Re: Positve Fat study - Deb

[Guest guest]

Did your girls have any digestion issues prior to diagnosis? Do they

need enzymes? If so, how did the doctors explain thier digestion

issues prior to diagnosis?

Gale

> In a message dated 1/3/2004 4:44:09 PM Central Standard Time,

> heritage2akrdmr@a... writes:

> I am a mother of a 6 month old girl who has had diarrhea for six

> weeks an initial test for fat in her stool was positive and they

are

> noe checking her for CF..she is a very lite eater and slow to gain

> weight but is still following her same growth curve, she has had

> congestion for 6 weeks also. My question is has anyone else been

> diagnosed like this? The doctor also said the test may not show CF

> because of her age..is there any other way to tell? Thnk

> BECAUSE OF HER AGE???? My daughter was 6 years old when she was

diagnosed and

> my youngest was a year old. If your doctor told you that he can't

make a

> diagnoses because of her age GET A NEW DOCTOR!!!!! My 6 year old

daughter (at the

> time she is now 11) had polyps in her nose that is how we were

diagnosed. She

> had the runny stools and stuffed up nose. She did pretty will with

her weight

> it was more sinuses is how my daughters were diagnosed. You can

have a DNA

> test done too if the sweat test comes back negative. Deb A

>

>

>

[Guest guest]

Deb,

I hope that you don't mind me asking, but didn't they have really

loose stools prior to the enzymes? Kind of like constant diarhea?

I kept Abby over night last Friday. She sleeps with me. She woke up

several times during the night, crying with stomach pain. Poor

baby. The next morning, she pooped three times before noon. Really

runny, then big and firm, then really runny again. I can't make any

sense of this. Too many enzymes? Too few enzymes??

Gale

Grandma to Abby (2 yo wcf)

> In a message dated 1/5/2004 10:41:02 PM Central Standard Time,

> gale.harris@h... writes:

> Did your girls have any digestion issues prior to diagnosis? Do

they

> need enzymes? If so, how did the doctors explain thier digestion

> issues prior to diagnosis?

>

> Gale

> Gale they do take enzymes and their stools look fine but they still

complain

> of there stomach hurting. But since we started the glutathione it

seems to be

> better. Deb A

>

>

>

[Guest guest]

- My 7 year old tease him about pooping in a cup so is

> against it! Is there any other way to test?

>

Our CF doctor suggested we put saran wray under the back of the

seat when he felt the urge because it is very difficult to poop in a

cup so to speak.

jan