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Re: sara's story

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Sara,

who at UCSF did you see? I too was diagnosed with chronic pancreatitis

at UCSF.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

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Sara,

You don't have to be nervous about talking about anything that bothers you

here. I don't like to sound as though we're all knowing, but we have heard just

about everything possible that people have experienced and feared, and

everyone here is most sympathetic to each other's problems.

Don't be afraid to be firm with your regular doc and explain to her that a

specialist has confirmed your chronic pancreatitis and that you just don't have

IBS. Some doctors like to think they know more than others, and are reluctant

to accept another physician's diagnosis. It's important that your medication is

kept current and that the instructions for treating your CP are followed. If

the

regular doctor is treating you, she should honor the instructions

recommended by the gastroenterologist.

If you try to eat only foods with low fat, you shouldn't have much difficulty.

The

enzymes are designed to help you with that, and if you don't feel that they are,

it may be that you need to be switched to another brand. There are also

alternate medications for nausea, so it might be that you aren't on the one

that's most effective for you. All of this should be discussed with your

doctor.

They need to work with you on some of these things until you're seeing more

improvement.

You might think about reconsidering the doctor's recommendation for

antidepressants. Many of us take them each day, and have found that they

help tremendously, even with our attitude about eating and the pain that

eating sometimes causes. It takes two to three weeks before you would

notice any difference, but once the therapy has continued, they truly do help!

I

wouldn't tell you this unless I'd experienced it myself. I've been taking them

for two years now and really notice a great improvement.

Please don't be afraid to ask us if you have any questions at all, we truly do

want to help you.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina State Rep.

SE Regional Rep., PAI

http://pancassociation.org/anthology.htm#Heidi

Note: All comments or advice are based on personal experience or opinion,

and should not be substituted for consultation with a medical professional.

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