Re: Disappointed: Advice needed

[Guest guest]

No it's not weird. I was in a similar situation, where I was desperate to get my

son a helmet, so I just kept going to doctor's until I found one who would write

a script. Cranofacial surgeons are more band friendly than neurosurgeons (they

are only concerned with brain issues whereas cranio surgeons are more

cosmetic-minded), so hopefully you will get a script tomorrow. But if not, keep

trying different pediatricians until you find one willing to help. Good luck!

Jake-3.5 (DOCBand Grad 9/08)

>

> So we finally had the long-awaited appointment with the neurosurgeon

yesterday. While I'm thrilled that he considers his plagio " mild, " I'm also a

little disappointed that he wasn't willing to discuss helmet therapy at all.

(Mild based on a scale in the doctor's head... Nothing scientific or

measurments...) The doctor said he wants us to do " aggressive repositioning "

with him for the next two months (at that point, Brody will be almost 8 months

old) and see how it is at that point. Um, hello, what does he think we've been

doing for the last 5 months. As soon as we knew about his plagio, we

immediately began repositioning. And at the same time, how much can you truly

reposition a rolling 5 month old baby? I feel like we've sort of hit a dead end

with making any progress on his plagio/asymmetry on our own and the next step is

helmet therapy, but he wasn't into that option at all. I fought the idea of

Brody in a helmet for a few months for a long time in the beginning, but after

these posts and all your great attitudes and advice, I've come to be OK with

it--only I'm ready for it NOW, not 2 months down the line when we've missed out

on so much growth.

>

> Did anyone else find resistance in this way? We're meeting with a cranio

specialist tomorrow and I'm hoping to get a different report. Does it sound

weird that I WANT them to prescribe the helmet? As a parent, I want to know

that I've done every little thing possible for my child and got nothing but

resistance from the neurosurgeon... Please help...

>

[Guest guest]

This gives me hope for our cranio appt tomorrow. I thought the same

thing--perhaps a plastic surgeon would understand our desire for symmetry more

than a neurosurgeon. Thanks so much!

> >

> > So we finally had the long-awaited appointment with the neurosurgeon

yesterday. While I'm thrilled that he considers his plagio " mild, " I'm also a

little disappointed that he wasn't willing to discuss helmet therapy at all.

(Mild based on a scale in the doctor's head... Nothing scientific or

measurments...) The doctor said he wants us to do " aggressive repositioning "

with him for the next two months (at that point, Brody will be almost 8 months

old) and see how it is at that point. Um, hello, what does he think we've been

doing for the last 5 months. As soon as we knew about his plagio, we

immediately began repositioning. And at the same time, how much can you truly

reposition a rolling 5 month old baby? I feel like we've sort of hit a dead end

with making any progress on his plagio/asymmetry on our own and the next step is

helmet therapy, but he wasn't into that option at all. I fought the idea of

Brody in a helmet for a few months for a long time in the beginning, but after

these posts and all your great attitudes and advice, I've come to be OK with

it--only I'm ready for it NOW, not 2 months down the line when we've missed out

on so much growth.

> >

> > Did anyone else find resistance in this way? We're meeting with a cranio

specialist tomorrow and I'm hoping to get a different report. Does it sound

weird that I WANT them to prescribe the helmet? As a parent, I want to know

that I've done every little thing possible for my child and got nothing but

resistance from the neurosurgeon... Please help...

> >

>

[Guest guest]

I just wantd to add be sure to tell them that you have already been doing the

repositioning for a while now! so if your child is 6 mos old now it will be

alot harder to reposition plus the growth is going to start slowing down. Not

knowing what your sons measurements are its hard to say if he truely needs one

or not though. I can tell you what they told me at Hanger - anything 6mm off or

below is normal so they won't do a band for that. When my son was initially

measued by cranio specialist he was measured at 15mm but I was still told that

was mild and it was left up to me. Since he was 6 mos and we had tried repo

already I went for the band. So it will help that you alreadyhave some

knowledege and that you have already tried repositioning. If the specialists is

not in favor of a band I would eval at a helmet place and see what they say.

le

10mos

Hanger grad

> > >

> > > So we finally had the long-awaited appointment with the neurosurgeon

yesterday. While I'm thrilled that he considers his plagio " mild, " I'm also a

little disappointed that he wasn't willing to discuss helmet therapy at all.

(Mild based on a scale in the doctor's head... Nothing scientific or

measurments...) The doctor said he wants us to do " aggressive repositioning "

with him for the next two months (at that point, Brody will be almost 8 months

old) and see how it is at that point. Um, hello, what does he think we've been

doing for the last 5 months. As soon as we knew about his plagio, we

immediately began repositioning. And at the same time, how much can you truly

reposition a rolling 5 month old baby? I feel like we've sort of hit a dead end

with making any progress on his plagio/asymmetry on our own and the next step is

helmet therapy, but he wasn't into that option at all. I fought the idea of

Brody in a helmet for a few months for a long time in the beginning, but after

these posts and all your great attitudes and advice, I've come to be OK with

it--only I'm ready for it NOW, not 2 months down the line when we've missed out

on so much growth.

> > >

> > > Did anyone else find resistance in this way? We're meeting with a cranio

specialist tomorrow and I'm hoping to get a different report. Does it sound

weird that I WANT them to prescribe the helmet? As a parent, I want to know

that I've done every little thing possible for my child and got nothing but

resistance from the neurosurgeon... Please help...

> > >

> >

>