Re: Lots of ?s about Starting SCD w/ my 2yo

January 29, 2007

Regarding his medication, have you checked into having it compounded into an SCD

legal version? Lee Silsby Pharmacy in Ohio is a great place. (the

pharmacist) is incredibly SCD savvy, and knew Elaine. Check out their web site

for the phone number, and call to see if he can compound this med for your son.

Just tell him what it is, and that you need an SCD legal version of it. Ask him

if he can do it. The pharmacy ships all over the world. Now for the intro diet

question. He does not have to eat soup. You can drain the broth off for him.

He may go on a hunger strike, and you'll have to stick to your guns. If he

doesn't have diharea, then two days of intro is sufficient. After that, you

will have to start with all pealed, seeded, and cooked fruits and veggies. It

will be many months before he is ready for raw. If he won't eat scrambled eggs

without sausage, then crumble up hamburger meat in it. What I see is that

you've got a problem with stuff feeding that bad flora in the gut. Sausage is

full of illegals unless you make it yourself. Dried fruits feed the bad bugs

just because they are more difficult to digest, and the raw produce will too.

Check out the " beyond the intro diet " chart under the " food preparation " section

of pecanbread.com. It's not the Bible of new food introduction, but you need to

be aware of the types of foods that more easily digested. Don't rush through

trying to get back to fresh or dried fruits and veggies because you think that

will make him happier. His health and healing is more important.

Meleah

Lots of ?s about Starting SCD w/ my 2yo

My barely 2yo DS is currently on a GF/CF and allergy elimination diet

(per IgG results). We are getting ready to challenge some of the IgG

foods soon. Since starting this whole rollercoaster last year (EI

eval, PDD-NOS diagnosis, many hours of behavioral therapy), DS is

doing remarkably well cognitively, and I say he is now more a " gut "

kid than an ASD kid (although he still has some precocious

peculiarities like a huge fixation on letters and numbers, and a

speech delay). He was scoped last August, and has enterocolitis and

lymphonodular hyperplaysia, as well as esophogitis and ulcers in his

GI junction and duodenum.

Diarrhea has never been a problem. He was constipated beginning at 3

weeks of age; removing casein at 18 months made a huge impact on his

stool pattern, although we recently had a relapse of skipping days

and straining hard with BMs. Our nutritionist thinks it may have been

from the addition of Vance's Darifree (potato milk), which we have

since stopped.

I really think SCD is the right thing for him, and his best chance at

someday eating a normal diet, but I have a few questions (sorry this

is so long-winded):

1) I'm really worried about the intro diet. There is no way my child

will eat soup. Also, he's casein free and I'm afraid to give dry

cottage cheese, not that I think he'd eat it anyway. He does eat

scrambled eggs, but only if I add crumbled sausage to it. He will

sometimes eat meatloaf, but for some reason has always snubbed

hamburger patties without even tasting them. Plus he's used to

snacks like dried fruit, Larabars, crackers, Weelshire Farms meat

sticks, etc. I'm really worried he's just going to get mad at the

choices I give him and then work himself into a frenzy and not be

able to eat anything all day for 3 days. What do I do if this happens?

2) BTVC recommends waiting on certain foods until diarrhea is under

control. Since diarrhea was never a problem, can I give these foods

right away? I'm specifically taking about eggs and raw fruit. He

currently eats apples, grapes, and bananas (on occasion) in addition

to some dried fruits like pineapple, papaya and raisins. There is no

way I can see him eating cooked fruits - he won't even eat anything

pureed like applesauce anymore. As for eggs . they are on the intro

diet, and since diarrhea has never been a problem, I assume this is

OK.

3) He currently takes Pentasa for his bowel problems and has been

doing really well on it. I have to open the capsules and mix the

beads into something soft . meanwhile he doesn't eat any pureed

textures like applesauce. So for now I either put it in peanut

butter, chicken salad or hummus. I'm sure I can figure something out

after the into, but what do I do while he's on the intro diet for

meds? He's way too young to swallow pills. Should I just skip them

for the 2-3 day intro? I obviously wouldn't do this without

consulting with his GI doc first, but I wanted to know if anyone here

has BTDT.

