Co Q10

[Guest guest]

Thanks Mark.

I think it has a great meaning to it. It is my favorite verse, and I try to

follow it everyday.

I printed off a lot of information on the website. It gave me a lot to look at.

I changed my GI doctor so I can get in quicker to September 9. Is there

anything I can do in the meantime? I was also wanting to find out more on the

CoQ10? I was wondering if it is a good idea to take and if there are other meds

to take such as vitamins.

Hope this finds you and yours well.

Loretta Greer

Tennessee

Have a good day and God Bless!

Mt 17:20 -

And Jesus said unto them, Because of your unbelief: for verily I say unto you,

If ye have faith as a grain of mustard seed, ye shall say unto this mountain,

Remove hence to yonder place; and it shall remove; and nothing shall be

impossible unto you

[Guest guest]

Barbara- does PF affect Short term memory? If so I just have thought I was stupid or getting altzhiemer's.; Joyce R AZ birds

Barbara

I really can't tell because I have two dieases that affect short term memory. Sleep apnea and PF. COQ2 can't make up for lack of oxgyen. Maybe someone else can shed some light however we all have PF.

Gale

From: Barbara McD <bamny (AT) yahoo (DOT) com>To: Breathe-Support Sent: Sat, December 12, 2009 3:22:00 PMSubject: Re: CO Q10

Gale:

In the little bit of research I did read, COQ10 was sometimes prescribed for heart-related illnesses--with good effect. Glad that it worked for you in that respect. By any chance, have you noticed any difference in your memory since you started taking it?

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Attitude is everything.

From: Gale More <gale.more (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sat, December 12, 2009 4:12:33 PMSubject: Re: CO Q10

Barbara,

Let me tell you my experience with COQ10. Five years ago I had an echo and was told my valve leakage had worsened and I needed heart surgery. Blessedly (is that a word), I was referred to a cardiologist who is a world leader researcher in COQ10. He told me my leakage was worse but did not constitute a need for heart surgery. He started me on COQ10. Last year after my echo he told me I had no worse than anyone my age. (most peope don't have echo and do not know they have a little leakage)

My the way, this is the doctor that had the tests ran that led to my Pf diagnosis. Unfortunately, my internist did not even call me and tell me my night O2 was in the 70s.

Sorry I can't speak to the memory aspect, but I am a believer in COQ2.

From: Barbara McD bamny (AT) yahoo (DOT) com sats weTo: Breathe-Support@ yt speaahoogroups. comSent: Sat, December 12, 2009 12:00:58 PMSubject: CO Q10

My memory has been worse than ever since starting prednisone. I'm not sure if the prednisone is causing it or if, like Bob, I just have worsening CRS. A friend who was having memory issues pointed me in the direction of CO Q10. She had heard and read that statins (which I take high doses of, for 30+ years)can cause memory loss. She believes that her memory has improved significantly since taking CO Q10. My question is... have forum members taken CO Q10, and if so what would you say about it?B

[Guest guest]

Barbara

I really can't tell because I have two dieases that affect short term memory. Sleep apnea and PF. COQ2 can't make up for lack of oxgyen. Maybe someone else can shed some light however we all have PF.

Gale

To: Breathe-Support Sent: Sat, December 12, 2009 3:22:00 PMSubject: Re: CO Q10

Gale:

In the little bit of research I did read, COQ10 was sometimes prescribed for heart-related illnesses--with good effect. Glad that it worked for you in that respect. By any chance, have you noticed any difference in your memory since you started taking it?

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Attitude is everything.

From: Gale More <gale.more (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sat, December 12, 2009 4:12:33 PMSubject: Re: CO Q10

Barbara,

Let me tell you my experience with COQ10. Five years ago I had an echo and was told my valve leakage had worsened and I needed heart surgery. Blessedly (is that a word), I was referred to a cardiologist who is a world leader researcher in COQ10. He told me my leakage was worse but did not constitute a need for heart surgery. He started me on COQ10. Last year after my echo he told me I had no worse than anyone my age. (most peope don't have echo and do not know they have a little leakage)

My the way, this is the doctor that had the tests ran that led to my Pf diagnosis. Unfortunately, my internist did not even call me and tell me my night O2 was in the 70s.

Sorry I can't speak to the memory aspect, but I am a believer in COQ2.

