Re: Re: Becki update

[Guest guest]

AAAAAW, now that IS a sweet kid! And a good parent, Joe, Love, n

Re: Becki update

Glad to hear you're better Becki. You are constantly in our thoughts

and prayers. My 2 1/2 yr. old, Chloe, prays for you every night.

Hope you get to enjoy camp and that rehab goes smoothly so that the

ultimate goal comes to pass which is a very successful tx. God bless

you.

Joe

In cfparents , MissGooberGirl@a... wrote:

> Hey All

> I am home agian from another lovely 2 week stay at club

med.Hopefully I'll be

> able to stay out longer than 2 weeks this time ! ! ! I have to call

the

> coordinator at Mayo and let her know I'm home and starting rehab

Monday.Ive been

> trying to get into a closer rehab but after 6 months of trying I

gave up and am

> now going to do Dukes pre-tx rehab.I saw how well their TX folks

did,including

> Tricia (my hubby couldn't believe she'd had a TX just 4 weeks

prior) and the

> rehab had to have played a significant part in the way they bounced

back.I am

> really weak so I am really excited about it.

> I also have set the date for camp this summer to :

> June 21st through the 25th.

> It'll be up in the mountains again and we'll have a ton of

activities. Im not

> sure I'll be there but we'll have plenty of RT's,Nurses, and a doc

plus

> parental volunteers.

> This years camp has a pool (kept very clean),Climbing wall with zip

> line,nature trails,Rooms with AC and heat,hot showers, home made

> meals(country cooking),horseback riding through the mountain

trails,and of

> course Rafting and a ropes course. It'll be a blast.The location

that we were to

> have camp would involve too much of me right now and with this camp

you just

> pay a very reasonable price of $260(scholarships are available) and

they

> handle everything else.

> Anyways....thats that.It'll be at Coker Creek in Tenneessee.

> This hospital admission though, I kept having terrible trouble with

nausea

> and vomiting.There hasn't been a day where I haven't at least dry

heaved over

> some toilet or trash can since the middle of December.I kid you

not.I have

> delayed emptying and wonder if thats the cause or what...Im living

off of phenergan

> though....is this common before TX or is this a totally different

GI thing?

> I am just so excited about being able to dream about a future again

I can

> hardly wait....that may sound warped but Ive been sick for a long

time.

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

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