Good news or bad news, I'm not sure

August 27, 2004

I spoke with Dr. yesterday after he had spoken with the nurse

for the doc in Cinci. Yes the nurse, the doc didn't talk to him.

Well she told him that the slides of my resected panc head that they

had sent down did not indicate pancreatitis to the surgical

pathologist there. The pathologist here saw the slides and

documented extensive cellular changes consistent with cp, and so

on. I read the report some time ago. said they must have

gotten the wrong slides.

sounded very agitated by that because he held my panc in his

hands and said it is " fibrotic " . He going to send the slides to the

head of the path dept here for futher analysis. Even with the

slides, all the ercps I haave had show increasing damage through out

the entire ductal system and that it progessed rapidly. I still

dont understand this doc in Cinci.

If I dont need this surgery, that is fabulous. But if I do need it,

lets get this show on the road. As rapidly as my panc has

deteriorated, I dont want to risks loosing any valuable islet

cells. I did mention to him going to another institution, Dr.

Sutherland. I will see next week in clinic so I guess we will

discuss all that this then. does not seem like the type of

person who would argue a point but I sure do wish he would this

time. I wish he would fight like hell for me, but I dont see him

doing that. I dont hink he is weak or timid, goodness he is the

head of the entire department at MUSC and thats huge. I just dont

see him as the type that would go to the mat for me.

So thats the latest. I'm still very depressed and cry and sleep

most of the time. I feel completely useless. I hope I get over

this soon. I just dont know how much more I can take. Sorry for

the gloomey gus crap, but I cant even force a smile anymore.

I hope everybody is doing well and I am so glad your appt with

Lehman went so well. I knew it would. I appreciate everybodies

support and kind words. You have no idea how much that means to me.

With love,

Chrissy

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