Re: getting pills in toddlers some are different!!!!

[Guest guest]

She doesn't like ketchup, haven't thought about salad dressing, HATES pudding,

tries peanut butter-not pretty, applesauce she just separates the beads and

pushes them out with her tongue. I wish that for once just one thing could be

simple with this disease, but no : ) I've just had a really bad day, it'll get

better, it has to right?

Katy

hlbbet wrote:

Lets start off with we have tried just about everything.Ketchup,salad

dressing,pudding,syrup,mayo,half done jello,whipped cream,peanut

butter,cake icing,(the most hated)applesauce,jelly.If none of these

work or seem too strange to try ask I have more I just can't think

right now.BeckyB.-Mama to 8-2w/cf--Nana to 2

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Icecream, if the child does not have cfrd, or if the child does, if the doctor

approves the experiment! Love to all mothers pushing pills into toddlers

on this list, n Rojas

getting pills in toddlers some are different!!!!

Lets start off with we have tried just about everything.Ketchup,salad

dressing,pudding,syrup,mayo,half done jello,whipped cream,peanut

butter,cake icing,(the most hated)applesauce,jelly.If none of these

work or seem too strange to try ask I have more I just can't think

right now.BeckyB.-Mama to 8-2w/cf--Nana to 2

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

My son was just 1 yr old when he swallowed Creon 5 whole. I was just

shocked.

> Icecream, if the child does not have cfrd, or if the child does, if

the doctor

> approves the experiment! Love to all mothers pushing pills into

toddlers

> on this list, n Rojas

> getting pills in toddlers some are

different!!!!

>

>

> Lets start off with we have tried just about

everything.Ketchup,salad

> dressing,pudding,syrup,mayo,half done jello,whipped cream,peanut

> butter,cake icing,(the most hated)applesauce,jelly.If none of

these

> work or seem too strange to try ask I have more I just can't

think

> right now.BeckyB.-Mama to 8-2w/cf--Nana to 2

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO

WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

>

[Guest guest]

Did he do it again? How in the world did you get him to do it?

Katy

" J. " wrote:

My son was just 1 yr old when he swallowed Creon 5 whole. I was just

shocked.

> Icecream, if the child does not have cfrd, or if the child does, if

the doctor

> approves the experiment! Love to all mothers pushing pills into

toddlers

> on this list, n Rojas

> getting pills in toddlers some are

different!!!!

>

>

> Lets start off with we have tried just about

everything.Ketchup,salad

> dressing,pudding,syrup,mayo,half done jello,whipped cream,peanut

> butter,cake icing,(the most hated)applesauce,jelly.If none of

these

> work or seem too strange to try ask I have more I just can't

think

> right now.BeckyB.-Mama to 8-2w/cf--Nana to 2

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO

WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

>

[Guest guest]

I didn't do it again since we started putting enzymes in his g-tube

(powder that you can't put in a mouth). All I did was put it in the

side/back of his mouth and gave him a quick drink of breastmilk that

I had in a syringe. If you put it in the side of their mouth, they

are more likely to swallow it but don't put it against their teeth

but closer to the tongue.

> > Icecream, if the child does not have cfrd, or if the child does,

if

> the doctor

> > approves the experiment! Love to all mothers pushing pills into

> toddlers

> > on this list, n Rojas

> > getting pills in toddlers some are

> different!!!!

> >

> >

> > Lets start off with we have tried just about

> everything.Ketchup,salad

> > dressing,pudding,syrup,mayo,half done jello,whipped cream,peanut

> > butter,cake icing,(the most hated)applesauce,jelly.If none of

> these

> > work or seem too strange to try ask I have more I just can't

> think

> > right now.BeckyB.-Mama to 8-2w/cf--Nana to 2

> >

> >

> >

> > -------------------------------------------

> > The opinions and information exchanged on this list should IN NO

> WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > ------------------------------------

> >

> >

> >

> >

[Guest guest]

How does he do with the powder? I don't think that Piper would willingly let me

put an enzyme in her mouth, let alone swallo it!! She is really the pill here:

) But I love her anyway!!!

Katy

" J. " wrote:

I didn't do it again since we started putting enzymes in his g-tube

(powder that you can't put in a mouth). All I did was put it in the

side/back of his mouth and gave him a quick drink of breastmilk that

I had in a syringe. If you put it in the side of their mouth, they

are more likely to swallow it but don't put it against their teeth

but closer to the tongue.

> > Icecream, if the child does not have cfrd, or if the child does,

if

> the doctor

> > approves the experiment! Love to all mothers pushing pills into

> toddlers

> > on this list, n Rojas

> > getting pills in toddlers some are

> different!!!!

