Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 Hi- Just a quick note to let you know about something we learned at last weekend's CFF Annual Dinner. (I hope I have not already posted this- I have been a little scattered this week getting our little guy ready to go in for surgery!) There was a state rep there who has had a long standing connection to cf through friends etc. who has been working on a bill to allow children with cf to be able to carry their own enzymes in school without going to the nurse etc. By strange coincidence (or not) he and his wife had a new baby recently and he or she has... you guessed it- cf. Anyway, he said that the bill has gone through all the required channels and should soon be on the governor's desk for signing. He said that Gov. Romney has assured him it will be signed the day he receives it. So that is good news for all of our kiddos who sometimes get a hard time in school about carrying their enzymes and taking responsibility for their own health. Just thought you'd like to know. Take care, Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 HOW WONDERFUL . Now if that could happen in ALL the states!! LOVE & HUGS, thanks for update GrandmoMBEV Attn. Massachusetts Parents Hi- Just a quick note to let you know about something we learned at last weekend's CFF Annual Dinner. (I hope I have not already posted this- I have been a little scattered this week getting our little guy ready to go in for surgery!) There was a state rep there who has had a long standing connection to cf through friends etc. who has been working on a bill to allow children with cf to be able to carry their own enzymes in school without going to the nurse etc. By strange coincidence (or not) he and his wife had a new baby recently and he or she has... you guessed it- cf. Anyway, he said that the bill has gone through all the required channels and should soon be on the governor's desk for signing. He said that Gov. Romney has assured him it will be signed the day he receives it. So that is good news for all of our kiddos who sometimes get a hard time in school about carrying their enzymes and taking responsibility for their own health. Just thought you'd like to know. Take care, Debi ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 Agreeing with Bev's post about allowing children to carry their own enzymes for lunch--which is likely to pass in Massachusetts! Love to all, n Attn. Massachusetts Parents Hi- Just a quick note to let you know about something we learned at last weekend's CFF Annual Dinner. (I hope I have not already posted this- I have been a little scattered this week getting our little guy ready to go in for surgery!) There was a state rep there who has had a long standing connection to cf through friends etc. who has been working on a bill to allow children with cf to be able to carry their own enzymes in school without going to the nurse etc. By strange coincidence (or not) he and his wife had a new baby recently and he or she has... you guessed it- cf. Anyway, he said that the bill has gone through all the required channels and should soon be on the governor's desk for signing. He said that Gov. Romney has assured him it will be signed the day he receives it. So that is good news for all of our kiddos who sometimes get a hard time in school about carrying their enzymes and taking responsibility for their own health. Just thought you'd like to know. Take care, Debi ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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