Re: Re: Our sweat test is next week/ajsera2001

[Guest guest]

n- you are an inspiration just in your typing............lol

I went through every mother's nightmare - the BLOOD TEST...............OMG -

he was wild. He was screaming and I mean screaming LEAVE IT IN! Lab tech -

who are wonderful - said they never heard that one........

I am so glad its over-for now! I dread this. He fought them tooth and nail

when they tried to put the mask on him! I have to focus on today or I will

get myself crazed.

Its a Friday night and I am bored. At least my husband is working! There is

a God.........I know no prayer........lol

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

my new favorite quote is

Any idiot can face a crisis -

it's day to day living that wears you out.

Anton Chekhov

[Guest guest]

Well, do not panic! There are people who score high who do not have cf,

and nearly a third of the cf patients at s Hopkins have no dna identifica

tion--and there is one mutation that seldom produces much salt or much

pancreatic problem: R117H; I was misdiagnosed with that one and thought

it odd as am salty and we will not even discuss my pancreas; also R117H

cf persons tend to live longer. The oldest officially identified cf patient in

the united states is 79 (I think) and was not diagnosed, despite fairly severe

illness even in childhood, until 52, had two children, and although not doing

well now, is hanging in there; she was first diagnosed with the sweat test!

I hope this helps; there really IS life after cf--for many, sadly, not for all!

Love to you, n Rojas, wcf, 66, mom of 2 adult carriers and one adult

wcf--all still kicking!

Re: Our sweat test is next week

Thanks for the kind reply and information. I really appreciate it. I

called this morning and scheduled her sweat test for Wednesday at 10

A.M.

I guess all we can do now is wait.

Thanks, again!

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Rosemary, you know, sometimes I even spellcheck it and it still comes out

idiot typing--maybe I, too, have read to much Chechov! Love to you!

n---hoping hard for you and kids!

Re: Re: Our sweat test is next week/ajsera2001

n- you are an inspiration just in your typing............lol

I went through every mother's nightmare - the BLOOD TEST...............OMG -

he was wild. He was screaming and I mean screaming LEAVE IT IN! Lab tech -

who are wonderful - said they never heard that one........

I am so glad its over-for now! I dread this. He fought them tooth and nail

when they tried to put the mask on him! I have to focus on today or I will

get myself crazed.

Its a Friday night and I am bored. At least my husband is working! There is

a God.........I know no prayer........lol

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

my new favorite quote is

Any idiot can face a crisis -

it's day to day living that wears you out.

Anton Chekhov