I think that covers all my questions, at least for now. Thanks!

January 29, 2007

Does anybody have a sausage recipe? I have a friend that smokes his

meats and has offered to do it for Anya if we give him a recipe.

Thanks in advance. Araceli

Granmother to Anya 4 yrs.2 mo.

UC diagnosed 5/24/06

SCD 6/28/06

25 daily mg. MP6

2 capsules Pentasa daily

Freeda's multivitamin (1/4 pill)

January 29, 2007

>

> Does anybody have a sausage recipe? I have a friend that smokes his

> meats and has offered to do it for Anya if we give him a recipe.

> Thanks in advance. Araceli

>

Go to Google and key in " SCD Sausage "

here is one typical link but you will find moire:

http://www.scdrecipe.com/recipes/r_004_00071.php

Carol F.

SCD 7 years, celiac

January 29, 2007

You don't have to use any dairy products to start with. Most families here did

not. If the child was CF before SCD, then you start dairy free. At some point,

you *may* want to add the SCD yogurt, made from GOAT milk. But you can remain

CF if you want to. Probiotic supplements are a must, though (l.acidophilus). As

Meleah suggested, check out the ASD Intro suggestions on the website.

Many parents have said the same thing you did.... no way will he/she eat soup.

More than a few have simply mixed the soup broth with juice, in the child's

sippy cup..... and they get the healing benefits of the broth without even

realising they're having soup. You can puree the carrots and chicken meat

together.... or however you think he might accept them.

<<I'm really worried he's just going to get mad at the

choices I give him and then work himself into a frenzy and not be

able to eat anything all day for 3 days. >>

This is very likely. He will then get to join the exclusive SCD food striker

club. MANY parents have the same worries..... and MANY kids do " get mad "

and refuse to eat.... at first. You have to really decide and commit.... if you

believe this diet is what you need to do, then get as much information here in

advance as you can..... plan it all out. Try some of the recipes. READ and READ

and READ back through our archived messages, and at the website

www.pecanbread.com . You will have to be ready for however he reacts.... and

have a plan of action. Don't be afraid of making your child mad..... you're

taking a step that may mean all the difference for his future..... we're talking

about healing that gut and helping him recover. He will thank you some day.

You can use eggs from the beginning. They are included on the Intro Diet.

Everyone needs to start with cooked fruits (and veggies). Ripe bananas are the

only exception. Kids who " only " eat raw fruit often like the crunch.... and

dislike the soft mushy texture of cooked fruits. For them, we often suggest

steaming apple, pear, peach (or whatever) in slices.... then freezing those

slices on a baking sheet and let him try them frozen, like little popsicles. You

can also make fruit sauces, and freeze them into popsicle molds, etc.

Dried fruits are just too advanced.... too difficult to digest.... and will

impede his progress.

Is there a chance his med could be mixed into liquid? Like juice? Would he

take it that way? After the Intro diet (two days is all you need), you should

be able to introduce a nut butter fairly soon, but we don't recommend peanut

butter for beginners.... we've just seen too many kids struggle along and then

do much better once peanut butter is pulled out. Peanuts are legumes.... and

legumes are more advanced foods.... so best to try almond butter, or hazelnut,

macadamia or pecan butter (you might not find that one in stores.... but you can

make it in a blender or food processer by adding a little oil to raw pecans and

blending till smooth. Sunflower oil is a good choice.

