RE: FW: [CFSupport] CFer on MTV's Real World (premier e tonight)

[Guest guest]

We knew what you meant. You said it all! How are you feeling today

Natalia?

They should have you on that show. You are so much prettier than that girl

was anyway.

Plus!!! Pretty is as pretty does right! Maybe something good will come of

this show. If nothing else get the work Cystic Fibrosis out to the younger

people and maybe they will want to find out more about it. Hope you have a

great day and to all on this list.

Tina W.

Re: FW: [CFSupport] CFer on MTV's Real World

(premiere tonight)

I meant CARMA, not camera......ahh typing

On Wednesday, January 7, 2004, at 10:38 AM, Natalia Boguslawska wrote:

> More reason to not watch TV everybody. The way that this sounds - like

> all reality TV - is that it was meant to shock and to even upset

> people. I hate that about TV.

> My opinion about smoking in general is clear. And I have stayed away

> from saying anything on this list since I cannot be nice about it.

> Smoking makes me sick. I think that there is something terribly wrong

> with people that do it. Especially once aware of CF and the suffering

> that people with it go through, and is disrespectful to anyone ill that

> has to go through life limited. I believe in carema, and smoking is

> opening yourself for a lot of distress. It will come back at you twice

> fold. i lead my life (or at least I try to) in a manner that allows me

> to open up to others pain. So when I am doing something not that good

> either for me or someone else, I think about my right to do that. I

> have no right to screw up my life, while there are people in this world

> every second going through agony. I simply don't have that right. I

> believe people don't have a moral right to smoke.

> As for this girl on TV. God, what a case. I feel so sorry for her.

> She must be in so much pain to put herself in a position like that.

> That she looked stupid, and pathetic, and sad is not only her fault.

> How can MTV use a sick person who is confused like that. It's like

> taking a camera into a burning house and taping a girl trying to get

> out. Watching her bump into walls and get burned, and finally perhaps

> getting out, perhaps not. And all of us saying, god she should have

> had a plan how to get out. She should be smarter. I know how stupid I

> was in university (not always, but I had my moments) and thank god no

> one taped me abusing my body.

> Sometimes the expectations on us CF people is to be super human. All

> the other girls and guys on that show were probably doing the same

> thing, getting drunk and smoking. But her we expect to be perfect. To

> not have to cope with being a teen/young adult. No one takes into

> account being sick is also traumatic and sometimes the wrong decisions

> are made out of grief and loss of your own self.

> It's so sad, I'm happy that I did not see it. I would want to reach

> out to her. I wish this girl knew how many people she touched by her

> CF.

>

> Natalia

> On Wednesday, January 7, 2004, at 08:10 AM, redsdennys@... wrote:

>

>> I saw the show and she was a disgrace. It's good that CF was mention

>> but the

>> way she acted it was horrible. She smokes and drinks. She got drunk

>> and went

>> to bed and had a cough episode and she threw up all over, Her

>> roommates mention

>> that they didn't know too much about the disease but they knew it was

>> fatal

>> because ie's brother was 6 when he died of CF. It's good to be

>> mention CF

>> but if she is trying to commit suicide on national TV because of cf.

>> Then we

>> don't need that kind of publicity.The show is on MTV called Real world

>> .Tues at

>> 9.00 central 10 eastern.

>> Debbie I. 's mom 4 w/cf

>>

>>

>>

[Guest guest]

Thanks. I am working on a good day today. Both emotionally and

physically. I'm working on not going stir crazy in this little room.

On Wednesday, January 7, 2004, at 10:31 AM, Woosley, Tina wrote:

> We knew what you meant. You said it all! How are you feeling today

> Natalia?

> They should have you on that show. You are so much prettier than that

> girl

> was anyway.

> Plus!!! Pretty is as pretty does right! Maybe something good will

> come of

> this show. If nothing else get the work Cystic Fibrosis out to the

> younger

> people and maybe they will want to find out more about it. Hope you

> have a

> great day and to all on this list.

>

> Tina W.

>

> Re: FW: [CFSupport] CFer on MTV's Real World

> (premiere tonight)

>

>

> I meant CARMA, not camera......ahh typing

> On Wednesday, January 7, 2004, at 10:38 AM, Natalia Boguslawska wrote:

>

>> More reason to not watch TV everybody. The way that this sounds -

>> like

>> all reality TV - is that it was meant to shock and to even upset

>> people. I hate that about TV.

>> My opinion about smoking in general is clear. And I have stayed away

>> from saying anything on this list since I cannot be nice about it.

>> Smoking makes me sick. I think that there is something terribly wrong

>> with people that do it. Especially once aware of CF and the suffering

>> that people with it go through, and is disrespectful to anyone ill

>> that

>> has to go through life limited. I believe in carema, and smoking is

>> opening yourself for a lot of distress. It will come back at you

>> twice

>> fold. i lead my life (or at least I try to) in a manner that allows

>> me

>> to open up to others pain. So when I am doing something not that good

>> either for me or someone else, I think about my right to do that. I

>> have no right to screw up my life, while there are people in this

>> world

>> every second going through agony. I simply don't have that right. I

>> believe people don't have a moral right to smoke.

>> As for this girl on TV. God, what a case. I feel so sorry for her.

>> She must be in so much pain to put herself in a position like that.

>> That she looked stupid, and pathetic, and sad is not only her fault.

>> How can MTV use a sick person who is confused like that. It's like

>> taking a camera into a burning house and taping a girl trying to get

>> out. Watching her bump into walls and get burned, and finally perhaps

>> getting out, perhaps not. And all of us saying, god she should have

>> had a plan how to get out. She should be smarter. I know how stupid

>> I

>> was in university (not always, but I had my moments) and thank god no

>> one taped me abusing my body.

>> Sometimes the expectations on us CF people is to be super human. All

>> the other girls and guys on that show were probably doing the same

>> thing, getting drunk and smoking. But her we expect to be perfect.

>> To

>> not have to cope with being a teen/young adult. No one takes into

>> account being sick is also traumatic and sometimes the wrong decisions

>> are made out of grief and loss of your own self.

>> It's so sad, I'm happy that I did not see it. I would want to reach

>> out to her. I wish this girl knew how many people she touched by her

>> CF.

>>

>> Natalia

>> On Wednesday, January 7, 2004, at 08:10 AM, redsdennys@... wrote:

>>

>>> I saw the show and she was a disgrace. It's good that CF was mention

>>> but the

>>> way she acted it was horrible. She smokes and drinks. She got drunk

>>> and went

>>> to bed and had a cough episode and she threw up all over, Her

>>> roommates mention

>>> that they didn't know too much about the disease but they knew it was

>>> fatal

>>> because ie's brother was 6 when he died of CF. It's good to be

>>> mention CF

>>> but if she is trying to commit suicide on national TV because of cf.

>>> Then we

>>> don't need that kind of publicity.The show is on MTV called Real

>>> world

>>> .Tues at

>>> 9.00 central 10 eastern.

>>> Debbie I. 's mom 4 w/cf

>>>

>>>

>>>