> >

> >

> > Lets start off with we have tried just about

> everything.Ketchup,salad

> > dressing,pudding,syrup,mayo,half done jello,whipped cream,peanut

> > butter,cake icing,(the most hated)applesauce,jelly.If none of

> these

> > work or seem too strange to try ask I have more I just can't

> think

> > right now.BeckyB.-Mama to 8-2w/cf--Nana to 2

> >

> >

> >

> > -------------------------------------------

> > The opinions and information exchanged on this list should IN NO

> WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > ------------------------------------

> >

> >

> >

> >

[Guest guest]

Viokase, the powder enzymes, cannot go in the mouth. They taste awful

and damage the tissue. We mix them with water and put them in his g-

tube. No more enzyme battles.-

-- In cfparents , Katy <baileyk80@s...> wrote:

> How does he do with the powder? I don't think that Piper would

willingly let me put an enzyme in her mouth, let alone swallo it!!

She is really the pill here: ) But I love her anyway!!!

>

> Katy

>

> " J. " <jeninca1010@y...> wrote:

> I didn't do it again since we started putting enzymes in his g-tube

> (powder that you can't put in a mouth). All I did was put it in the

> side/back of his mouth and gave him a quick drink of breastmilk

that

> I had in a syringe. If you put it in the side of their mouth, they

> are more likely to swallow it but don't put it against their teeth

> but closer to the tongue.

>

>

> > > Icecream, if the child does not have cfrd, or if the child

does,

> if

> > the doctor

> > > approves the experiment! Love to all mothers pushing pills into

> > toddlers

> > > on this list, n Rojas

> > > getting pills in toddlers some are

> > different!!!!

> > >

> > >

> > > Lets start off with we have tried just about

> > everything.Ketchup,salad

> > > dressing,pudding,syrup,mayo,half done jello,whipped

cream,peanut

> > > butter,cake icing,(the most hated)applesauce,jelly.If none of

> > these

> > > work or seem too strange to try ask I have more I just can't

> > think

> > > right now.BeckyB.-Mama to 8-2w/cf--Nana to 2

> > >

> > >

> > >

> > > -------------------------------------------

> > > The opinions and information exchanged on this list should IN

NO

> > WAY

> > > be construed as medical advice.

> > >

> > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS

OR

> > TREATMENTS.

> > >

> > > ------------------------------------

> > >

> > >

> > >

> > >

[Guest guest]

Does he have any problems from them? That is what they first gave Piper as soon

as she was diagnosed, and it gave her the worst diarrhea. Maybe now since she

is older it might be better, I don't know. All I do know is that I am game for

just about anything at this point.

Katy

" J. " wrote:

Viokase, the powder enzymes, cannot go in the mouth. They taste awful

and damage the tissue. We mix them with water and put them in his g-

tube. No more enzyme battles.-

-- In cfparents , Katy wrote:

> How does he do with the powder? I don't think that Piper would

willingly let me put an enzyme in her mouth, let alone swallo it!!

She is really the pill here: ) But I love her anyway!!!

>

> Katy

>

> " J. " wrote:

> I didn't do it again since we started putting enzymes in his g-tube

> (powder that you can't put in a mouth). All I did was put it in the

> side/back of his mouth and gave him a quick drink of breastmilk

that

> I had in a syringe. If you put it in the side of their mouth, they

> are more likely to swallow it but don't put it against their teeth

> but closer to the tongue.

>

>

> > > Icecream, if the child does not have cfrd, or if the child

does,

> if

> > the doctor

> > > approves the experiment! Love to all mothers pushing pills into

> > toddlers

> > > on this list, n Rojas

> > > getting pills in toddlers some are

> > different!!!!

> > >

> > >

> > > Lets start off with we have tried just about

> > everything.Ketchup,salad

> > > dressing,pudding,syrup,mayo,half done jello,whipped

cream,peanut

> > > butter,cake icing,(the most hated)applesauce,jelly.If none of

> > these

> > > work or seem too strange to try ask I have more I just can't

> > think

> > > right now.BeckyB.-Mama to 8-2w/cf--Nana to 2

> > >

> > >

> > >

> > > -------------------------------------------

> > > The opinions and information exchanged on this list should IN

NO

> > WAY

> > > be construed as medical advice.

> > >

> > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS

OR

> > TREATMENTS.

> > >

> > > ------------------------------------

> > >

> > >

> > >

> > >

[Guest guest]

baby food peaches or pears have always worked for us. first a taste of the

fruit by itself, then a bit with the enzyme, then more fruit by itself as a

reward once enzyme has been taken. ( loves baby food peaches and pears-we

still use them for giving enzymes)

getting pills in toddlers some are different!!!!

Lets start off with we have tried just about everything.Ketchup,salad

dressing,pudding,syrup,mayo,half done jello,whipped cream,peanut

butter,cake icing,(the most hated)applesauce,jelly.If none of these

work or seem too strange to try ask I have more I just can't think

right now.BeckyB.-Mama to 8-2w/cf--Nana to 2

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Is she still on the bottle? When we finally couldn't get Patti to swallow beads

any more another parent on this list suggested popping them into her mouth whole

and letting her swallow them withe the sucking motion of the bottle. It worked

for us and at age three she can swallow up to 6 Pancrease MT 4's at once. Of

course I don't know how big the enzyme capsules are that you are giving her, the

Pancrease MT4's are quite small.

