiest cases. Hanger can be good if the ortho is experience. Some people also travel to get a band. We were lucky to have a good provider close by.-christinesydney, 4yrs, starband grad>> I live in Nashville TN and just saw Dr. at Vanderbilt Childrens Hospital. (We don't have a docband or starband office here.) made us get a cat scan before we could even see him --which we did and there were no

premature fusions. But now at our office visit, he told my husband and me that my son was too old to get a helmet. My son is 1yr actual and 9months corrected. I was pretty shocked. (Most people, including med professionals, said that as long as we had a Rx and a clean CT scan, he'd helmet in even the mildest of cases --and I believe our case, which is plagio, is closer to the moderate rating)> > Anyway, he gave two reasons for refusing us, 1) that my son was old enough to keep taking the helmet off, and 2)that the studies he relies on and his own experince is that the skull plates have done their majority of growing during that first year of life, so the helmet really won't impact its shape to any significant degree. I asked if we could still do it knowing and being okay with whatever minimal changes we could get, and he pretty much just said that he won't do it for us. Anyone have any conversations like this where you went? Did you have

to conjole the person into agreeing to do it? Did any of you have problems with your child taking the helmet off all the time?> > We do have a Hangar office here in Nashville so they'll probably be our next step. I'm just so shocked over the Vandy appointment that I'm still trying to get my bearings. Thanks for any feedback.> Carla>