From: Barbara McD bamny (AT) yahoo (DOT) com sats weTo: Breathe-Support@ yt speaahoogroups. comSent: Sat, December 12, 2009 12:00:58 PMSubject: CO Q10

My memory has been worse than ever since starting prednisone. I'm not sure if the prednisone is causing it or if, like Bob, I just have worsening CRS. A friend who was having memory issues pointed me in the direction of CO Q10. She had heard and read that statins (which I take high doses of, for 30+ years)can cause memory loss. She believes that her memory has improved significantly since taking CO Q10. My question is... have forum members taken CO Q10, and if so what would you say about it?B

[Guest guest]

For Beth:

My son tells me that swine flu shots are now available to all that wants one.

Crazy! This puts many folks at a higher risk. First we could not make enough and now we can not sell what we made. I bet the Swiss drug company will be paid for all we ordered--delivered or not.

Burns

Subject: Re: CO Q10To: Breathe-Support Date: Saturday, December 12, 2009, 1:36 PM

BarbaraI'd encourage you to read Mayo's information on CoQ10.http://www.mayoclin ic.com/health/ coenzyme- q10/NS_patient- coenzymeq10The safety section certainly points out some issues that could be ofconcern to us. I don't know what other meds you are on or anything elsebut I would certainly want doctor's approval before taking it (or mostany supplement). Issues of blood sugar, thyroid levels, and exercisewould seem the most significant to most PF'ers.>> My memory has been worse than ever since starting prednisone. I'm notsure if

the prednisone is causing it or if, like Bob, I just haveworsening CRS. A friend who was having memory issues pointed me in thedirection of CO Q10. She had heard and read that statins (which I takehigh doses of, for 30+ years)can cause memory loss. She believes thather memory has improved significantly since taking CO Q10.>> My question is... have forum members taken CO Q10, and if so whatwould you say about it?>> B>

[Guest guest]

This is the way it is with all flu vaccines. A large percentage of the

population chooses not to get vaccinated. They choose so for many

reasons ranging from lack of interest to lack of concern based on their

personal health to false information about the vaccines spread through

the internet and gossip. We are just really entering the regular flu

season. We don't know how long H1N1 will be active.

> >

> > My memory has been worse than ever since starting prednisone. I'm

not

> sure if the prednisone is causing it or if, like Bob, I just have

> worsening CRS. A friend who was having memory issues pointed me in the

> direction of CO Q10. She had heard and read that statins (which I take

> high doses of, for 30+ years)can cause memory loss. She believes that

> her memory has improved significantly since taking CO Q10.

> >

> > My question is... have forum members taken CO Q10, and if so what

> would you say about it?

> >

> > B

> >

>

[Guest guest]

Pink

Since more is becoming available, you might make a couple of calls.

Walgreens in Pennsauken, NJ is suppose to have it. Also here is a list

of health centers in Philadelphia although I don't know if you actually

live in Philadelphia city limits.

http://www.phila.gov/health/H1N1/h1n1fluclinics.html

For anyone still having trouble finding them, I'd recommend checking

here as well:

http://www.passporthealthusa.com

Passport Health does nothing but vaccines and they were the first in my

county to get large quantities. That's where I got mine. The best part

too is they schedule appointments and you don't have to be around any

sick people.

> >

> > My memory has been worse than ever since starting prednisone. I'm

not

> sure if the prednisone is causing it or if, like Bob, I just have

> worsening CRS. A friend who was having memory issues pointed me in the

> direction of CO Q10. She had heard and read that statins (which I take

> high doses of, for 30+ years)can cause memory loss. She believes that

> her memory has improved significantly since taking CO Q10.

> >

> > My question is... have forum members taken CO Q10, and if so what

> would you say about it?