Dawn mom of 4, 7 and under, the youngest wcf

[Guest guest]

Viokase is working great for us but I had to fight the dietician to

get them. They aren't enterically coated so they aren't quite as

effective as regular enzymes but they are so easy to use with the g-

tube. Ashton is only fed with the tube (refuses to eat orally) so his

stools are different than a normal eater but they are soft.

> > > > Icecream, if the child does not have cfrd, or if the child

> does,

> > if

> > > the doctor

> > > > approves the experiment! Love to all mothers pushing pills

into

> > > toddlers

> > > > on this list, n Rojas

> > > > getting pills in toddlers some are

> > > different!!!!

> > > >

> > > >

> > > > Lets start off with we have tried just about

> > > everything.Ketchup,salad

> > > > dressing,pudding,syrup,mayo,half done jello,whipped

> cream,peanut

> > > > butter,cake icing,(the most hated)applesauce,jelly.If none of

> > > these

> > > > work or seem too strange to try ask I have more I just can't

> > > think

> > > > right now.BeckyB.-Mama to 8-2w/cf--Nana to 2

> > > >

> > > >

> > > >

> > > > -------------------------------------------

> > > > The opinions and information exchanged on this list should IN

> NO

> > > WAY

> > > > be construed as medical advice.

> > > >

> > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS

> OR

> > > TREATMENTS.

> > > >

> > > > ------------------------------------

> > > >

> > > >

> > > >

> > > >

[Guest guest]

She won't take a bottle, she absolutely refuses to take things by mouth. What

little she does take, it is not willingly. It is so frustrating. I guess we'll

have to go back to the Creon, atleast they will go through her button.

Katy

& Dawn Meeks wrote:

Is she still on the bottle? When we finally couldn't get Patti to swallow beads

any more another parent on this list suggested popping them into her mouth whole

and letting her swallow them withe the sucking motion of the bottle. It worked

for us and at age three she can swallow up to 6 Pancrease MT 4's at once. Of

course I don't know how big the enzyme capsules are that you are giving her, the

Pancrease MT4's are quite small.

Dawn mom of 4, 7 and under, the youngest wcf

[Guest guest]

Hi,

we are using Creon for Children. They are tiny beads and we also just popped

them into our´s daughter mouth as long as she was taking the bottle. She stopped

drinking her bottle when she was around 2 and this was and still is a reall

challenge. She is 2,5 years and all that she takes, it is also not willingly. So

the only way I can feed her (she would never eat on her own) is by letting her

watch TV. She is so fascinated by the TV that I actually manage to feed her

enough baby food while she is watching. We are still using Creon for children

and we give it together with the food she is having. Since she never uses her

teeth there is no danger that she would chew them...

Tana with Christian 4 years wocf and Miriam 2,5 years wcf

Katy schrieb:

> She won't take a bottle, she absolutely refuses to take things by mouth.

> What little she does take, it is not willingly. It is so frustrating. I

> guess we'll have to go back to the Creon, atleast they will go through her

> button.

>

> Katy

>

> & Dawn Meeks wrote:

> Is she still on the bottle? When we finally couldn't get Patti to swallow

> beads any more another parent on this list suggested popping them into her

> mouth whole and letting her swallow them withe the sucking motion of the

> bottle. It worked for us and at age three she can swallow up to 6 Pancrease

> MT 4's at once. Of course I don't know how big the enzyme capsules are that

> you are giving her, the Pancrease MT4's are quite small.

>

> Dawn mom of 4, 7 and under, the youngest wcf

>

>

>

[Guest guest]

Katy:

Have you tried Pancrecarb MS-4? They are enteric coated

microspheres. We break open the capsule and use these through the

tube. There is a recipie (easy) to use so they don't get stuck.

Also, a mic-key must be at least a 14 French in order to use these

beads. When giving the beads orally, we use ice cream and it works

wonders. My daughter has tracheomalacia, aspiration and oral

aversion, so she is a bit tricky to even get food into - let alone

beads. Good Luck!

Donna

Mikayla's mom

14 months and STILL NOT WALKING!!!

[Guest guest]

try extta vitamin E for walking

Re: getting pills in toddlers some are different!!!!

> Katy:

> Have you tried Pancrecarb MS-4? They are enteric coated

> microspheres. We break open the capsule and use these through the

> tube. There is a recipie (easy) to use so they don't get stuck.

> Also, a mic-key must be at least a 14 French in order to use these

> beads. When giving the beads orally, we use ice cream and it works

> wonders. My daughter has tracheomalacia, aspiration and oral

> aversion, so she is a bit tricky to even get food into - let alone

> beads. Good Luck!

>

> Donna

> Mikayla's mom

> 14 months and STILL NOT WALKING!!!

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

>