Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 Becki, I am glad that you are doing better and able to be home. I hope the nausea and vomiting goes away soon. takes reglan for her delayed stomach emptying, it seems to work well for her. It sounds like the camp plans are going well. It sounds like something would love when she is a bit bigger! You are still in my prayers. Becki update Hey All I am home agian from another lovely 2 week stay at club med.Hopefully I'll be able to stay out longer than 2 weeks this time ! ! ! I have to call the coordinator at Mayo and let her know I'm home and starting rehab Monday.Ive been trying to get into a closer rehab but after 6 months of trying I gave up and am now going to do Dukes pre-tx rehab.I saw how well their TX folks did,including Tricia (my hubby couldn't believe she'd had a TX just 4 weeks prior) and the rehab had to have played a significant part in the way they bounced back.I am really weak so I am really excited about it. I also have set the date for camp this summer to : June 21st through the 25th. It'll be up in the mountains again and we'll have a ton of activities. Im not sure I'll be there but we'll have plenty of RT's,Nurses, and a doc plus parental volunteers. This years camp has a pool (kept very clean),Climbing wall with zip line,nature trails,Rooms with AC and heat,hot showers, home made meals(country cooking),horseback riding through the mountain trails,and of course Rafting and a ropes course. It'll be a blast.The location that we were to have camp would involve too much of me right now and with this camp you just pay a very reasonable price of $260(scholarships are available) and they handle everything else. Anyways....thats that.It'll be at Coker Creek in Tenneessee. This hospital admission though, I kept having terrible trouble with nausea and vomiting.There hasn't been a day where I haven't at least dry heaved over some toilet or trash can since the middle of December.I kid you not.I have delayed emptying and wonder if thats the cause or what...Im living off of phenergan though....is this common before TX or is this a totally different GI thing? I am just so excited about being able to dream about a future again I can hardly wait....that may sound warped but Ive been sick for a long time. Becki YOUR FAVORITE LilGooberGirl YOUNGLUNG EMAIL SUPPORT LIST www.topica.com/lists/younglung Pediatric Interstitial Lung Disease Society http://groups.yahoo.com/group/InterstitialLung_Kids/<http://groups.yahoo.com/gro\ up/InterstitialLung_Kids/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 It sounds like you haven't stopped a minute. The camp sounds really super- I am glad your home , but hope your going to be feeling better soon. Glad your going to their rehab at DUKE. I know several folks who went & are still doing so well Take care LOVE & HUGS, grandmoMBEV Becki update Hey All I am home agian from another lovely 2 week stay at club med.Hopefully I'll be able to stay out longer than 2 weeks this time ! ! ! I have to call the coordinator at Mayo and let her know I'm home and starting rehab Monday.Ive been trying to get into a closer rehab but after 6 months of trying I gave up and am now going to do Dukes pre-tx rehab.I saw how well their TX folks did,including Tricia (my hubby couldn't believe she'd had a TX just 4 weeks prior) and the rehab had to have played a significant part in the way they bounced back.I am really weak so I am really excited about it. I also have set the date for camp this summer to : June 21st through the 25th. It'll be up in the mountains again and we'll have a ton of activities. Im not sure I'll be there but we'll have plenty of RT's,Nurses, and a doc plus parental volunteers. This years camp has a pool (kept very clean),Climbing wall with zip line,nature trails,Rooms with AC and heat,hot showers, home made meals(country cooking),horseback riding through the mountain trails,and of course Rafting and a ropes course. It'll be a blast.The location that we were to have camp would involve too much of me right now and with this camp you just pay a very reasonable price of $260(scholarships are available) and they handle everything else. Anyways....thats that.It'll be at Coker Creek in Tenneessee. This hospital admission though, I kept having terrible trouble with nausea and vomiting.There hasn't been a day where I haven't at least dry heaved over some toilet or trash can since the middle of December.I kid you not.I have delayed emptying and wonder if thats the cause or what...Im living off of phenergan though....is this common before TX or is this a totally different GI thing? I am just so excited about being able to dream about a future again I can hardly wait....that may sound warped but Ive been sick for a long time. Becki YOUR FAVORITE LilGooberGirl YOUNGLUNG EMAIL SUPPORT LIST www.topica.com/lists/younglung Pediatric Interstitial Lung Disease Society http://groups.yahoo.com/group/InterstitialLung_Kids/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 Hi Becki, We are so happy to heave you back. I hope your wait for tx is short! About the heaving thing, I wouldn't know but it doesn't sound fun. The camp does though! I wish we lived closer then maybe could go. love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 Glad to hear you're better Becki. You are constantly in our thoughts and prayers. My 2 1/2 yr. old, Chloe, prays for you every night. Hope you get to enjoy camp and that rehab goes smoothly so that the ultimate goal comes to pass which is a very successful tx. God bless you. Joe In cfparents , MissGooberGirl@a... wrote: > Hey All > I am home agian from another lovely 2 week stay at club med.Hopefully I'll be > able to stay out longer than 2 weeks this time ! ! ! I have to call the > coordinator at Mayo and let her know I'm home and starting rehab Monday.Ive been > trying to get into a closer rehab but after 6 months of trying I gave up and am > now going to do Dukes pre-tx rehab.I saw how well their TX folks did,including > Tricia (my hubby couldn't believe she'd had a TX just 4 weeks prior) and the > rehab had to have played a significant part in the way they bounced back.I am > really weak so I am really excited about it. > I also have set the date for camp this summer to : > June 21st through the 25th. > It'll be up in the mountains again and we'll have a ton of activities. Im not > sure I'll be there but we'll have plenty of RT's,Nurses, and a doc plus > parental volunteers. > This years camp has a pool (kept very clean),Climbing wall with zip > line,nature trails,Rooms with AC and heat,hot showers, home made > meals(country cooking),horseback riding through the mountain trails,and of > course Rafting and a ropes course. It'll be a blast.The location that we were to > have camp would involve too much of me right now and with this camp you just > pay a very reasonable price of $260(scholarships are available) and they > handle everything else. > Anyways....thats that.It'll be at Coker Creek in Tenneessee. > This hospital admission though, I kept having terrible trouble with nausea > and vomiting.There hasn't been a day where I haven't at least dry heaved over > some toilet or trash can since the middle of December.I kid you not.I have > delayed emptying and wonder if thats the cause or what...Im living off of phenergan > though....is this common before TX or is this a totally different GI thing? > I am just so excited about being able to dream about a future again I can > hardly wait....that may sound warped but Ive been sick for a long time. > Becki > YOUR FAVORITE LilGooberGirl > YOUNGLUNG EMAIL SUPPORT LIST > www.topica.com/lists/younglung > Pediatric Interstitial Lung Disease Society > http://groups.yahoo.com/group/InterstitialLung_Kids/ > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.