> >

> > B

> >

>

[Guest guest]

Joyce: How close are you to one the "Centers of Excellence?" The U. of Chicago told me I can have a shot on my return visit--1-11-2010. Some Doctors here gave them to lung- problem folks like us; however, only to their own clients. I am sorry I do not remember your location. Burns

From: Bruce <brucemoreland@ gmail.com>Subject: Re: CO Q10To: Breathe-Support@ yahoogroups. comDate: Saturday, December 12, 2009, 1:36 PM

BarbaraI'd encourage you to read Mayo's information on CoQ10.http://www.mayoclin ic.com/health/ coenzyme- q10/NS_patient- coenzymeq10The safety section certainly points out some issues that could be ofconcern to us. I don't know what other meds you are on or anything elsebut I would certainly want doctor's approval before taking it (or mostany supplement). Issues of blood sugar, thyroid levels, and exercisewould seem the most significant to most PF'ers.>> My memory has been worse than ever since starting prednisone. I'm notsure if the prednisone is causing it or if, like Bob, I

just haveworsening CRS. A friend who was having memory issues pointed me in thedirection of CO Q10. She had heard and read that statins (which I takehigh doses of, for 30+ years)can cause memory loss. She believes thather memory has improved significantly since taking CO Q10.>> My question is... have forum members taken CO Q10, and if so whatwould you say about it?>> B>

[Guest guest]

I thought you could get it everywhere now. I got mine and I still have a bruised arm to prove it. I have never had a flu shot bruise me before.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia Idaho

From: Bruce <brucemoreland@ gmail.com>Subject: Re: CO Q10To: Breathe-Support@ yahoogroups. comDate: Saturday, December 12, 2009, 1:36 PM

BarbaraI'd encourage you to read Mayo's information on CoQ10.http://www.mayoclin ic.com/health/ coenzyme- q10/NS_patient- coenzymeq10The safety section certainly points out some issues that could be ofconcern to us. I don't know what other meds you are on or anything elsebut I would certainly want doctor's approval before taking it (or mostany supplement). Issues of blood sugar, thyroid levels, and exercisewould seem the most significant to most PF'ers.>> My memory has been worse than ever since starting prednisone. I'm notsure if the prednisone is causing it or if, like

Bob, I

just haveworsening CRS. A friend who was having memory issues pointed me in thedirection of CO Q10. She had heard and read that statins (which I takehigh doses of, for 30+ years)can cause memory loss. She believes thather memory has improved significantly since taking CO Q10.>> My question is... have forum members taken CO Q10, and if so whatwould you say about it?>> B>

[Guest guest]

thanks bruce

you have to be a resident of PHiladelphia county to receive it there -- the county and city are the same thing in Philly

i live in bucks county - they have a limited schedule coming up this week--

i will have to drive a good distance in the evening to get one and bring proof that i live in the county -- driver's license

i also plan on bringing proof of the diagnosis

in the meantime i will start a new post to tell you about today

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: CO Q10To: Breathe-Support Date: Sunday, December 13, 2009, 1:48 PM

PinkSince more is becoming available, you might make a couple of calls.Walgreens in Pennsauken, NJ is suppose to have it. Also here is a listof health centers in Philadelphia although I don't know if you actuallylive in Philadelphia city limits.http://www.phila. gov/health/ H1N1/h1n1fluclin ics.htmlFor anyone still having trouble finding them, I'd recommend checkinghere as well:http://www.passport healthusa. comPassport Health does nothing but vaccines and they were the first in mycounty to get large quantities. That's where I got mine. The best parttoo is they schedule appointments and you don't have to be around anysick people.> >> > My memory has been worse than ever since starting prednisone. I'mnot> sure if the prednisone is causing it or if, like Bob, I just have> worsening CRS. A friend who was having memory issues pointed me in the> direction of CO Q10. She had heard and read that statins (which I take> high doses of, for 30+ years)can cause memory loss. She believes

that> her memory has improved significantly since taking CO Q10.> >> > My question is... have forum members taken CO Q10, and if so what> would you say about it?> >> > B> >>

[Guest guest]

philadelphia suburb -- going to penn on wed -- will ask -- when i was there in nov, they didn't have any

local hospital that i go to doestn't have any either

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: CO Q10To: Breathe-Support Date: Sunday, December 13, 2009, 2:58 PM

Joyce: How close are you to one the "Centers of Excellence?" The U. of Chicago told me I can have a shot on my return visit--1-11- 2010. Some Doctors here gave them to lung- problem folks like us; however, only to their own clients. I am sorry I do not remember your location. Burns

From: Bruce <brucemoreland@ gmail.com>Subject: Re: CO Q10To: Breathe-Support@ yahoogroups. comDate: Saturday, December 12, 2009, 1:36 PM

