Re: Disappointed: Advice needed

[Guest guest]

Personally, I think if you really feel he needs a helmet, you should take him for an evaluation at a place that does the helmets. They'll do scientific measurements and let you know if he needs a helmet. I know you were asking me about Hanger in Columbus... and my pediatrician said that she's sent a lot of babies there for evaluation and Hanger has said some of the babies don't need helmets... so she trusts that the babies they say do need them, really do. So, if Hanger says he doesn't need a helmet, you can relax. If they say he does, you can work on fighting it. You can always get a prescription for the helmet from your regular pediatrician. The prescription does not have to come from a specialist.I think mommy's gut is best. If you gut says he needs

help, get him some help. Getting an evaluation is free and it's worth a day's hassle to set your mind at ease.mom to , 7 months, tort & plagioHanger band since 3/1/10From: <mbetts@...>Plagiocephaly Sent: Thu, March 25, 2010 11:39:19 AMSubject: Disappointed: Advice needed

So we finally had the long-awaited appointment with the neurosurgeon yesterday. While I'm thrilled that he considers his plagio "mild," I'm also a little disappointed that he wasn't willing to discuss helmet therapy at all. (Mild based on a scale in the doctor's head... Nothing scientific or measurments. ..) The doctor said he wants us to do "aggressive repositioning" with him for the next two months (at that point, Brody will be almost 8 months old) and see how it is at that point. Um, hello, what does he think we've been doing for the last 5 months. As soon as we knew about his plagio, we immediately began repositioning. And at the same time, how much can you truly reposition a rolling 5 month old baby? I feel like we've sort of hit a dead end with making any progress on his plagio/asymmetry on our own and the next step is helmet therapy, but he wasn't into that option at all. I fought the idea of Brody in a helmet for a few months for

a long time in the beginning, but after these posts and all your great attitudes and advice, I've come to be OK with it--only I'm ready for it NOW, not 2 months down the line when we've missed out on so much growth.

Did anyone else find resistance in this way? We're meeting with a cranio specialist tomorrow and I'm hoping to get a different report. Does it sound weird that I WANT them to prescribe the helmet? As a parent, I want to know that I've done every little thing possible for my child and got nothing but resistance from the neurosurgeon. .. Please help...

[Guest guest]

Where do you live? Maybe, someone on the group can refer you to

someone who can help. Having two boys with plagio, one more than the

other, I definitely recommend treating mild plagio, and the sooner the

better.

-mom to almost 22 months and 5.5 years both now with very

mild plagio ( treated since 12 months and untreated)

wrote:

So we finally had the long-awaited appointment with the

neurosurgeon yesterday. While I'm thrilled that he considers his plagio

"mild," I'm also a little disappointed that he wasn't willing to

discuss helmet therapy at all. (Mild based on a scale in the doctor's

head... Nothing scientific or measurments...) The doctor said he

wants us to do "aggressive repositioning" with him for the next two

months (at that point, Brody will be almost 8 months old) and see how

it is at that point. Um, hello, what does he think we've been doing for

the last 5 months. As soon as we knew about his plagio, we immediately

began repositioning. And at the same time, how much can you truly

reposition a rolling 5 month old baby? I feel like we've sort of hit a

dead end with making any progress on his plagio/asymmetry on our own

and the next step is helmet therapy, but he wasn't into that option at

all. I fought the idea of Brody in a helmet for a few months for a long

time in the beginning, but after these posts and all your great

attitudes and advice, I've come to be OK with it--only I'm ready for it

NOW, not 2 months down the line when we've missed out on so much

growth.

Did anyone else find resistance in this way? We're meeting with a

cranio specialist tomorrow and I'm hoping to get a different report.

Does it sound weird that I WANT them to prescribe the helmet? As a

parent, I want to know that I've done every little thing possible for

my child and got nothing but resistance from the neurosurgeon...

Please help...

[Guest guest]

I live in the Dayton, Ohio area. I found a local area that does Star Bands: Do

I have to get a Rx before seeing them for an evaluation?

> >

> >

> > So we finally had the long-awaited appointment with the neurosurgeon

> > yesterday. While I'm thrilled that he considers his plagio " mild, " I'm

> > also a little disappointed that he wasn't willing to discuss helmet

> > therapy at all. (Mild based on a scale in the doctor's head... Nothing

> > scientific or measurments...) The doctor said he wants us to do

> > " aggressive repositioning " with him for the next two months (at that

> > point, Brody will be almost 8 months old) and see how it is at that

> > point. Um, hello, what does he think we've been doing for the last 5

> > months. As soon as we knew about his plagio, we immediately began

> > repositioning. And at the same time, how much can you truly reposition

> > a rolling 5 month old baby? I feel like we've sort of hit a dead end

> > with making any progress on his plagio/asymmetry on our own and the

> > next step is helmet therapy, but he wasn't into that option at all. I

> > fought the idea of Brody in a helmet for a few months for a long time

> > in the beginning, but after these posts and all your great attitudes

> > and advice, I've come to be OK with it--only I'm ready for it NOW, not

> > 2 months down the line when we've missed out on so much growth.

> >

> > Did anyone else find resistance in this way? We're meeting with a

> > cranio specialist tomorrow and I'm hoping to get a different report.

> > Does it sound weird that I WANT them to prescribe the helmet? As a

> > parent, I want to know that I've done every little thing possible for

> > my child and got nothing but resistance from the neurosurgeon...

> > Please help...

> >

> >

>