Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 Doc, I was just reading your post about your wife and her frustration with the uncertainties of pancreatitis. I understand. Totally. My son was diagnosed when he was 7. We kinda " fought the system " for a few months, but with the great advice we received from folks on this board, we found a way to live a fairly " normal " life in spite of the pancreas problems. When I was diagnosed 3 years ago, it was just another folder to pack. What I mean is,... (and KIMBER, jump in here anytime...) at the suggestion and guidance of Kimber and Karyn, they explained how to just take with you a copy of a few things. I will try to list a few of them, but I'm sure someone else can jump in here and give you a more accurate list. First off, I either check online, or use the phone book and locate the nearest hospital emergency room from where we're going to be staying. This way, we are able to rehearse how, who, and which way...long before it might become an issue. Then, upon arriving at a hospital in God knows what podunk town our camping has led us to....we show them our folder of our most recent labs...a statement from our primary MD and one from our primary specialist. We have a list of any meds. A list of pain meds that work, ones we know don't work. We know and practice relaxation techniques.....this one has proven invaluable, as my husband is a Scoutmaster and our son is a 1st Class Scout. We camp anywhere, anytime, in any weather~ Sometimes a hospital ER can be hours away.............. in the mud........LOL Maybe it's that old Scout motto " Be prepared " . It seems when you PLAN for the worst case scenario, then if it DOES happen.....it's not in control, you are. Just suggestions. Tell your wife to fight it, but don't allow it to control her quality of life. Take control of it... learn to manage it.....and lean on the folks on this board whenever needed. (They're amazing!) Donna Womack Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
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