BarbaraI'd encourage you to read Mayo's information on CoQ10.http://www.mayoclin ic.com/health/ coenzyme- q10/NS_patient- coenzymeq10The safety section certainly points out some issues that could be ofconcern to us. I don't know what other meds you are on or anything elsebut I would certainly want doctor's approval before taking it (or mostany supplement). Issues of blood sugar, thyroid levels, and exercisewould seem the most significant to most PF'ers.>> My memory has been worse than ever since starting prednisone. I'm notsure if the prednisone is causing it or if, like Bob, I

just haveworsening CRS. A friend who was having memory issues pointed me in thedirection of CO Q10. She had heard and read that statins (which I takehigh doses of, for 30+ years)can cause memory loss. She believes thather memory has improved significantly since taking CO Q10.>> My question is... have forum members taken CO Q10, and if so whatwould you say about it?>> B>

[Guest guest]

thanks linda

i did call about a week ago

there will be shots given in a couple of the high schools this week

i plan on going to Fairless hills on Tuesday

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: CO Q10To: Breathe-Support Date: Sunday, December 13, 2009, 12:56 PM

Joyce, Call the Bucks Co. Health Dept...Montco is giving them with no restrictions!My doc doesn't have any but the county is giving shots at the Community college on Thursday!

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

Joyce T Rosenberg wrote:

john

i wish the h1n1 shots were available where i live

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Bruce <brucemoreland@ gmail.com>Subject: Re: CO Q10To: Breathe-Support@ yahoogroups. comDate: Saturday, December 12, 2009, 1:36 PM

BarbaraI'd encourage you to read Mayo's information on CoQ10.http://www.mayoclin ic.com/health/ coenzyme- q10/NS_patient- coenzymeq10The safety section certainly points out some issues that could be ofconcern to us. I don't know what other meds you are on or anything elsebut I would certainly want doctor's approval before taking it (or mostany supplement). Issues of blood sugar, thyroid levels, and exercisewould seem the most significant to most PF'ers.>> My memory has been worse than ever since starting prednisone. I'm notsure if the prednisone is causing it or if, like Bob, I just haveworsening CRS. A friend who was having memory issues pointed me in thedirection of CO Q10. She had heard and read that statins (which I takehigh doses of, for 30+ years)can cause memory loss. She believes thather memory has improved significantly since taking CO Q10.>> My question is... have forum members taken CO Q10, and if so whatwould you say about it?>> B>

[Guest guest]

Joyce, So sorry you are sick. Be careful and take care of you. I would hold off on the vaccine for a week or so.All GOOD thoughts coming your way.

Love & PrayersPeggy, IPF 2004

Bruce

there are a few places where the h1n1 is being given in bucks county -- in high schools

i was going to go yesterday

but walked the dog prior to leaving for a high school -- about a 30 minute drive with no traffic

got a coughing spell -- took 15 to 30 minutes to settle down and decided not to make the trip

have been staying home since i got back from er on sunday -- except i walked the dog once

fortunately he is paper trained

now i wonder if it would be safe to get the vaccine while sick

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org--- On Sun, 12/13/09, Bruce <brucemoreland (AT) gmail (DOT) com> wrote:

From: Bruce <brucemoreland (AT) gmail (DOT) com>Subject: Re: CO Q10To: Breathe-Support Date: Sunday, December 13, 2009, 1:48 PM

PinkSince more is becoming available, you might make a couple of calls.Walgreens in Pennsauken, NJ is suppose to have it. Also here is a listof health centers in Philadelphia although I don't know if you actuallylive in Philadelphia city limits.http://www.phila. gov/health/ H1N1/h1n1fluclin ics.htmlFor anyone still having trouble finding them, I'd recommend checkinghere as well:http://www.passport healthusa. comPassport Health does nothing but vaccines and they were the first in mycounty to get large quantities. That's where I got mine. The best parttoo is they schedule appointments and you don't have to be around anysick people.> >> > My memory has been worse than ever since starting prednisone. I'mnot> sure if the prednisone is causing it or if, like Bob, I just have> worsening CRS. A friend who was having memory issues pointed me in the> direction of CO Q10. She had heard and read that statins (which I take> high doses of, for 30+ years)can cause memory loss. She believes

that> her memory has improved significantly since taking CO Q10.> >> > My question is... have forum members taken CO Q10, and if so what> would you say about it?> >> > B> >>