Patti

January 30, 2007

Patti - Thank you so much for your thorough response (everyone else

too!) The last 24 hours I've been alternating between thinking

there's no way we can do this, and Yes, I can make it happen. The

frozen fruit idea is a good one, but he doesn't like things that are

excessively cold. I printed out a bunch of recipes from SCDRecipe.com

last night, and I think he might tolerate the apple latkes (after

all, he likes potato pancakes, I think it's the texture, crunch as

you said). I read that seeds are best avoided in the beginning, but

are seed butters OK? He eats a lot of sunflower seed butter now, and

it's pretty easy to get the meds in that way. I also found a recipe

for hummos made with white beans instead of chickpeas, but I have to

wait awhile on beans, too, right?

>

> You don't have to use any dairy products to start with. Most

families here did not. If the child was CF before SCD, then you start

dairy free. At some point, you *may* want to add the SCD yogurt, made

from GOAT milk. But you can remain CF if you want to. Probiotic

supplements are a must, though (l.acidophilus). As Meleah suggested,

check out the ASD Intro suggestions on the website.

>

> Many parents have said the same thing you did.... no way will

he/she eat soup. More than a few have simply mixed the soup broth

with juice, in the child's sippy cup..... and they get the healing

benefits of the broth without even realising they're having soup. You

can puree the carrots and chicken meat together.... or however you

think he might accept them.

>

> <<I'm really worried he's just going to get mad at the

> choices I give him and then work himself into a frenzy and not be

> able to eat anything all day for 3 days. >>

>

> This is very likely. He will then get to join the exclusive SCD

food striker club. MANY parents have the same worries..... and

MANY kids do " get mad " and refuse to eat.... at first. You have to

really decide and commit.... if you believe this diet is what you

need to do, then get as much information here in advance as you

can..... plan it all out. Try some of the recipes. READ and READ and

READ back through our archived messages, and at the website

www.pecanbread.com . You will have to be ready for however he

reacts.... and have a plan of action. Don't be afraid of making your

child mad..... you're taking a step that may mean all the difference

for his future..... we're talking about healing that gut and helping

him recover. He will thank you some day.

>

> You can use eggs from the beginning. They are included on the Intro

Diet.

>

> Everyone needs to start with cooked fruits (and veggies). Ripe

bananas are the only exception. Kids who " only " eat raw fruit often

like the crunch.... and dislike the soft mushy texture of cooked

fruits. For them, we often suggest steaming apple, pear, peach (or

whatever) in slices.... then freezing those slices on a baking sheet

and let him try them frozen, like little popsicles. You can also make

fruit sauces, and freeze them into popsicle molds, etc.

>

> Dried fruits are just too advanced.... too difficult to digest....

and will impede his progress.

>

> Is there a chance his med could be mixed into liquid? Like juice?

Would he take it that way? After the Intro diet (two days is all you

need), you should be able to introduce a nut butter fairly soon, but

we don't recommend peanut butter for beginners.... we've just seen

too many kids struggle along and then do much better once peanut

butter is pulled out. Peanuts are legumes.... and legumes are more

advanced foods.... so best to try almond butter, or hazelnut,

macadamia or pecan butter (you might not find that one in stores....

but you can make it in a blender or food processer by adding a little

oil to raw pecans and blending till smooth. Sunflower oil is a good

choice.

>

> Patti

>

January 30, 2007

Hi again,

Seed butters will not be appropriate for right at the beginning. I honestly am

not exactly sure why Elaine felt so, but seeds.... even in butter form.... are

considered a more advanced food. In the book, she says:

" Do not use seeds of any kind until three months after the last symptom has

disappeared and then try them cautiously. "

In the case of a child with autism, who does not have obvious or severe GI

symptoms, you will still wait.... probably at LEAST three months.

Obviously, after some healing is behind you, introducing seeds in the form of

seed BUTTER would come before whole seeds. Just common sense there.

And yes, beans are more advanced, too. Sorry! So it will be at least a few

months before the yummy hummus.

Mmmmm..... I made those apple latkes recently. REALLY GOOD! Mine did not get

super crispy though, the way a potato pancake would. I might not have cooked

them long enough, or hot enough.